Articles by admin

No Image

Patients In Iowa Worry About Private Management Of Medicaid

Brenda Hummel and her 7-year-old daughter Andrea in their home near Des Moines, Iowa. Andrea was born with severe epilepsy and gets her health care through Medicaid.
3:53

Download

Brenda Hummel and her 7-year-old daughter Andrea in their home near Des Moines, Iowa. Andrea was born with severe epilepsy and gets her health care through Medicaid. Clay Masters/Iowa Public Radio hide caption

itoggle caption Clay Masters/Iowa Public Radio

Brenda Hummel’s 7-year-old daughter Andrea was born with severe epilepsy. Like many children with significant diseases or disabilities, she has health insurance through Medicaid. Hummel navigated Iowa’s Medicaid resources for years to find just the right doctors and care for her daughter. But now Iowa’s governor, Republican Terry Branstad, is moving full speed ahead with a plan to put private companies in charge of managing Medicaid’s services, and that has Hummel worried.

Everywhere in the Hummel household, there are signs of just how much care Andrea needs. Her bedroom, for instance, looks like a typical kid’s room — stuffed animals, a frog light that shines images on the ceiling, and a butterfly mobile. But the bed stands out – the head of the bed goes up and down so Andrea can have her head elevated when she sleeps.

“When she was throwing up all the time when she was in a regular bed, I hardly got any sleep,” Hummel explains, “because if I heard her coughing, I knew she was choking.”

Andrea has this bed thanks to Medicaid — as well as her wheelchair and nurses, like Nate Lair who’s been with the family for years. When Hummel gets home from work, Lair says, Andrea’s personality changes.

“That’s when she turns on the diva attitude,” he says, laughing.

That diva attitude is significant progress. For years, Hummel says, her daughter showed very little personality. Seizures interrupted her development.

Now Andrea is able to go to school and do normal activities. But her mom worries that having a private business in charge of Medicaid will jeopardize the level of care Andrea gets.

“She hasn’t been in the hospital for 2 1/2 years, I think,” says Hummel. “So when they look at that, they may think, ‘[Her services] are not medically necessary. She’s doing great and doesn’t need these services that are costing money.’ But, in my eyes, she can fall back to having seizures any time. We’re not out of the woods at all.”

Maybe it’ll be OK, Hummel says, but she just doesn’t know enough.

Medicaid serves a large population in Iowa. The state expanded Medicaid under the Affordable Care Act, and is now open to not only its traditional population — the poor and disabled — but also to adults who earn as much as about $16,000 a year for a single person, and as much as $32,000 for a family of four.

Amy McCoy, who is with Iowa’s Department of Health, says patients will continue to receive the same care under the new system, and the changes will save money and streamline the services.

Iowa Senate President Pam Jochum wants to make sure the transition of Medicaid recipients to private companies has good oversight.

Iowa Senate President Pam Jochum wants to make sure the transition of Medicaid recipients to private companies has good oversight. Clay Masters/Iowa Public Radio hide caption

itoggle caption Clay Masters/Iowa Public Radio

“Some people might have five doctors,” McCoy says. “Through this care-coordination effort, they can make sure everybody’s on the same page with their treatment.”

McCoy says having private insurers manage Medicaid is nothing new.

“Thirty-nine states are using some kind of managed care,” she says. “So other people have done this. We have models to look after, and we have companies who have experience.”

But a lot of states, including Kansas and Kentucky, have not done so well, says Pam Jochum, president of the Iowa Senate and a Democrat.

“You know, when I was a kid growing up my mother would say, ‘If everybody jumps off the bridge, are you going to, too?’ ” Jochum says. “Of course not! The point is that just because everyone else is doing it doesn’t make it better.”

Families like Brenda Hummel’s have a natural ally in Jochum; she, too, has a daughter with special needs who has been on Medicaid all of her life. Still, even with Jochum’s opposition to the changes in Medicaid, the process in Iowa is moving forward. Gov. Branstad did not need legislative approval when he announced the switch to managed care in January.

In response, some lawmakers, including Jochum, insisted on a committee to oversee the transition and to make sure that consumers are treated fairly.

“There is no way,” Jochum says, “you can put that many people into a system all at once, with various degrees of disabilities and need, and think anyone can manage that and manage it well.”

Eleven companies have submitted bids to manage most of the $4 billion program, and Iowa plans to announce later this month which insurers will win the bid.

Brad Wright studies health policy at the University of Iowa. He says a lot of states have experimented with this idea, but on a smaller scale.

“They’ve not … done what Iowa is proposing to do — or at least most have not done this — which is to put everyone into it,” Wright says.

The only hurdle that stands in the way of approval, he says, is an OK from the federal government.

“If that happens,” Wright says, “starting in January, it’s full steam ahead.”

This story is part of NPR’s reporting partnership with local member stations and Kaiser Health News.

This entry passed through the Full-Text RSS service – if this is your content and you’re reading it on someone else’s site, please read the FAQ at fivefilters.org/content-only/faq.php#publishers.


No Image

Today in Movie Culture: Awkward 'American Ultra' Interview, 'Deadpool' Trailer Analysis and More

Here are a bunch of little bites to satisfy your hunger for movie culture:

Awkward Junket Parody of the Day:

Jesse Eisenberg and Kristen Stewart faux-awkwardly interview each other in this junket-parodying promo for American Ultra:

Trailer Analysis of the Day:

Mr. Sunday Movies breaks down the new Red Band trailer for Deadpool, showing or speculating about six things you may have missed:

[embedded content]

Movie Comparison of the Day:

In honor of a new Fantastic Four opening this week, Couch Tomato shows us 24 ways the 2005 version of Fantastic Four is the same movie as the 1986 The Fly remake:

[embedded content]

Vintage Image of the Day:

Marilyn Monroe at Dodgers Stadium on her birthday, June 1, 1962, which was also her last public appearance before her death two months later, on August 5.

Video Essay of the Day:

Lewis Bond’s essay on color in storytelling in movies is obviously very pretty to look at — and also, yes, educational (via First Showing):

[embedded content]

PSA of the Day:

Kevin Bacon is here with a very important message: movies need more male nudity, and he’ll preferably provide it (via Neatorama):

[embedded content]

Cosplay of the Day:

Marie Fredeique shares a few images of herself as Katniss from The Hunger Games (via All That’s Cosplay):

@AllThatsCosplay I have a really cool Spider-Gwen coming up and last month, I did Katniss ?? enjoy! pic.twitter.com/tsfVxRmQMB

— Marie Frédérique J. (@shmuberry) August 4, 2015

A Capella Tribute of the Day:

Four singers honor composer Hans Zimmer with a-cappella versions of his scores, including Inception and The Dark Knight, with their own lyrics added:

[embedded content]

Movie Redo of the Day:

It’s time for another episode of 8-bit cinema, this time redoing District 9 as if it were an old-school video game:

[embedded content]

Classic Trailer of the Day:

Today is the 55th anniversary of the release of Roger Corman‘s Little Shop of Horrors, which stars a young Jack Nicholson. Watch the original trailer for the original film below.

[embedded content]

Send tips or follow us via Twitter:

and

This entry passed through the Full-Text RSS service – if this is your content and you’re reading it on someone else’s site, please read the FAQ at fivefilters.org/content-only/faq.php#publishers.


No Image

Cellphone Service Down For Thousands, But Regulators May Never Know Why

Tens of thousands of people in the southeastern U.S. went without cellphone service Tuesday for about five hours. For some, that even meant they couldn’t call 911.

The outage hit parts of Kentucky, Tennessee, Alabama and Georgia. It’s not exactly clear what caused the incident. State officials say years of deregulation have made it nearly impossible for authorities to find out details from telecom companies. State regulators say they have no way of knowing if the problem stemmed from neglect of the infrastructure, an accident, or sabotage.

What is known comes from statements made by the major phone carriers — Verizon, T-Mobile, Sprint and AT&T. All of the carriers say the problem started at a part of the infrastructure that’s buried in the ground, and is owned and operated by AT&T.

Derek Turner, with the nonprofit watchdog group Free Press, says most cellphone providers still have to rely on some older networks. “What a lot of people don’t realize is that a cell tower connects your calls to a wire and usually that wire is owned by the legacy monopoly phone company,” he says.

In an email, an AT&T spokesperson said engineers pinpointed a “hardware related issue.”

NPR contacted the state utility authorities in Kentucky and Tennessee. Andrew Melnykovych of the Kentucky Public Service Commission says he thinks it may have been a cut fiber optic cable. “But, beyond that,” says Melnykovych, “we don’t know much.”

Tim Schwartz, a spokesperson for the Tennessee Regulatory Authority, has different information. “My understanding is that it was a router issue,” says Schwartz. “It just failed to work and so they just had to replace it.”

And it is likely these agencies will never be able to tell us more than the phone companies choose to reveal. According to Schwartz, “the wireline and wireless service in particular is market-regulated here in Tennessee. So the TRA, the Utility Commission, does not have jurisdiction over these issues.”

Turner of the Free Press says that the telecoms have been lobbying for years to get rid of the federal and state regulations that once covered telephone service.

“They’ve tried to sell policy makers on this idea that once we switch over to all IP based communications that there won’t be any need for ongoing regulatory oversight,” says Turner.

The Federal Communications Commission does have the ability to look into it. But, Turner thinks that it would be more efficient for state regulators to have oversight. And he says, the telecoms have been trying to get rid of the federal regulations as well.

One thing is certain. Cellphones have become essential to contemporary life. When Ashley Johnson of Louisville lost her service on Tuesday, she struggled to make child care arrangements.

“I was trying to get on my work computer to get in touch with my grandma,” she says, “so she made sure she had my kids and to let her know my phone wasn’t working. It was horrible. It was several hours.”

About five hours, say authorities. And that’s about as much detail as they may ever know.

This entry passed through the Full-Text RSS service – if this is your content and you’re reading it on someone else’s site, please read the FAQ at fivefilters.org/content-only/faq.php#publishers.


No Image

Untangling The Many Deductibles Of Health Insurance

Illustration Works/Corbis

Illustration Works/Corbis

Sure, there’s a deductible with your health insurance. But then what’s the hospital deductible? Your insurer may have multiple deductibles, and it pays to know which apply when. These questions and answers tackle deductibles, whether an ex-spouse has to pay for an adult child’s insurance, and balance billing.

Recently I took my son to see a pediatric gastroenterologist. When I arrived at the office, I saw it was located adjacent to the hospital. My insurance has a large hospitalization deductible so I worried that the visit would not be covered. Nobody in the office could tell me how much an office visit would cost. Why not? Isn’t that something I should be able to expect?

Your plan’s hospital deductible won’t affect how much you pay for the visit to the specialist, whether or not his office is affiliated with the hospital, says Richard Gundling, vice president at the Healthcare Financial Management Association, a professional group.

Here’s how it works. Most health plans have medical deductibles that must be satisfied before the plan starts paying for most services. Preventive care is an important exception; there’s no deductible for that. Some plans like yours also have separate hospital deductibles. But your hospital deductible would generally only come into play if you were admitted as an inpatient.

“Even if the facility is hospital based, her visit would still be an outpatient procedure and wouldn’t affect her hospital deductible,” Gundling says.

Though your hospital deductible wouldn’t be an issue in this case, if your plan has a regular medical deductible and you haven’t yet satisfied it for the year, you may have to pay for the specialist visit anyway.

The doctor’s office should have been able to tell you how much the office visit would cost, Gundling says, but you may be better off checking with your insurer to find out how much you’ll actually owe out of pocket. Your insurer will have information about both how much it has agreed to pay the provider for an office visit and how much you’ll owe based on your health plan deductible and copayment details.

I have insurance coverage through the Affordable Care Act’s marketplace. When I visited a cancer clinic for a routine blood check, I asked upfront three times (first over the phone and again when I was there) if all services would be in-network. The answer was yes each time. Afterward I received a bill from an out-of-network lab for $570. Is there anything I could have done to avoid this charge?

In theory, you could have asked the clinic for the name of the lab that it would use for your blood work and checked with your insurer to make sure that it too was in network, says Kevin Lucia, a senior research fellow at Georgetown University’s Center on Health Insurance Reforms who co-authored a recent study on state efforts to protect consumers from surprise out-of-network bills.

However, “that seems to be a lot of work for the consumer,” Lucia says.

New rules take effect next year for plans sold on the marketplace that will require health plans to maintain up-to-date lists of providers that are easily accessible to consumers.

A CMS official was unable to clarify whether plans must also provide up-to-date listings of labs in addition to other providers.

In the meantime, check with your insurer, Lucia advises. It’s not unusual for providers to bill patients for services that are ultimately covered by their plan.

My ex-husband is responsible for health care premiums for our dependent daughter who will turn 21 in October. Under the Affordable Care Act, children can remain on their parents’ plans until age 26, but my ex is planning to drop our daughter’s coverage when she turns 21. Can he do that?

Yes, he probably can. Although the law requires health plans to offer coverage until adult children turn 26 in most instances, there’s nothing that requires parents to provide it. If your divorce agreement required him to pay for your daughter’s health insurance until she turns 21, his obligation will likely be satisfied at that point.

If your ex-husband chooses to drop your daughter’s coverage and she doesn’t sign up for her own plan, however, he may be on the hook for any financial penalty she owes for not having insurance.

Under the health law, most people have to have insurance or face penalties. In 2015, the penalty is the greater of 2 percent of household income or $325 per person.

If he claims her as his dependent, “When he does his taxes he’ll have to show that everyone in his household has insurance, and then he’ll have to pay the penalty,” says Karen Pollitz, a senior fellow at the Kaiser Family Foundation.

Since she’s part of his household, the penalty would be based on his income, not hers.

As for your daughter, if she loses coverage she’ll be eligible for a special enrollment period to sign up on the exchange, or she may be eligible for Medicaid if she lives in one of the roughly two-thirds of states that have expanded coverage to adults with incomes up to 138 percent of the federal poverty level, currently $16,243.

This entry passed through the Full-Text RSS service – if this is your content and you’re reading it on someone else’s site, please read the FAQ at fivefilters.org/content-only/faq.php#publishers.


No Image

Bryce Harper Or Mike Trout: Are These Two Too Good?

Los Angeles Angel Mike Trout (left) and Washington National Bryce Harper during warmups before the start of an April 2014 baseball game in Washington.
3:39

Download

Los Angeles Angel Mike Trout (left) and Washington National Bryce Harper during warmups before the start of an April 2014 baseball game in Washington. Pablo Martinez Monsivais/AP hide caption

itoggle caption Pablo Martinez Monsivais/AP

Because college football and basketball are so prominent, when the best players move up to the pros they’re already well-known.

However, baseball’s different.

How many of you pretty good sports fans can tell me who won the baseball College World Series just a few weeks ago? Same with the players. Even the stars drafted highest are anonymous except to the real cognoscenti. And even then, whereas invariably the can’t-miss prospects in other sports don’t miss, hardly ever miss, in baseball nobody ever says: Can’t miss. Fact is, the ones who miss too often are the scouts.

Click the audio above to hear what Frank Deford has to say about these two players.

This entry passed through the Full-Text RSS service – if this is your content and you’re reading it on someone else’s site, please read the FAQ at fivefilters.org/content-only/faq.php#publishers.


No Image

Watch: First 'Deadpool' Red Band Trailer Is Gonna Give It To Ya'

Update: Hop to the bottom of this post for the full Deadpool trailer.

The trailer for a trailer has become the lamest trend in movie marketing. Nobody wants to see a 15 second clip that exists just to tease when you’re going to be able to watch a 90 second clip. That said, Deadpool has just dropped the mic on trailers for trailers. If anyone is going to do one from here on out, it has to be better than this. And good luck, because it’s not going to be easy to top.

The full trailer will be online tomorrow after a broadcast-safe version of it premieres on Conan O’Brien’s late night show tonight, but to whet your appetite, here’s star Ryan Reynolds once again proving how this Deadpool is going to be very, very different from the Deadpool who showed up in X-Men Origins: Wolverine.

Warning, some language in this is NSFW.

[embedded content]

Update: And here are the trailers.

Green Band

[embedded content]

Red Band

[embedded content]

Follow @PeterSHall Follow @MoviesDotCom

This entry passed through the Full-Text RSS service – if this is your content and you’re reading it on someone else’s site, please read the FAQ at fivefilters.org/content-only/faq.php#publishers.


No Image

One Of The World's Most Famous Free Divers Is Missing Near Ibiza

Free diver Natalia Molchanova of Russia has been missing since Aug. 3.

Free diver Natalia Molchanova of Russia has been missing since Aug. 3. Jacques Munch/Stringer/Getty hide caption

itoggle caption Jacques Munch/Stringer/Getty

One of the world’s most prominent free divers is missing off the coast of an island called Formentera, near Ibiza, Spain. Natalia Molchanova of Russia was on a recreational dive on Sunday when she was separated from companions, according to AIDA, the worldwide federation for free diving. The organization calls her the most accomplished and most famous female free diver in the world.

Her fellow divers searched for her quickly before calling for help, according to The New York Times, which writes that she’s “widely regarded as the greatest free diver in history.”

AIDA writes that Molchanova holds 41 world records and has been a world champion 23 times. “Natalia trained hard for her sport, she had a nine minute breath hold, could dive to a depth of 101m using a fin and swim a distance of 234m with a fin.”

“She was diving without fins to around 30 to 40 m and supposable got into strong underwater current,” writes the AIDA press release. Search efforts have been ongoing during daylight hours.

After two days of searching, the Times reports that her son Alexey (also a diver) said that his mother, 53, wasn’t expected to be found alive. The Times continues:

” ‘She was a free-diving superstar and we all thought nothing could harm her,’ said Kimmo Lahtinen, the president of the global federation for free diving, known as AIDA. ‘Nothing could happen to her, but, you know, we are playing with the ocean, and when you play with the ocean you know who is the strongest one.’ “

The paper noted that the underwater search has expanded with the use of an underwater robot that can search “a radius of nearly 500 meters at depth.”

This entry passed through the Full-Text RSS service – if this is your content and you’re reading it on someone else’s site, please read the FAQ at fivefilters.org/content-only/faq.php#publishers.


No Image

The Soy Car Seat: Are Companies Doing Enough For The Environment?

A worker at Ford's assembly plant in Wayne, Mich., installs back seats made from soy-based foam in a Ford C-Max.
4:32

Download

A worker at Ford’s assembly plant in Wayne, Mich., installs back seats made from soy-based foam in a Ford C-Max. Jason Margolis/NPR hide caption

itoggle caption Jason Margolis/NPR

It’s earnings season on Wall Street, and investors are again looking to quarterly reports to gauge the health of companies. Some environmentalists are looking to so-called “sustainability reports” — how companies are improving their ecological footprints. But not all environmentalists are putting so much stock in these reports.

Andrew Hoffman, at the University of Michigan, breaks environmentalists into two colors, or rather shades of a color. First, the perspective of the “dark greens”:

“Business is the enemy because they just want to make money and they don’t care about the environment,” Hoffman says.

Then, there’s the “bright green.”

“[That person] looks at business as an ally, looks at the market as the solution. Business is the power. So if we’re going to solve the problems we face, it has to come through business,” Hoffman says.

Hoffman puts himself in this camp. He splits his time between the University of Michigan’s Business School and the School of Natural Resources and Environment as the director of the University’s Erb Institute, which blends the two fields. Hoffman teaches sustainability in business, and we’re not just talking about Patagonia and Tom’s of Maine. He tracks what big multinationals are doing.

“Dow is doing some really interesting things on valuing ecosystem services partnering with the Nature Conservancy,” says Hoffman. “Coca-Cola, for all its problems, is doing a lot of work to start to look at water issues.”

And just down the road, Hoffman points to Ford Motor Co. The automaker is improving its ecological footprint by making changes like using more renewable materials in its manufacturing process for interior car parts.

At its assembly plant in Wayne, Mich., workers quickly install back seats in sedans. In the past, the padding in seats was made mostly from petroleum-based compounds. Aaron Miller with Ford’s communications team says now, they’re made partly from plants, specifically soy.

Chemical engineer Debbie Mielewski heads Ford's plastics and sustainable research division. She says the automaker is looking to increase the amount of environmentally friendly materials in its vehicles.

Chemical engineer Debbie Mielewski heads Ford’s plastics and sustainable research division. She says the automaker is looking to increase the amount of environmentally friendly materials in its vehicles. Jason Margolis /NPR hide caption

itoggle caption Jason Margolis /NPR

“If you feel it, it’s very structured, very rigid,” Miller says, picking up a seat. “So when we use it in our seats, it meets the same safety standards, but now we’re using more environmentally friendly materials.”

But before there were soy seats in a factory, there were soybeans in a lab. Chemical engineer Debbie Mielewski, who heads Ford’s plastics and sustainable research division, points to some misshapen, deformed soy foams.

“Stinky, flat, something that nobody really wanted in their car or would be interested in sitting on,” she says.

Eventually, her team got the formula exactly right.

“We’re utilizing about 31,251 soy beans in every vehicle. But toward the future, we’d like to even put even more bio-based content in the foams,” Mielewski says.

She still has to include some petroleum compounds to make her foam. She’d like to eliminate that entirely with something like algae — to further reduce the company’s carbon emissions.

She’s also looking to build dashboard components from tomato stems, oat hulls, and old shredded U.S. currency.

Before chemists can run years of tests, they first need approval from people like John Viera, Ford’s global director of sustainability.

Would Ford use biomaterials that cost the company a little more?

“We wouldn’t because we just really believe there are more than enough opportunities to find applications that are good for business and good for the environment,” Viera says.

Ford has won several prominent environmental awards for its work with biomaterials and for reducing energy use and waste at its factories, including being named one of the Ethisphere Institute’s most ethical companies for six straight years. Still, not everyone is impressed.

John Ehrenfeld, a retired faculty member from MIT who studies business and the environment, says the very idea of a corporate sustainability report is flawed.

“I think companies just don’t get it,” he says. “Almost all things that show up in sustainability plans are one form of Band-Aid, trying to do less bad.”

Ehrenfeld doesn’t think companies like Ford are trying to mislead people.

“I just think that if they’re fooling anybody, they’re fooling themselves about the nature of the problem and the effectiveness of their solutions,” he says.

He says if Ford was really serious about tackling issues like global warming, it would invest in things like public transportation.

Ford’s leaders don’t entirely disagree.

Viera says Ford wants to become a “mobility solutions” leader — moving goods and people around in increasingly congested places, and not just by selling more cars and trucks. For that to work, though, the company — or any for-profit company — has to make sure it can make money doing it.

This entry passed through the Full-Text RSS service – if this is your content and you’re reading it on someone else’s site, please read the FAQ at fivefilters.org/content-only/faq.php#publishers.


No Image

Latitudes: The Global Music You Must Hear Right Now

A group of young Sudanese women performs “girls’ music” using overturned kettles and buckets as percussion in the documentary Beats of the Antonov. Hajooj Kuka/Courtesy of “POV” hide caption

itoggle caption Hajooj Kuka/Courtesy of “POV”

This month’s picks for international sounds run the gamut of ideas and emotions. They range from a deeply thought-provoking documentary film to a viral sensation from India that pokes fun at club culture. Think of them as the aural equivalents of a meaty long read to some lightest-of-light beach novels.

In his documentary Beats of the Antonov, Sudanese director Hajooj Kuka delves into the civil wars in Sudan, using music to explore issues of self-identity, both cultural and gender-based. Most of the music we hear is created for the community by the community, though we do meet a woman identified as Sarah Mohamed, a Sudanese musicologist — who is becoming known internationally as the singer Alsarah, whom we’ve profiled before in Latitudes.

Although the perspective is very much from the point of view of those who oppose the regime in Khartoum, Kuka has made a gripping work that presses deeply into issues of race, ethnicity and how people try to sustain their cultures, even under the most terrible circumstances. The full film premieres on TV this week on the PBS series POV and will also be streaming all month on their website.

[embedded content]

Even though this song came out several months ago, it took me a while to discover Alo Wala — but I promptly became obsessed. The band is fronted by a Chicago-born singer of South Asian heritage who apparently enjoys lo-res graphics and sonic mashups (think MIA back in the early days of “Arular”), paired with a Danish producers who clearly adore Jamaican dancehall. Their song “Cityboy” is compulsively danceable.

[embedded content]

Speaking of late discoveries: I only came across Riff Cohen via a cover of her song “Dans Mon Quartier” (“In My Neighborhood”) that’s just now hitting the Turkish pop scene. It’s a version by the singer Simge called “Mi? Mi?.” Born in Tel Aviv to a father of Tunisian Jewish background, and an Algerian Jewish mother raised in France, Cohen integrates all these elements into her music, as on her debut single “A Paris” (“In Paris”). Her newest single, “Hélas” (“Enough”), is a lot of fun, with its quirky aesthetics and a sonic sensibility that marries alternative with North African sounds.

[embedded content]

“Cannes mein kya word seekha tha?” — “What was that word we learned in Cannes?” — “SWAG.” That’s the setup for a video from Indian comedy group All India Bakchod (AIB) and actor Irrfan Khan that taxonomizes the hip hop-flavored excesses of the current Indian pop charts (Yo Yo Honey Singh, it’s pretty clear they’re looking straight at you, not just for one song but for your whole oeuvre).

[embedded content]

Finally, a local spin on a globally famous tune: my buddy Felix from Alt.Latino passed along a version of Michael Jackson’s “The Way You Make Me Feel” — sung in Quechua by the teenaged Renata Flores Rivera, and recorded in front of a famed Incan temple in Ayacucho, Peru. The Peruvian paper La República reports that the video is part of a local initiative to get young people interested in the indigenous Quechua language. (Another fascinating linguistic project closer to us is a weekly radio program broadcast in Quechua from New York, which was profiled last summer in the New York Times.)

[embedded content]

This entry passed through the Full-Text RSS service – if this is your content and you’re reading it on someone else’s site, please read the FAQ at fivefilters.org/content-only/faq.php#publishers.


No Image

Is Obamacare's Research Institute Worth The Billions?

PCORI Executive Director Joe Selby says grants to medical societies are needed to get through to busy professionals who "may not answer our phone calls."

PCORI Executive Director Joe Selby says grants to medical societies are needed to get through to busy professionals who “may not answer our phone calls.” Stephen Elliot/Courtesy of PCORI hide caption

itoggle caption Stephen Elliot/Courtesy of PCORI

On the ninth floor of a glassy high rise in downtown Washington, partitions are coming down to make more room for workers handing out billions of dollars in Obamacare-funded research awards.

Business has been brisk at the Patient-Centered Outcomes Research Institute or, PCORI, as it is known. The institute was created by Congress under the Affordable Care Act to figure out which medical treatments work best —measures largely AWOL from the nation’s health care delivery system.

Since 2012, PCORI has committed just over $1 billion to 591 “comparative effectiveness” contracts to find some answers, with much more to come. Money has thus far gone to researchers and medical schools, advocacy groups and even the insurance industry’s lobbying group, which snagged $500,000.

Institute officials say they are reshaping medical research by stressing “patient centered” projects that offer practical guidance to people living with chronic diseases. They cite a $14 million study to settle the debate over how much aspirin people should take daily to help ward off heart disease, or the $30 million project to reduce serious, even deadly, injuries from falls in the elderly.

But like all matters rooted in Obamacare, there are sharp disagreements, both political and scientific, over the core mission of the independent institute. PCORI expects to spend $3.5 billion by the end of the decade. Then it expires.

On both the right and the left, there’s simmering doubt about whether the unusual nonprofit can live up to expectations, or even what those expectations should reasonably be. Others argue these sorts of decisions should have been made prior to committing up to $3.5 billion.

“PCORI seems to have become almost invisible. Maybe they think that’s the best way to stay under the political radar screen,” said Gail Wilensky, a former Medicare chief under President George H.W. Bush. The institute has yet to “offer much value,” she said.

Some Republicans are viscerally hostile. They want to kill off or at the very least hamstring the institute, fearing it will lead to rationing of medical care by interfering with medical decision-making.

The House Appropriations Committee in late June voted to cut PCORI’s funding by $100 million—dubbing it wasteful spending. Earlier this year in the Senate, Kansas Republican Pat Roberts filed a bill to prevent Medicare from using PCORI results to “deny or delay coverage of an item or service.”

“Americans do not want the federal government limiting their treatment options and deciding what is best for them,” Roberts said at the time.

Liberals aren’t singularly thrilled, either. They fault the institute for not evaluating enough drugs and medical devices head-to-head to see which offer the best results – and thus the biggest bang for the health-care buck.

“If it doesn’t prove its worth soon there will be increasing calls for getting rid of it, or reducing its funding,” said Topher Spiro, vice president for health policy at the Center for American Progress, a liberal think tank. “That concerns us.”

PCORI executive director Joe V. Selby, a family physician and researcher, accepts some of the flak. But he argues that Congress directed the institute to explore research topics patients want and need — not to issue edicts on which treatments offer the best bargain.

“We are not in any way a cost effectiveness shop,” Selby said in an interview. “That is not our job and there is a certain wisdom in saying that we shouldn’t get involved.”

Clearly, PCORI’s stated mission means different things to different people.

Five years after setting up shop, PCORI is sponsoring many projects that offer great hope to doctors, patients and their advocates. But the institute also has spent hundreds of millions of dollars on activities only tangentially related to discovering which medical treatments are the most successful, a review by the Center for Public Integrity has found.

Among the findings:

  • PCORI has spent only about 28 percent of its contracting budget on projects that assess how best to prevent, diagnose or treat diseases. Selby says more such projects are coming, including head-to-head evaluations of drugs and medical and surgical treatments. He cited a hepatitis C study coming in the fall that will pit the highly costly drug Sovaldi against other options. Much of PCORI’s other spending, though, concerns how to accelerate its research or improve health care systems.
  • More than $70 million in PCORI awards cover projects intended to improve methods for conducting research, or to pay for contracts that are essentially public relations gestures to build support and good will in the medical community.

Those figures include nearly $10 million in “engagement” awards and “meeting and conference” subsidies for medical societies and other groups. America’s Health Insurance Plans, the industry trade group, got two engagement awards this year that total $500,000. One physicians’ organization got $250,000 to find out what its members think about PCORI and its work.

Institute officials said these types of awards are necessary to get their work noticed and amount to a mere “rounding error” in terms of total money spent.

PCORI has allocated an additional $61 million to help spread the reach and impact of its activities. But some projects, at least in summaries posted on the institute’s website, are so freighted with academic and scientific language that it’s hard to imagine how they could attract a wide audience. One project, for instance, looks at how doctors can create a “Zone of Openness” with patients.

But the institute faces steep challenges in making its mark on the everyday practice of medicine. The Affordable Care Act states that PCORI’s findings are “not to be construed as mandates for practice guidelines, coverage recommendations, payment or policy recommendations.”

Some critics say that language handcuffs the institute by limiting how its findings can be put to practical use. Others argue that PCORI has plenty of authority to push for more efficient health care spending, but has been too timid in wielding that power.

The health reform law gives PCORI “more flexibility than it is willing to use,” said Nicholas Bagley, who teaches at the University of Michigan Law School.

Oversight Is Minimal At Best

In the world of federally-funded medical research, the mammoth National Institutes of Health in Bethesda, Md., is sometimes viewed as the “discovery” agency, where scientists study the origins of disease and search for breakthroughs and cures. There’s also the much smaller federal Agency for Healthcare Research and Quality, with a budget of about $440 million and a mission to “make health care safer, higher quality, more accessible, equitable and affordable.”

PCORI is a third entrant with a different mission, though it can and does also collaborate with other federal agencies. Congress created it in 2010 as an independent institute that specializes in comparative effectiveness research. Under the ACA, the institute receives a mix of Medicare money, general revenue and funding from a tax on health plans.

PCORI is run by a board whose 21 members are picked by the Government Accountability Office, the watchdog arm of Congress, and it has 191 full-time staff. That’s up from 153 in September 2014.

Oversight is minimal. A GAO audit in March found little to fault, though auditors noted they had heard concerns that PCORI’s research priorities were “too broad and lack specificity.” GAO also noted that the institute won’t undergo an outside critique of its performance until 2020, after it has run through that $3.5 billion.

No Guarantee That Newer And Costlier Is Better

At least in theory, comparative effectiveness is pretty hard to fault. Common sense dictates that doctors need to know which drugs, medical devices and other treatments work best. And it makes little sense for anyone to pay for health care services that are shown conclusively to be ineffective.

But that’s not how things work. New drugs, for instance, come to market based on whether they are “safe and effective,” not if they are clearly superior to the competition. While many people might assume that a new medicine or device that costs much more than what’s already available must be better, there’s no such guarantee. In fact, more than half of medical treatments lack clear evidence of their effectiveness, according to the Institute of Medicine.

Doctors often can’t find persuasive evidence to advise them how best to get sick patients well. While many medical groups strongly back research to find these answers, getting their members to embrace recommended changes isn’t always easy or quick to happen. Some doctors may be slow to pick up on the most current medical information, while others may resent suddenly being told how they should alter their practice.

Dave deBronkart, a kidney cancer survivor, recalled talking to a doctor who derided “cookbook” medicine. “One doctor told me, ‘I want autonomy to practice as I see fit,’ ” deBronkart said. Like many other advocates, he favors a much greater role for patients in their own care.

Manufacturers of drugs, medical devices and other equipment also have a big stake in comparative research. Some companies have noted a worldwide move to restrict payments for health care services and certain types of drugs that can’t clearly demonstrate they are worth the price.

Drafters of the ACA tried to take note of all these competing interests and needs. Despite keen interest in using comparative effectiveness research to cut costs, they yielded to fears that patients could be denied some treatments. As a result, the law appears to restrict use of research findings for cutting costs at the same time that it allows PCORI to consider “the effect on national expenditures associated with a health care treatment” in setting its research priorities.

Testing Whether Nurses Help Reduce Risk Of Falls

Given its mandate, it’s perhaps no surprise that PCORI chose many projects that were seemingly worthwhile, but also unlikely to threaten any powerful health care factions.

Since 2012, PCORI has let $389 million in contracts for accelerating its research agenda or “improving healthcare systems.”

For instance, the $30 million study anchored by medical schools at Harvard, Yale and UCLA, hopes to reduce falls in the elderly.

Falls “represent grievous events for older persons and a major public health problem,” according to the study.

Albert Wu, a health policy professor at Johns Hopkins University who also is involved in the study, said researchers are looking at whether a “specially trained nurse” can work with older people and their relatives to find ways to cut down on these injuries.

“This is a topic that concerns every American who is over 65,” said Wu. “We all live in deathly fear an elderly relative will fall and break a hip. It causes terrible worry and distress and a substantial portion of those people die.”

Though PCORI director Selby wants little to do with health care financing controversies, the falls study appears to be an exception.

“Putting a nurse in every [doctor’s] office doesn’t come cheaply,” he said. “Who pays for that?” Selby said. Confirming unassailable health benefits of hiring the nurses “would be a big step toward getting coverage for that.”

The $14 million aspirin study also has widespread health ramifications because if people take too high a dose they can suffer internal bleeding that may outweigh any heart benefits.

Researchers at Duke University said that every year, 720,000 Americans have a heart attack, and nearly 380,000 die of coronary artery disease. They said that “increasing the use of an inexpensive yet effective therapy, such as aspirin … will save thousands of lives globally.”

“We know that aspirin can be beneficial in preventing heart attacks but surprisingly we haven’t known the appropriate dose,” said Ann Bonham, chief scientific officer for the Association of American Medical Colleges. “That’s an important piece of information…a gap that may not be recognized by a lot of people.”

PCORI has also let 18 contracts worth $44 million for research about rare diseases. Among them is $2.6 million awarded to the Cincinnati Children’s Hospital Medical Center to study which type of diet to give to children with a condition called eosinophilic esophagitis.

Overall, PCORI can point to $279 million in contracts for the “assessment of prevention, diagnosis and treatment options. Still, that’s less than a third of total spending and less than one fifth of the total number of contracts issued thus far.

A Boot Camp To Translate Medical Terms

The Center for Public Integrity review found that tens of millions of dollars in other contracts are for studying research methods, or are looking into how to get findings noticed, or are difficult to decipher.

PCORI has directed $64.5 million toward 66 contracts whose purpose is to improve methods for conducting research. In June 2012, PCORI funded more than $30 million in 50 “pilot projects” mostly at universities and medical schools. One was a boot camp at the University of Colorado Denver for $675,000 over 30 months.

The authors said they would “activate personal relationships to bring together community members, clinical practices, patients, providers and researchers to identify the important health issues they each face.” After several meetings, the group would “focus these topics into a priority list for further work.” The goal was to translate medical terms to make them easier for patients to grasp.

Some projects toss around esoteric phrases such as “how to capture stakeholder inputs” or “quality metrics to inform integrated care” that aren’t likely to be clear to the average reader.

Consider the $674,452 project funded at the Palo Alto Medical Foundation Research Institute with the catchy title: “Creating a Zone of Openness to Increase Patient-Centered Care.” The 2012 project explored how medical professionals can foster a climate where patients don’t fear being labeled as difficult “for asserting themselves in clinical decision making.” PCORI officials said the research produced important insights, though they concede they need to make their work sound more compelling.

Jean R. Slutsky, PCORI’s chief engagement and dissemination officer, agreed that heavy use of jargon can be a turnoff, especially for patients the institute is trying to reach.

“We are in the process of putting in lay language to communicate with people who are not scientists,” Slutsky said. “We wish we could change this.”

The 36 “engagement awards” to health care organizations, universities and groups cost more than $8 million. That includes $500,000 to AHIP, the insurance industry trade group, to “build and maintain support from health plan leaders” and to “identify important gaps in availability of health insurance administrative data,” according to summaries of the contracts. AHIP spokeswoman Clare Krusing said sharing health plan data is “complex” and “requires a significant amount of review and expertise from the industry.”

PCORI also has provided “meeting and conference support” to medical organizations that totaled more than $1.8 million in 17 grants.

The Society for Academic Emergency Medicine, for instance, received $50,000 in 2015 to develop and publish “a consensus research agenda.” The year before, the Society of General Internal Medicine, whose 3,000 physician members teach at medical schools, received a $249,960 grant for a two-year program “to help us develop a better understanding of the attitudes and knowledge of our membership … and how they may best be engaged to participate.”

PCORI director Selby said these awards are necessary to get through to busy professionals who “may not answer our phone calls.” Selby said: “Our job is to build relationships and to get on their radar,” adding, “This helps us get their attention.”

Yes, But What Do Patients Want?

Though it may be largely unknown to the public, PCORI has won support from a wide range of parties.

Former California Congressman Tony Coelho says the data created by PCORI should ultimately be useful for patients when they make health care decisions.

Former California Congressman Tony Coelho says the data created by PCORI should ultimately be useful for patients when they make health care decisions. Chip Somodevilla/Getty Images hide caption

itoggle caption Chip Somodevilla/Getty Images

Tony Coelho, a former Democratic congressman from California who chairs the Partnership to Improve Patient Care, said the institute takes pains to “get first-hand views on what questions really matter to patients.”

Coelho’s group, a coalition of patient advocates, drug manufacturers and medical groups, applauds PCORI for conducting research “in a manner that is patient-centered and ultimately useful at the point of health care decision making.”

Other experts said that putting patients first is itself a worthy research legacy.

PCORI “is filling a really important void,” said Justin W. Timbie, a Rand Corporation policy researcher. “This is really practical research to help people make decisions [about their health]. I think that’s a lot of bang for the buck.”

This piece comes from the Center for Public Integrity, a nonpartisan, nonprofit investigative news organization. To follow CPI’s investigations into Medicare and Medicare Advantage waste, fraud and abuse, go here. Or follow the organization on Twitter: @Publici.

This entry passed through the Full-Text RSS service – if this is your content and you’re reading it on someone else’s site, please read the FAQ at fivefilters.org/content-only/faq.php#publishers.