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What Affordable Care Act Rollback Means For The Health Care Insurance Industry

Health insurance providers have already raised rates in anticipation of reduced government subsidies. NPR’s Michel Martin talks with health policy analyst Robert Laszewski about how the industry might fare.

MICHEL MARTIN, HOST:

We have one more conversation about healthcare. As we just heard, health insurers are trying to figure out what to do without the reimbursement from the government that the Trump administration says will no longer be paid. The question is, will insurers raise their rates or withdraw from the health exchanges created by the Affordable Care Act? For perspective on this, we called Robert Laszewski. He’s a former insurance executive who’s now a health policy consultant. Mr. Laszewski, thanks so much for speaking with us.

ROBERT LASZEWSKI: You’re welcome.

MARTIN: So based on your knowledge of the industry, what are the options that insurers are considering to deal with the lack of these subsidies?

LASZEWSKI: Well, actually, many of them have already raised the rates. They had to have their 2018 rates into the regulators and approved a couple of weeks ago, so most of them have already made some pretty significant rate increases – between 10 and 20 percent – assuming that Trump would cut off the subsidies. A few insurance companies and a few regulators did not do that. They did not allow for it. I think now what’s going to have to happen is these insurance companies today are having some pretty tense conversations with the regulators, saying, if you want us to stay in the market, you’re going to have to let us raise those rates 10 to 20 percent.

MARTIN: Is it possible or likely that some of these companies will just pull out? And can they do that even if they’ve already offered plans for the coming year?

LASZEWSKI: It is still possible for insurance companies to pull out. The contracts they have with the government have an out clause if there’s a major material change. So it’s possible. More likely, I think you’re going to see some regulators make some accommodations and allow for the higher rates to happen pretty quickly. I don’t think we’re going to see many, if any, pull-outs. Now we’ve got dozens of insurance companies involved, so I wouldn’t be shocked to see one do it. But generally speaking. The carriers have known this is coming, they know what kind of environment they’re in, and they’re pretty much pricing for it.

MARTIN: Let’s say for the sake of argument that companies do pull out of the exchange. Is there a tipping point at which the Affordable Care Act no longer effectively exists?

LASZEWSKI: Well, that’s possible if you had substantial carriers pull out in some of the larger markets – with any markets of any consequence with no insurance company. But I think we’re actually entering a strange period here. The insurance companies are figuring out how to make money in the Obamacare insurance exchanges. They just raise the rates. So the carriers – the insurance companies – are backing into a survivable market here. Run the rates up as high as you have to. They can at least break even. It becomes sustainable for the insurance company, but it’s a terrible situation for people who don’t get subsidies and have to pay the full cost.

MARTIN: So finally, before we let you go, are there other options on the table? Could Congress theoretically, anyway, pass some sort of a patch to fund these cost savings reimbursement?

LASZEWSKI: Absolutely. The Congress could pass legislation not only to fix the cost-sharing subsidy problem that Trump created but to fix a lot of other problems. Obamacare has some very serious architectural problems when it comes to the insurance exchanges. It needs an overhaul minimally. So the Congress could fix it, but here’s the problem – Trump would veto it.

So I think we’re stuck in a really bizarre period right now, one where people getting subsidies are going to be OK. Even though we cut the funding to the insurance companies, they’re going to get their subsidies to help pay for it. But 43 percent of those in the individual market didn’t get a subsidy last year because they made too much money, and those people are really getting hurt.

MARTIN: That’s Robert Laszewski. He’s a health policy consultant, a former insurance executive. He was kind enough to speak to us by phone just outside Washington, D.C. Mr. Laszewski, thanks so much for speaking with us.

LASZEWSKI: You’re welcome.

Copyright © 2017 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

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Week In Politics: Trump Announces End To Obamacare Subsidy Payments

Ana Kasparian, host for The Young Turks network, and John Phillips of The Orange County Register, CNN, and KABC discuss the end of cost-sharing reduction subsidies by the government.

KELLY MCEVERS, HOST:

To talk more about the politics of health care, I am joined here in the studio by Ana Kasparian. She’s co-host and producer for the online news network The Young Turks. Welcome.

ANA KASPARIAN: Thank you for having me.

MCEVERS: And John Phillips, political commentator for CNN and a columnist for the Orange County Register, welcome to you.

JOHN PHILLIPS: Thank you so much.

MCEVERS: So as we just heard, President Trump says one by one, his administration is dismantling the Affordable Care Act. But there is lots of polling to suggest that people do not want these insurance markets to fall apart. Some senators led by Republican Lamar Alexander of Tennessee had been working on a bipartisan bill to stabilize the markets, and now this. John, I’ll start with you. I mean, how is this move going to affect the president’s relationship with members of his own party?

PHILLIPS: Well, I think if you’re talking about voters who you first mentioned, people first vote with their feet before they vote at the ballot box. And one of the things the critics have been saying is if you allow people to leave the health exchange, if you allow people to leave Obamacare, anyone who can leave will leave. Well, what does that tell you about the product? I mean, that’s like the same argument that the teachers unions make about school vouchers and charter schools.

So I think that him making this move – and look; I’m a process guy, and I’d rather have Congress do it. But John McCain’s feelings are hurt, and he doesn’t have the votes right now. So he’s got to wait until Joe Manchin switches teams or Bob Menendez goes to prison. This was the best of a lot of bad options that he had, and kicking it to Congress is the long-term solution that I think is best for the Republicans and for Donald Trump.

MCEVERS: But is it going to work? I mean, Ana, these are – you know, as we just heard in Tam’s piece, President Trump needs votes on other things – the Iran deal, immigration, a tax bill among other things. Is, you know – are they going to be able to handle this stuff?

KASPARIAN: Well, whether or not Congress is going to be able to handle it is an interesting question. But what I do disagree with is the notion that Trump will allow Congress to do what it needs to do. I mean, he has already shown, and he is continuing to threaten Congress with unilateral action if they don’t give him exactly what he wants, which I think is fascinating given the fact that someone like Obama was criticized pretty aggressively by Republicans for signing executive orders and doing things unilaterally. So I do agree in our system of government and the need for checks and balances, especially when you have an individual which in my belief is as unhinged as Trump and doesn’t really understand the ramifications of these issues.

And just to quickly, you know, respond to your answer about voters, you know, when you do look at polling and you refer to the Affordable Care Act as the Affordable Care Act rather than Obamacare, even Republican voters like it, and it’s because it has provided certain protections for them that they don’t want to lose.

And I will not sit here and say that the Affordable Care Act is perfect. It was deeply flawed, and it did not have the proper cost controls in place to prevent higher premiums. But what Trump just did will increase premiums so much that, you know, Americans are really going to suffer. And I’m concerned about that.

MCEVERS: I mean, Republicans ran on promises to repeal Obamacare, and they didn’t have the votes to do it, as we know, in Congress. And now the president is acting on his own to hollow it out. Will this hurt Republican members of Congress in re-election races in 2018, John?

PHILLIPS: In the long term, getting a bill done is more important for Republicans in Congress than it is for Donald Trump. Donald Trump’s signature issue in the campaign was immigration. It was building the wall. If he doesn’t build the wall, his re-election chances have, you know, gone down to zero.

Republicans have won – what? – three different national elections based on repealing and replacing Obamacare. If Trump doesn’t get it done, it’s like going to Red Lobster and saying the chicken stinks. No one goes to Red Lobster for the chicken. They go there for the lobster. He’s selling immigration. They’re selling health care. If they don’t get it done, that’s a big blow to the Republicans in Congress.

MCEVERS: It sounds like he knows that, right?

PHILLIPS: Yes.

MCEVERS: (Laughter) I want to talk about the Democrats, too. I mean, this morning the president tweeted that now the Democrats have to call him to fix health care. I mean, is that true? Do they need to come to him at this point, Ana?

KASPARIAN: I don’t think they need to come to him. I think that that is a mistake because one thing that Donald Trump claims is that he’s a good negotiator. He has no interest in negotiations. He has all the interest in coercing or being coercive and threatening and bullying people into giving him what he wants. That is not a good negotiator.

What I would argue is that Democrats need to focus on their messaging because they are devastatingly weak in explaining and expressing how disastrous this will be for the American people. I mean, Republicans will latch onto something, and they will not let it go – Hillary Clinton with Benghazi. I mean, we’re still hearing about Benghazi. But Democrats – they – they’re soft, and they need to toughen up. And they need to really work on their messaging.

PHILLIPS: And for Democrats, it’s weird because Hillary Clinton won the nomination. She won the election over Bernie Sanders. But if you look Democratic voters are on issues like health care, Democratic voters are closer to Bernie Sanders…

KASPARIAN: Absolutely.

PHILLIPS: …Than they are to Hillary Clinton. So with all the problems that you see right now in Congress with Republicans, Democrats are facing the same issue. You saw Bernie Sanders standing up on stage with any number of Democrats who could be candidates for president next time around who signed on for single payer. Well, what is Nancy Pelosi going to do? What is Chuck Schumer going to do? What’s going to happen in Democratic primaries in the midterm elections, and what does that mean for compromise? It means compromise is probably not an option between the parties.

MCEVERS: Right. That leads to my next question. I mean, do you – either of you see any chance of some bipartisan solution to health care right now?

KASPARIAN: Quite honestly, I don’t because what I’m seeing is, you know, two or three senators – Republican senators that seem reasonable, and they’re looking out for the best interest of their constituents – Lisa Murkowski, Susan Collins and John McCain. But at the same time, you have some like Rand Paul that think, no, no, I want to get rid of everything. I don’t want to help Americans out at all.

And so there’s a disagreement within the Republican Party. There’s a lot of disagreement among Democrats. I feel like, you know, we need to figure out what’s going on in these two teams and kind of come to some sort of agreement before this negotiation could even happen.

MCEVERS: Likely?

PHILLIPS: I don’t think there’s any negotiation that can be done with the leadership with the Democratic Party. I think you could potentially pick off one or two votes. He could get a Joe Manchin to sign on. He could get a Heidi Heitkamp to sign on. And that way, you can lose a John McCain. You can lose a Susan Collins. But if you largely keep that Republican caucus together, one or two Democrats could put you over the top.

MCEVERS: Some people say that this fight could go to the states. Attorneys general in, you know, majority Democratic states here in California and New York have said they will sue the Trump administration to continue making these subsidy payments. Does that seem like a viable option going forward in the short term for the ACA?

KASPARIAN: I think it’s a viable option. I would like them to be more aggressive. Lawmakers in California squashed any and all efforts to provide universal health care to Californians, something that polls as very popular. And it kind of shows you where their heart is. And I just don’t agree with it.

MCEVERS: Ana Kasparian of The Young Turks and John Phillips, commentator for CNN and columnist for the Orange County Register, thanks to both of you.

PHILLIPS: Thank you.

KASPARIAN: Thank you.

Copyright © 2017 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

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How Trump's Executive Order Could Affect The Health Insurance System

NPR’S Robert Siegel talks with Sabrina Corlette, a professor at Georgetown University and expert on the health insurance market, about President Trump’s executive order on health associations and the impact they will have on the health care system.

ROBERT SIEGEL, HOST:

Now we turn to Sabrina Corlette. She used to be a staffer with the Senate Health Committee. She now studies the health insurance industry at Georgetown University. Welcome to the program.

SABRINA CORLETTE: Thank you.

SIEGEL: One of the things this executive order does is allow small businesses to band together with an association so they can get more coverage and cheaper coverage for their employees. What’s the problem with that?

CORLETTE: Well, there’s a couple of problems. One is that the Affordable Care Act is very clear that if you have a older or sicker group of employees, insurance companies can’t discriminate against you. This would turn that on its head. And if you came into the association with, say, somebody who had cancer or women of childbearing age, you could find that your premiums would be much, much higher than employers with healthier workers.

SIEGEL: But the difference would be that the associations would not be regulated, would not be covered by the requirements of the Affordable Care Act.

CORLETTE: That’s right. That’s right. The associations would be exempt from a lot of the insurance protections that are in the ACA.

SIEGEL: But as I understand it, health insurance policies that we get from our employers are also not directly covered in that sense. If everybody got a job at a company that gave them insurance, would that pose the same problem?

CORLETTE: Well, I think it’s important to distinguish between the kind of insurance you get at a large employer and what you might get through these association health plans. Remember that a large employer like NPR has both healthy and not-so-healthy employees, but the reason you have insurance is not ’cause you need insurance. It’s because you work at NPR.

Association health plans are different. The reason people are coming to them is because they need insurance. And so insurance companies are trying to protect themselves from people who need to use a lot of health care services.

SIEGEL: So the members of the association are individuals, or they’re groups of employees at companies who – what’s the association an association of?

CORLETTE: Well, here it sounds like what this executive order is directed at is associations that are made up of small employers. So you could imagine the Bar Association might have a group of law firms signing up for health insurance or the gym owners association. So there are multiple reasons why you could create an association, but essentially people would be using it to purchase insurance for their employees.

SIEGEL: But I mean, I’m sure you can appreciate what sounds like the appeal of this, which is that 20 law firms joining together to buy health insurance sounds like it’d get a better deal than each law firm individually trying to do that.

CORLETTE: Well, you’ll get a better deal if you have young, healthy workers. If you have older, sicker workers, you will be charged a higher premium to reflect the higher use of health care services.

SIEGEL: As we’ve mentioned, 150 million of us I think get health insurance through our employer. Are we affected by this executive order?

CORLETTE: Well, it’s hard to say. If these association health plans do become more widespread and are – become exempt from state laws, we could be, particularly if we work for a small employer. If, for example, we have a problem with our plan and we’re in one of these associations, we may not be able to get help from our state insurance department – for example, if claims aren’t being paid.

SIEGEL: What do you say to the argument that proposal like the one that’s made today with these new rules shouldn’t be compared with the ideal but rather with the real situation that many people face, which is the only policies they can afford and, under the Affordable Care Act, have such high deductibles that they feel they have no access to the real coverage? There’s a serious problem out there.

CORLETTE: There’s no question that the Affordable Care Act could use some policy fixes, but these are not the policy fixes that we need. Rather than fixing the problems that do exist with the Affordable Care Act marketplaces and shoring up the coverage, this effectively undermines those marketplaces and makes the coverage that is available to people with pre-existing conditions much less stable and secure.

SIEGEL: Sabrina Corlette studies health insurance reform issues at Georgetown University. Thanks for talking with us.

CORLETTE: Thank you.

(SOUNDBITE OF RJD2’S “MONSTERS UNDER MY BED”)

Copyright © 2017 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

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Health Conditions That Increase Stroke Risk Rise Across All Ages, Races

Roughly 80 percent of all first strokes arise from risks that people can influence with behavioral changes, doctors say — risks like high blood pressure, smoking and drug abuse.

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For years, doctors have been warning us that high cholesterol, cigarette smoking, illegal drug use and diabetes increase our chances of having a potentially fatal stroke.

And yet, most of the stroke patients showing up at hospitals from 2004 to 2014 had one or more of these risk factors. And the numbers of people at risk in this way tended to grow among all age groups and ethnicities in that time period.

That’s according to an analysis of the charts of more than 900,000 people admitted to U.S. hospitals for stroke within that decade. The study was published Wednesday in the journal Neurology.

“An estimated 80 percent of all first strokes are due to risk factors that can be changed — such as high blood pressure — and many efforts have been made to prevent, screen for and treat these risk factors,” says neurologist and study author Dr. Fadar Oliver Otite of the University of Miami Miller School of Medicine. “Yet we saw a widespread increase in the number of stroke patients with one or more risk factors.”

Most surprising, researchers say, was the high rate of Hispanic stroke patients who also had diabetes — about 50 percent— and African-American stroke patients, 44 percent of whom also had diabetes.

“Those rates are really very alarming” for a variety of complex reasons, says Dr. Seemant Chaturvedi, who also worked on the study and is a professor of clinical neurology at the Miller School of Medicine. Poor diet, less access to health care, lack of exercise and other factors all can contribute to risk, he says.

“Those are populations that need to be looked at,” Chaturvedi adds.

But not all of the risk factors increased equally, or can be attributed to the same causes, he notes. Diabetes increases many of the other risk factors, and this country is still in the midst of a diabetes epidemic, although recent studies suggest it may have reached a plateau.

Other risk factors may simply appear to be increasing because doctors have become more tuned in to checking for them.

For example, stroke patients with dislipidemia (a fancy way of saying an imbalance of fat and other substances in the blood) nearly doubled during that decade, although that is probably because doctors are testing for the condition and treating it more often. High cholesterol has become an increasingly important factor in stroke risk, Chaturvedi notes.

Given the demographics of the opioid epidemic the U.S. is struggling with, it’s probably not too surprising that stroke risks are rising among younger people. The prevalence of drug abuse among stroke patients doubled from 1.4 percent in 2004 to 2.8 percent by 2014, the study shows.

It’s really important that younger and middle-aged people understand that “these behaviors do put them at risk” for stroke, and that stroke is no longer just a disease for older people, Chaturvedi says.

The findings add to a growing list of recent studies showing stroke is an increasing problem among young to middle-aged adults.

The study also found that the prevalence of diabetes across stroke patients of all ages and ethnicities increased by 22 percent — from 31 percent of patients in 2004 to 38 percent in 2014. And the prevalence of high blood pressure increased by 15 percent — from 73 percent of patients at the beginning of the study period to 84 percent by the end.

According to the American Heart Association, stroke is the second-most-common cause of death from cardiovascular disease, although rates of stroke deaths decreased between 2004 and 2014 by almost 29 percent. However, if stroke risk factors are increasing, that’s a trend to watch.

Chaturvedi says the authors would next like to study data coming in from 2011 to 2016 to see if the risk factor rates change.

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California Governor Signs Law To Make Drug Pricing More Transparent

The new law will require pharmaceutical companies to notify the state and health insurers if they plan to raise the price of a medication by 16 percent or more over two years.

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California Gov. Jerry Brown defied the drug industry Monday, signing the most comprehensive drug price transparency bill in the nation that will force drug makers to publicly justify big price hikes.

“Californians have a right to know why their medical costs are out of control, especially when pharmaceutical profits are soaring,” Brown says. “This measure is a step at bringing transparency, truth, exposure to a very important part of our lives, that is the cost of prescription drugs.”

Brown says the bill was part of a broader push toward correcting growing economic inequities in the U.S., and called on the pharmaceutical leaders “at the top” to consider doing business in a way that helps those with a lot less.

“The rich are getting richer. The powerful are getting more powerful,” Brown says. “So this is just another example where the powerful get more power and take more… We’ve got to point to the evils, and there’s a real evil when so many people are suffering so much from rising drug profits.”

The drug lobby fiercely opposed the bill, SB 17, hiring 45 firms to try to defeat it and spending $16.8 million on lobbying against the full range of drug legislation.

The new law is intended to shine light on how drugs are priced, requiring pharmaceutical companies to notify the state and health insurers anytime they plan to raise the price of a medication by 16 percent or more over two years. And, companies will have to provide justification for the increase.

The legislation was supported by a diverse coalition, including labor and consumer groups, hospital groups and even health insurers, who agreed to share some of their own data under the bill. They will have to report what percentage of premium increases are due to drug prices.

“Health coverage premiums directly reflect the cost of providing medical care, and prescription drug prices have become one of the main factors driving up these costs,” says Charles Bacchi, CEO of the California Association of Health Plans. “SB 17 will help us understand why, so we can prepare for and address the unrelenting price increases.”

Drug companies criticized the governor’s move, saying the new law focuses too narrowly on just one part of the drug distribution chain and won’t help consumers afford their medicine.

“It is disappointing that Gov. Brown has decided to sign a bill that is based on misleading rhetoric instead of what’s in the best interest of patients,” says Priscilla VanderVeer, spokesperson for the drug industry association, the Pharmaceutical Research and Manufacturers of America (PhRMA). “There is no evidence that SB 17 will lower drug costs for patients because it does not shed light on the large rebates and discounts insurance companies and pharmacy benefit managers are receiving that are not always being passed on to patients.”

This law is part of a long game toward developing a stronger web of drug laws across the country, says Gerard Anderson, a health policy professor at Johns Hopkins Bloomberg School of Public Health who tracks drug legislation in the states. In that respect, it makes sense to start with the source of the drug prices: the drug makers themselves, he says.

“The manufacturers get most of the money — probably about three quarters or more of the money that you pay for a drug — and they’re the ones that set the price initially,” he says. “So they are not the only piece of the drug supply chain, but they are the key piece to this.”

California’s law will not stand alone, says state Sen. Ed Hernandez (D-West Covina), the bill’s author and an optometrist. “A lot of other states have the same concerns we have, and you’re going to see other states try to emulate what we did.”

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Trump Rescinds Obamacare Birth Control Mandate

David Greene talks to Planned Parenthood President Cecile Richards, who has denounced the Trump administration’s rollback of the Affordable Care mandate to cover birth control.

DAVID GREENE, HOST:

And the Trump administration is making it easier for employers to opt out of covering birth control in their health insurance plans. The coverage was guaranteed under the Obama administration with the exception of employees at some religious organizations. Attorney General Jeff Sessions said the Trump administration is leading by example on religious liberty. But this was a troubling development for Planned Parenthood Federation of America. And its president Cecile Richards is on the line. Good morning.

CECILE RICHARDS: Good morning.

GREENE: Let me just talk through the impact of this. The Trump administration said Friday that 99 percent of women will still have the same access to birth control. And they said less affluent women can still get free or subsidized contraceptives through Medicaid and other programs. I mean, do you agree with those numbers. Or what’s your estimate for the number of women who might be affected by this?

RICHARDS: Well, David, I mean, it’s incredibly ironic that they would now refer to programs that they’ve been trying to end through Trumpcare for the last, you know, several months – access to, you know, Planned Parenthood, access to Medicaid and access to the Family Planning Program. And the basic fact here is that millions and millions of women – now about 62 million women – have access to birth control and their insurance plan at no cost. And it’s led to amazing successes. Women have saved a lot of money. The estimates are 1.4 billion dollars alone the first year. We’ve reduced unintended pregnancy – the lowest rate of teen pregnancy in the history of the United States. And women are getting better birth control. All of these are good things. They allow women to plan their families and stay in the workforce. And this decision is basically now going to turn the reins over to your boss to decide whether or not women can get birth control. And that’s just not going to be good for women.

GREENE: But do you expect a lot of bosses to actually change that much? I mean, the Trump ministration is saying that this, in terms of numbers, is probably going to have very little impact. I mean, do you accept that?

RICHARDS: Well, one, I don’t think they – they don’t – certainly don’t know. And in fact, I mean, all of the things that they have put out are messages that send – that basically say birth control is dangerous for women, which is really crazy. More than 90 percent of women in this country use birth control for a whole host of reasons. I think the problem is, you know, we fought so hard under Obamacare to get women equal access to health care, including family planning. Because until that bill passed, many, many employers did not provide birth control for women. And again, women are now half the workforce in this country. And a big reason that we’ve been able to participate and work and go to school is because we’ve been able to plan our families. And that’s really what’s at risk here. And frankly, the Trump administration has been on a war against birth control and women’s health from day one.

GREENE: You feel like they’re sending a message that birth control can be dangerous because it seems the message they’re sending to some is that this is a matter of religious liberty and employers not being forced to, you know, sacrifice their religious beliefs.

RICHARDS: Well, I mean, that’s not – this is not what that rule says. The rule basically says if any employee or objects to birth control, they don’t have to provide it. And look. I think the problem is – you look who’s been in charge of Health and Human Services with the Trump administration. It has been filled with key positions, folks who have been against birth control from the very beginning. In fact, ironically, the woman who was appointed to run the National Family Planning Program has said herself she doesn’t believe in birth control. This is just the beginning. And I think many of us expect this will not end here. There are rumors of all kinds of other ways in which they’re going to restrict birth control access. And I just don’t understand it. It’s good for women’s health. It’s good for the economy. And this kind of attack is something that you would have expected in the 1930s, not in 2017.

GREENE: And we just have a few seconds left. But I mean, the Obama administration issued this mandate to cover birth control. Religious organizations filed suit. The Supreme Court ruled that the government can’t force private companies, nonprofits to pay for birth control against their religious beliefs. Are you concerned that the law is on the administration’s side here?

RICHARDS: Well, I mean, obviously we’ll be challenging it along with the ACLU, and that’s really important. But there were all kinds of accommodations made for a religious employer. The danger is you have things now like universities that provide birth control for women that are students. You have all kinds of organizations who may have their own political or religious views. Why should they be able to impose that on American women? It’s simply not right. And we’ll be fighting it every step of the way and ensuring that women continue to get birth control at Planned Parenthood.

GREENE: Cecile Richards is the president of Planned Parenthood Federation of America. We appreciate your time this morning. Thanks a lot.

RICHARDS: Good to see you, David. Thanks.

Copyright © 2017 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

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The Painful Side Of Positive Health Care Marketing

Lori Wallace says it’s frustrating to constantly hear messages in ads for hospitals that imply her cancer would go away if she were just more positive and tried harder.

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Lori Wallace is sitting on a couch with her 11-year-old son and his new pet snake. It’s burrowing under his armpit, as if it were afraid. But Wallace says it’s not.

“If he was terrified, he would be balled up,” Wallace says. “See, that is why they are called ball pythons. When they are scared, they turn into a little ball.”

Wallace is dying of breast cancer, but a stranger couldn’t tell. She has a pixie haircut and a warm tan. She is vibrant and chatty and looks you right in the eyes when she talks. Wallace doesn’t shy away from what is happening to her. She shows me her cracked feet. They bleed from the chemotherapy pills she takes.

As Wallace’s cancer has progressed over the past seven years, she has become more critical of what she sees as excessive positivity in health care marketing. It’s everywhere: TV ads, radio commercials, billboards. The advertisements feature happy, healed patients and tell stories of miraculous recoveries. The messages are optimistic, about people beating steep odds. Wallace says the ads spread false hope, and for a patient like her, they are a slap in the face.

A couple of decades ago, hospitals and clinics did not advertise much to customers. Now, they are spending more and more each year on marketing, according to university professors who study advertising, and are keeping track.

Wallace, who lives in San Jose, Calif., says she used to be a hopeful person, someone who believed you could fight through any misfortune. Then she was diagnosed with breast cancer. Wallace was 39. Her son was 4. She couldn’t believe it.

The chemotherapy treatment makes her brain foggy, Wallace says. She is now in her fifth round. Her cancer is Stage 4 and has spread throughout her body. It’s going to kill her, she tells me.

“The median survival of a woman with metastatic breast cancer is 33 months,” Wallace says. “My 33 months would have been Dec. 6 last year. So I am on bonus time right now.”

Wallace pulls up an ad on her computer from UCSF Benioff Children’s Hospital, in San Francisco. An announcer intones, “Amid a thousand maybes and a million nos, we believe in the profound and unstoppable power of yes.”

There is a similar kind of optimism at the heart of a lot of the ad campaigns by health care providers — with slogans like “Thrive” and “Smile Out.” Wallace says the subtext of the ads is that people like her — who get sick and will die — maybe just aren’t being positive enough.

“I didn’t say ‘yes’ to cancer,” Wallace says. “I have tried everything I can. I have done clinical trials. I have said ‘yes’ to every possible treatment. And the cancer doesn’t care.”

Karuna Jaggar is executive director of Breast Cancer Action. She says health care providers are following in the footsteps of other companies.

“It’s the basics of marketing,” Jaggar says. “In order to sell products or services, you have to sell hope.”

She says health care advertisers are adopting the kind of optimistic messaging that really began in force with the pink ribbons and rosy depictions of breast cancer.

“Thirty years ago, breast cancer was the poster child of positive thinking,” Jaggar says. ” ‘Look good, feel better, don’t let breast cancer get you down. Fight strong and be cheerful while you do it.’ “

Back then, health care providers marketed to physicians more than consumers. The ads were drier, more factual, says Guy David, an economist and professor of health care management at the University of Pennsylvania.

“When the ads are more consumer-facing as opposed to professional-facing, the content tends to be more passionate,” David says.

The hospital ads Wallace is objecting to tug at emotions, just like other advertising that is trying to win over consumers. With increasing health care costs and choices, patients are shopping around for care. Tim Calkins is a professor of marketing at Northwestern University. These days, he says, hospitals have to sell themselves.

“Right now in health care, if you don’t have some leverage, if you don’t have a brand people care about, if you don’t have a reason for people to pick you over competitors — well, then you are in a really tough spot,” Calkins says.

Hospitals are spending more than ever on advertising, he says, and, as with other products, that advertising is filled with lots of promises. He says you don’t see the same promises in the pharmaceutical industry. Their ads are regulated by the Food and Drug Administration, which is why they have to list all those side effects and show scientific backing for their claims.

“Hospitals aren’t held to any of those [FDA] standards at all,” Calkins says. “So a hospital can go out and say, ‘This is where miracles happen. And here’s Joe. Joe was about to die. And now Joe is going to live forever.’ “

Lori Wallace is not going to live forever. Before cancer, she says, she would have been attracted to the messages of hope. But now, she says, she needs realism — acceptance of both the world’s beauty and its harshness. She wrote an essay about that for the women in her breast cancer support group.

The essay is titled “F*** Silver Linings and Pink Ribbons.” Wallace reads me the whole piece from start to finish. We are sitting at her kitchen table. Her son is nearby with his pet snake.

Toward the middle of the essay, Wallace writes, “My ovaries are gone, and without them my skin is aging at hyperspeed. I have hot flashes and cold flashes. My bones ache. My libido is shot and my vagina is a desert.” The essay is open, funny and unflinching, just like Wallace.

She reads me the final paragraph: “I will try to be thankful for every laugh, hug and kiss, and other things, too. That is, if my chemo-brain allows me to remember.”

“That’s what I wrote,” Wallace says. “That’s what I wrote. Brutal honesty.”


This story is part of NPR’s reporting partnership with KQED and Kaiser Health News.

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Idle Pharmaceutical Factories In Puerto Rico Raise Concerns Of Drug Shortages

NPR’s Robert Siegel talks with reporter Katie Thomas of The New York Times about how Hurricane Maria may cause shortages of essential drugs due to idled factories.

ROBERT SIEGEL, HOST:

When Hurricane Maria crashed into Puerto Rico, it dealt a powerful blow to the pharmaceutical industry. The island is an important exporter of drugs. Pharmaceuticals are a $15 billion business there. And that includes some medicines that are produced only in Puerto Rico, which raises the prospect of shortages here on the mainland. Reporter Katie Thomas wrote about this in The New York Times, and she joins us from Chicago. Welcome to the program.

KATIE THOMAS: Thank you.

SIEGEL: Put the Puerto Rican pharmaceutical industry in some perspective. How does it rank as a drug producer?

THOMAS: Well, it’s one of the top drug producers in the world. Drug companies and device manufacturers started building plants there decades ago thanks to tax breaks and plentiful available – of skilled labor there.

SIEGEL: You wrote this week that there are 80 pharmaceutical factories in Puerto Rico. Do we know how many of them are up and running at this stage?

THOMAS: We don’t. And I should say that those are a mix of factories. They’re pharmaceutical products. They’re also medical device makers and medical supply manufacturers. And we don’t have an exact tally, at least not one that’s being released. But several of the companies have told me that they’re either not back up and running, or they’re just barely starting to get into limited production.

SIEGEL: What kinds of problems are those people experiencing in Puerto Rico? What have they told you about?

THOMAS: Well, there’s been a host of problems. The biggest one is actually just getting employees to come in to work. These residents have lost their homes. They’re still struggling with many of their basic needs.

The second obstacle is electricity. You know, most of these plants are running on diesel generators. And while the companies say that they’re pretty comfortable and – with the fact that those are up and running and they’re working, there’s questions about how long they will last. If this is a long-term problem, and if it goes on for months, you know, will they run out of diesel fuel? Will the generators start breaking down? So that’s also a big concern.

SIEGEL: What are some of the drugs that are produced in Puerto Rico and, for that matter, only produced in Puerto Rico?

THOMAS: So the first thing I’ll say is that companies generally don’t give a list of which drugs and products they make in certain factories. And that’s been a problem for people in the U.S. and around the world in hospitals who are tracking this and anticipating shortages and trying to plan for it.

So we don’t know who makes these products exclusively in Puerto Rico. But some of the biggest drugs that are manufactured there – although they could be manufactured elsewhere as well – include Humira, which is the world’s top-selling drug, Xarelto, which is a blood thinner that prevents strokes. Even Tylenol is made in Puerto Rico.

SIEGEL: As you’ve said, Puerto Rico is also a place where many medical devices are made. What are you hearing about that?

THOMAS: So the device industry is just as concerned as the pharmaceutical industry is. And I heard today that if conditions continue as they are and they don’t measurably improve, they’re worried that there are some products there that could eventually go into shortage as quickly as three to seven weeks from now. One specific example that I was given was catheters for trauma surgery.

SIEGEL: Well, if, say, production of Humira, which is a rheumatoid arthritis drug – if it were interrupted in Puerto Rico, are pharmaceutical companies equipped to shift production to another place? Do we know if they’re that nimble?

THOMAS: So publicly they say that they are. And in their statements to us, they’ve been putting the most positive spin possible on this. They are mindful of their investors, and this is a very delicate situation for them. But we know that the FDA commissioner, Scott Gottlieb, has testified this week that he’s very concerned about potential critical shortages. He said that there are 40 drugs that are made by 10 firms that they’re closely watching. He didn’t list which drugs those were specifically, but it’s something that everyone is keeping a close eye on.

SIEGEL: That’s Katie Thomas, who covers the health care industry for The New York Times. Thanks for talking with us.

THOMAS: Thank you.

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Neanderthal Genes Help Shape How Many Modern Humans Look

An employee of the Natural History Museum in London peeks at a model of a Neanderthal male in his 20s on display for a 2014 exhibition.

Will Oliver /PA Images via Getty Images

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Will Oliver /PA Images via Getty Images

Neanderthals died out some 30,000 years ago, but their genes live on within many of us.

DNA from our shorter, stockier cousins may be influencing skin tone, ease of tanning, hair color and sleeping patterns of those of present-day Europeans, according to a study from the Max Planck Institute for Evolutionary Anthropology published Thursday in the American Journal of Human Genetics.

Scientists estimate that more than a few Homo sapiensran into Neanderthals tens of thousands of years ago in Eurasia. They liked each other well enough to mate, and now Neanderthal DNA is thought to make up between 1 and 3 percent of the genetic code of most people who aren’t indigenous Africans.

African people have very little Neanderthal DNA because their ancestors didn’t make the trip through Eurasia, scientists think.

Computational biologist Michael Dannemann, the lead author on the latest paper looking at the Neanderthal DNA that persists in modern humans, says that he wondered, well, does it do anything?

He and his colleagues looked for associations between Neanderthal DNA and human appearance and behavioral traits. The researchers analyzed information from over 100,000 people in the UK Biobank, a database that contains genetic information and people’s answers to an extensive questionnaire, including questions about physical appearance and behavior.

Dannemann and co-author, Janet Kelso, also at the Max Planck Institute for Evolutionary Anthropology, found genetic material from Neanderthals associated with traits like skin tone, hair color and sleeping patterns.

Interestingly enough, many of the traits have something to do with sun exposure. Dannemann says it’s speculative still, but there may be some logic to it. The paper explains that Neanderthals lived in Eurasia for about 100,000 years before some modern humans arrived, giving them more time to get used to a wider range of daylight and lower UVB levels. According to the paper, skin, hair color, and circadian rhythm — all traits associated in the study with Neanderthal DNA — are linked to light exposure.

But, before making a leap and blaming your Neanderthal genes for your hair color, there’s more to the story.

Dannemann points out that you can look at someone’s genes and have a hard time telling if she’s tall or short — most human traits are determined by multiple genes working together. When it comes to skin tone, he says, several different parts of genetic material impact it, only some of which come from Neanderthals.

“It’s not any single gene that makes a huge difference … It’s not like morning people have one thing and evening people have another,” says anthropologist John Hawks, of the University of Wisconsin–Madison. “It’s many genes. Each of them has some small effect. This study is pointing out that, hey, there’s one of these [genes] that has a small effect coming from Neanderthals.”

Dannemann says they found multiple Neanderthal genes that affected hair and skin tone, some lighter and some darker. He says this suggests that Neanderthals themselves may have had variation in those traits too, meaning, maybe they too had a range of skin and hair tones.

Hawks say that this study reminds us that Neanderthals weren’t so different from us. “My take on this is that it’s showing the ways in which Neanderthal genetics, the genes we inherited from Neanderthals, are part of normal human variation,” he says. “They’re not super weird things that make people different. They’re part of these normal phenotypes.”

He also points out some limitations in the latest work: All the data are from the U.K. Dannemann also says that much of the previous research studied people of European ancestry.

He adds that there’s an increasing number of biobanks and databases like the one in the U.K. that include genetic information along with traits, “I think mining those and learning more about the contribution of Neanderthals to human traits is certainly something that’s still interesting.”

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California Bill Would Compel Drugmakers To Justify Price Hikes

Drug lobbyists and consumer health advocates fill the halls of the state Capitol in September to see how Assembly members vote on a controversial drug price transparency bill.

Tam Ma/Courtesy of Health Access California

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Tam Ma/Courtesy of Health Access California

Insurers, hospitals and health advocates are waiting for Gov. Jerry Brown to deal the drug lobby a rare defeat, by signing legislation that would force pharmaceutical companies to justify big price hikes on drugs in California.

“If it gets signed by this governor, it’s going to send shock waves throughout the country,” said state Sen. Ed Hernandez, a Democrat from West Covina, the bill’s author and an optometrist. “A lot of other states have the same concerns we have, and you’re going to see other states try to emulate what we did.”

The bill would require drug companies to give California 60 days’ notice anytime they plan to raise the price of a drug by 16 percent or more over two years. They would also have to explain why the increases are necessary. In addition, health insurers would have to report what percentage of premium increases are caused by drug spending.

Drugmakers have spent $16.8 million on lobbying since January 2015 to kill an array of drug legislation in California, according to data from the Secretary of State’s Office. The industry has hired 45 lobbyists or firms to fight the price transparency bill alone. Against the backdrop of this opposition campaign, Brown must decide by Oct. 15 whether to sign or veto the bill.

This is the second go-round for this drug price bill. Last summer, the same legislation crashed and burned. Its intended regulations were gutted so extensively that Hernandez decided to pull it. But, he said, two key things happened after that, stetting the stage for a successful second attempt.

First, in August 2016, less than a week after Hernandez pulled the bill, a firestorm of controversy erupted nationally over the price of EpiPens spiking nearly 500 percent. The increase sparked outrage from parents who carry the auto-injectors to save their children from life-threatening allergic reactions.

Momentum grew among federal lawmakers last September to do something. They called for hearings. Several proposed bills aimed to reign in drug prices across the country.

But then, the election of November 2016 disrupted all order of health care business in Washington. After Donald Trump was elected and Republicans took control of Congress, the number one health policy priority became repealing and replacing the Affordable Care Act.

As federal lawmakers focused on dismantling the ACA, Hernandez said he saw another opportunity for state lawmakers to act on drug prices. He reintroduced his bill in early 2017, and this time political support grew quickly, beyond the usual suspects.

“It wasn’t just labor,” he recalls. “It was consumer groups, it was health plans. It was the Chambers of Commerce, it was the hospital association.”

Hernandez is optimistic the governor will sign SB 17 into law. But he knows nothing’s certain. That’s because of what happened on Sept. 11, the day the bill came up for a key vote in the state Assembly — the same place it went down the year before. Hernandez thought he’d secured all the votes he needed, but at the last minute the votes started slipping away.

The bill needed 41 votes to pass the Assembly. During the roll call, the tally stalled around 35. Hernandez said he had plenty of colleagues willing to cast the 42nd vote, but with drug lobbyists swarming the Capitol, no legislators wanted to be the one to cast the deciding vote.

“If the bill fails and you’re stuck out there, then you’re the person that’s attacking the industry,” Hernandez says.

But, the bill crossed the 41-vote threshold and the remaining lawmakers joined in. In the end, the bill passed with 66 votes. All the Democrats and half the Republicans in the state Assembly voted for it.

This was much to the dismay of drug companies, which lobbied hard and issued a blitz of advertising in the last weeks before the vote.

The Pharmaceutical Research and Manufacturers of America, or PhRMA, a drug industry’s trade group, argued that SB 17 was full of “false promises” that wouldn’t help consumers pay for their medicines, and would instead stifle innovation with cumbersome regulatory compliance.

“That takes up a lot of resources and will take up a lot of time,” says Priscilla VanderVeer, deputy vice president of public affairs for PhRMA. “And that could mean pulling resources from research and development and having to put it into the reporting structure.”

Experts say the drug industry doesn’t want a large influential state like California forcing them to share their data.

“When they have to justify in California, de facto, they have to justify it to the other 49 states,” says Gerard Anderson, a health policy professor at Johns Hopkins Bloomberg School of Public Health in Baltimore. “Other states essentially get to piggyback on the good efforts of California, and hopefully, because they might have difficulty justifying the price increases, everybody’s prices around the country will be lower.”

Other states, including Maryland, Vermont, Nevada and New York, have passed similar laws aimed at bringing more transparency to prices and curbing price gouging. But the pharmaceutical industry has fought the hardest in California. If drug companies don’t like the disclosure laws in smaller states, they could decide not to sell their drugs there, Anderson says, but the market in California is just too big to ignore.

“States like Maryland are just not as powerful,” he says. “It just doesn’t have the clout that a state like California has.”

But drugmakers are likely already devising ways to work around the California bill, Anderson warns. They’ve filed lawsuits to try to slow or stop laws from being implemented in other states, or to weaken the rules if and when they go into effect. Policy experts are watching to see what kinds of legal challenges the California law might be vulnerable to, and if it can withstand them.

“We learn from the mistakes of other states,” Anderson says. “Legislation is an iterative process. We have 50 states and hopefully, by some time, we’ll get it right. We’re looking for California to take the lead on this.”

This story is part of a reporting partnership with NPR, KQED and Kaiser Health News.

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