Administration Denies More States' Plans To Customize Insurance Markets

“Obamacare gives states very little flexibility for innovation,” said Iowa Gov. Kim Reynolds, after withdrawing the state’s insurance waiver request.
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Charlie Neibergall/AP
Two states looking for approval to customize their health insurance systems under the Affordable Care Act reversed course after the Trump administration said their applications couldn’t be approved in time for next year.
Iowa withdrew its proposal to the Centers for Medicare & Medicaid Services for a waiver to alter its Affordable Care Act markets. Massachusetts’ proposal was effectively denied by the administration.
Both states sought to use some of the money that would have gone toward subsidies for consumers to instead create reinsurance programs that would protect insurers from major losses. Reinsurance often lowers premiums.
Iowa Gov. Kim Reynolds, a Republican, blamed the rules of the Affordable Care Act for the failure of her state’s proposal. “Obamacare gives states very little flexibility for innovation,” Reynolds said at a news conference.
She gave credit to CMS Administrator Seema Verma for trying to get the waiver approved. “Unfortunately Obamacare is an unworkable law,” Reynolds said. She then urged Congress to pass a law to repeal the Affordable Care Act.
But there’s another way of looking at it. CMS took a “hard line” on its interpretation of the law, said Larry Levitt, a senior vice president at the Kaiser Family Foundation. In a letter to Iowa, the agency said the state’s proposal doesn’t meet the law’s requirements that the alternative plan not add to the federal deficit.
“The question is how sharp the pencils have to be that reviewers in HHS are using” Levitt said. “They could be a little looser in their analysis, but would risk a negative report down the road.”
On the same day that Iowa withdrew its waiver, CMS told Massachusetts that the agency couldn’t approve the state’s waiver in time for open enrollment, which begins Nov. 1. The Affordable Care Act requires all proposals to allow 90 days for public comment. CMS said Massachusetts’ application came too late.
The failures of the two states’ waiver applications follow a trend. Several states have seen their proposals delayed, denied or only partly approved, after administration officials actively encouraged states to apply.
Some critics say the denials are part of an administration effort to force the ACA marketplaces to fail. But Levitt says the agency is on solid legal ground in its strict interpretation of the rules.
Still , there appears to be a switch, given the administration’s previous invitation to states to seek permission for insurance market changes.
Former HHS Secretary Tom Price, who resigned last month, encouraged states to apply for the waivers. Just weeks after he was sworn in in February, Price wrote a letter to every governor in the country urging them to consider creating reinsurance programs and high-risk pools.
HHS “invites states to pursue approval of waiver proposals that include high-risk pool/state-operated reinsurance programs,” the letter says. “The Departments will work with states to review all applications within the timeframe provided … and do our best to work with states to review their applications on an expedited basis.”
Sen. Lamar Alexander, R-Tenn., has sought to relax the waiver process. A bipartisan bill he co-authored with Sen. Patty Murray, D-Wash., would cut the wait time for waivers to be approved and allow states to go ahead with just the approval of the governor rather than a vote from the legislature. The bill would also make it easier for states to get copycat waivers once a program has been approved elsewhere.
Alexander said his bill would fix the problems that doomed the Massachusetts proposal. “Under the Alexander-Murray bill, states can get waivers approved in 45 days if the situation requires urgent action,” he said in a statement. “So Massachusetts could have had its waiver approved by now to help reduce chaos when open enrollment begins next week. This is further evidence that the Affordable Care Act needs changes and that states need our bill to get flexibility from the law.”
The Alexander-Murray bill, which was co-sponsored by 24 senators, has yet to be scheduled for a vote, and President Trump has wavered on whether he supports the plan.
Screening For Diabetes Is Working Better Than Thought

Screening for Type 2 diabetes involves a blood test, and if results are concerning a second test is recommended.
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Undiagnosed diabetes may not be as big of a public health problem as thought.
That’s the takeaway from a study published Monday in the Annals of Internal Medicine that says that some previous efforts have likely overestimated the number of people with undiagnosed diabetes because they relied on a single positive test result.
By contrast, this new measure used the American Diabetes Association’s diagnostic criteria, which recommend that people with one positive fasting blood glucose or A1C test should have a second test to confirm a diagnosis in all but the most severe and obvious cases of Type 2 diabetes. That’s because there’s some inherent variability in the tests and because blood sugar levels fluctuate naturally because of exercise, illness and even the time of day.
If left untreated, Type 2 diabetes can contribute to kidney disease, nerve damage, high blood pressure and stroke.
The Centers for Disease Control and Prevention has applied the less stringent standard to data from the National Health and Nutrition Examination Survey and the U.S. Census to come up with an estimate of 33.3 million people with diabetes in 2015, 7.2 million of whom, or almost 24 percent, were undiagnosed. When researchers in this study applied the stricter clinical diagnostic standard to the same data, they came up with an estimate of 25.5 million people with diabetes, with about 2.8 million, or about 11 percent, of them undiagnosed.
“This is good news,” says Elizabeth Selvin, a professor of epidemiology at the Johns Hopkins Bloomberg School of Public Health and the lead author of the study. “We’re doing a good job with screening and diagnosis.”
But she says that doesn’t mean diabetes isn’t a public health problem, and a significant one at that; the study found the prevalence of diabetes in the U.S. population has risen from 5.5 percent in 1988-1994 to 10.8 percent in 2011-2014. The proportion of undiagnosed cases has dropped from 16.3 percent over the same period, the study found.
The difference in how the estimates are calculated is due to the difference between epidemiological studies, which track patterns and trends across an entire population, and clinical practice, which focuses on individual patients. If you’re just studying historical trends, using a single-test value isn’t such a big deal, says Selvin. “But if we are focused on the burden of undiagnosed diabetes, or the percentage of diabetes that’s undiagnosed, it becomes important,” she says. (A CDC spokeswoman says the agency doesn’t directly comment on studies that aren’t its own.)
The results suggest that public health efforts to promote screening should be focused more closely on the people who are most likely to have undiagnosed diabetes rather than the population as a whole. According to the study, that group includes people who are obese, a racial or ethnic minority, and who don’t have health insurance or get regular health care. While increased age is also a risk factor, the authors noted that there’s an undiagnosed group of overweight and obese younger adults with very high A1C levels who are likely not engaged with the health care system and are falling through the cracks.
“We’re not missing hordes of people, which isn’t to say we aren’t missing some people,” says Anne Peters, an endocrinologist and professor of medicine at the Keck School of Medicine at USC, who wrote an editorial accompanying the study. “We need to continue to reach out to the people who do need help.”
She says more and more programs are focused on preventing diabetes in the first place, focusing on people with risk factors such as obesity and high cholesterol. That can help people avoid the complications of full-blown diabetes, and the label of having a chronic disease, which have long-term psychological effects as well as consequences for buying life insurance and long-term care insurance, Peters says. (And health insurance, if current Affordable Care Act rules about pre-existing conditions should change.)
The study’s authors pointed out some limitations of their work. Among them: the data includes fasting glucose and A1C levels taken only at one point in time, and the results might differ if samples were taken later. And the diagnosis of diabetes depends on study participants’ self-reports, which may not be accurate.
Katherine Hobson is a freelance health and science writer based in Brooklyn, N.Y. She’s on Twitter: @katherinehobson.
Fact Check: President Trump's Comments On ACA's Subsidies
NPR’s Melissa Block talks to Sarah Kliff, Vox senior policy correspondent, to fact check Trump’s claim that subsidies for insurance companies are “bailouts” and “a windfall” for those companies.
MELISSA BLOCK, HOST:
And now we’re going to truth squad some of President Trump’s latest claims about health care – in particular, what he’s said about his decision to stop paying for subsidies under the Affordable Care Act, or Obamacare. The president has called those subsidies bailouts to insurance companies, a windfall. Sarah Kliff joins us for a fact check. She covers health care policy for vox.com. Sarah, good morning.
SARAH KLIFF: Good morning.
BLOCK: And first, why don’t you give us a quick review of just how these cost-sharing reduction subsidies work?
KLIFF: Yeah, so these are subsidies for low-income Americans who buy Obamacare to help make their co-payments and deductibles a little bit lower, to make it a little easier to go to the doctor. And these payments have – will continue to be paid by insurance companies, even though the government will not finance them. It is just coming out of insurance companies’ own pockets at this point.
BLOCK: So basically, if they get reimbursed by the federal government, that is a wash? They’re getting just made up for what they already paid out?
KLIFF: Yeah, so the federal government, you know, makes these payments each month, and insurance companies, in turn, help lower the co-payments and deductibles of their low-income consumers. What President Trump is changing is he’s not going to make those payments, so insurance companies have no one on the back end, you know, sending them the payment to make up for that spending.
BLOCK: OK. So when President Trump calls those payments a gift to insurance companies, are they a gift?
KLIFF: I would disagree that they are a gift. You know, for one thing, they are going not necessarily to the insurance companies. They’re ultimately going to low-income Americans to help them afford their co-payments and afford their deductibles. So, you know, on that level, they don’t seem like a bailout or a gift to the insurance companies. They are required by the law. The law requires these subsidies to be made. So they’re really – you know, I see them as part of the Affordable Care Act and not necessarily a bailout.
BLOCK: The president has also said, Sarah, that the insurance companies, in his words, made a fortune with Obamacare. Is that true? What do the numbers show?
KLIFF: The numbers are a lot more mixed. The best data on this probably comes from the nonprofit Kaiser Family Foundation, which looks at quarterly margins – so how much insurance companies have each quarter leftover after paying out all those claims. In 2014 and 2015, insurance companies had a quarterly margin of just about $20 a person. That’s not a ton of money. It’s gone up as the Obamacare markets have stabilized.
In 2016, it was about $90 a person, so it’s definitely getting better. But the insurance markets – you know, I’ve covered them since they launched. And they’ve really been a very rocky experience for insurance companies financially. They didn’t know how to price at first. People were sicker than they expected. It’s only in the past year that insurance companies have made decent profits there, but I think of them as a mixed bag when it comes to financial performance.
BLOCK: Decent profits, which raises the question – if the insurance companies are losing the federal payments, they began compensating by jacking up the premiums for other people – right? – raising those premiums a lot – in some cases by double digits. Couldn’t the insurance companies just absorb the costs themselves, cut into their profits but not pass it along to consumers?
KLIFF: Yeah, so one of the things I’ve learned as a health care reporter is insurance companies tend to have relatively low profit margins, usually in the 3 to 4 percent range. So there definitely is some space. But one of the things that surprised me a little bit is state regulators often are the ones saying, you have to make those increases. They’re really worried that insurance companies might get hit with a big claim and not have enough money to pay for it.
So they want to make sure that insurance companies are getting enough revenue from their premiums to cover that loss, to make sure they can actually pay out claims. The worst-case scenario for a state regulator is to have an insurance company that just can’t pay its medical bills for patients.
BLOCK: That’s Sarah Kliff. She’s a senior policy correspondent for vox.com and host of the podcast The Impact, which covers health care policy. Sarah, thanks so much for being with us.
KLIFF: Yeah, thanks for having me.
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Many Breast Cancer Patients Receive More Radiation Therapy Than Needed
Annie Dennison said doctors offered just one option after her breast cancer diagnosis last year: six weeks of radiation treatment.
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Courtesy of Annie Dennison
When Annie Dennison was diagnosed with breast cancer last year, she readily followed advice from her medical team, agreeing to harsh treatments in the hope of curing her disease.
“You’re terrified out of your mind” after a diagnosis of cancer, said Dennison, 55, a retired psychologist from Orange County, Calif.
In addition to lumpectomy surgery, chemotherapy and other medications, Dennison underwent six weeks of daily radiation treatments. She agreed to the lengthy radiation regimen, she said, because she had no idea there was another option.
Medical research published in The New England Journal of Medicine in 2010 – six years before her diagnosis — showed that a condensed, three-week radiation course works just as well as the longer regimen. A year later, the American Society for Radiation Oncology, which writes medical guidelines, endorsed the shorter course.
In 2013, the society went further and specifically told doctors not to begin radiation on women like Dennison – who was over 50, with a small cancer that hadn’t spread – without considering the shorter therapy.
“It’s disturbing to think that I might have been overtreated,” Dennison said. “I would like to make sure that other women and men know this is an option.”
Dennison’s oncologist, Dr. David Khan of El Segundo, Calif., notes that there are good reasons to prescribe a longer course of radiation for some women.
Khan, an assistant clinical professor at UCLA, said he was worried that the shorter course of radiation would increase the risk of side effects, given that Dennison had undergone chemotherapy as part of her breast cancer treatment. The latest radiation guidelines, issued in 2011, don’t include patients who’ve had chemo.
Yet many patients still aren’t told about their choices.
An exclusive analysis for Kaiser Health News found that only 48 percent of eligible breast cancer patients today get the shorter regimen, in spite of the additional costs and inconvenience of the longer type.
The analysis was completed by eviCore healthcare, a South Carolina-based medical benefit management company, which analyzed records of 4,225 breast cancer patients treated in the first half of 2017. The women were covered by several commercial insurers. All were over age 50 with early-stage disease.
The data “reflect how hard it is to change practice,” said Dr. Justin Bekelman, associate professor of radiation oncology at the University of Pennsylvania Perelman School of Medicine.
A growing number of patients and doctors are concerned about overtreatment, which is rampant across the health care system, argues Dr. Martin Makary, a professor of surgery and health policy at the Johns Hopkins University School of Medicine in Baltimore.
From duplicate blood tests to unnecessary knee replacements, millions of patients are being bombarded with screenings, scans and treatments that offer little or no benefit, Makary said. Doctors estimated that 21 percent of medical care is unnecessary, according to a survey Makary published in September in the journal PLOS One.
Unnecessary medical services cost the health care system at least $210 billion a year, according to a 2009 report by the National Academy of Medicine, a prestigious science advisory group.
Those procedures aren’t only expensive. Some clearly harm patients.
Overzealous screening for cancers of the thyroid, prostate, breast and skin, for example, leads many older people to undergo treatments unlikely to extend their lives, but which can cause needless pain and suffering, said Dr. Lisa Schwartz, a professor at the Dartmouth Institute for Health Policy and Clinical Practice.
“It’s just bad care,” said Dr. Rebecca Smith-Bindman, a professor at the University of California-San Francisco, whose research has highlighted the risk of radiation from unnecessary CT scans and other imaging.
Outdated Treatments
All eligible breast cancer patients should be offered a shorter course of radiation, said Dr. Benjamin Smith, an associate professor of radiation oncology at the University of Texas MD Anderson Cancer Center.
Studies show that side effects from the shorter regimen are the same or even milder than traditional therapy, Smith said.
“Any center that offers antiquated, longer courses of radiation can offer these shorter courses,” said Smith, lead author of the radiation oncology society’s 2011 guidelines.
Smith, who is currently updating the expert guidelines, recently said there’s no evidence that women who’ve had chemo have more side effects if they undergo the condensed radiation course.
“There is no evidence in the literature to suggest that patients who receive chemotherapy will have a better outcome if they receive six weeks of radiation,” Smith said.
Shorter courses save money, too. Bekelman’s 2014 study in JAMA, the journal of the American Medical Association, found that women given the longer regimen faced nearly $2,900 more in medical costs in the year after diagnosis.
The high rate of overtreatment in breast cancer is “shocking and appalling and unacceptable,” said Karuna Jaggar, executive director of Breast Cancer Action, a San Francisco-based advocacy group. “It’s an example of how our profit-driven health system puts financial interests above women’s health and well-being.”
Just getting to the hospital for treatment imposes a burden on many women, especially those in rural areas, Jaggar said. Rural breast cancer patients are more likely than urban women to choose a mastectomy, which removes the entire breast but typically doesn’t require follow-up radiation.
Too Many Tests
Meg Reeves, 60, believes much of her treatment for early breast cancer in 2009 was unnecessary. Looking back, she feels like she was treated “with a sledgehammer.”

Meg Reeves believes that much of the treatment she received after being diagnosed with breast cancer was unnecessary.
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Courtesy of Meg Reeves
At the time, Reeves lived in a small town in Wisconsin and had to travel 30 miles each way for radiation therapy. After she completed her course of treatment, doctors monitored her for eight years with a battery of annual blood tests and MRIs. The blood tests include screenings for tumor markers, which aim to detect relapses before they cause symptoms.
Yet cancer specialists have repeatedly rejected these kinds of expensive blood tests and advanced imaging since 1997.
For survivors of early breast cancer like Reeves – who had no signs of symptoms of relapse — “these tests aren’t helpful and can be hurtful,” said Dr. Gary Lyman, a breast cancer oncologist and health economist at the Fred Hutchinson Cancer Research Center. Reeves’ primary doctor declined to comment.
In 2012, the American Society for Clinical Oncology, the leading medical group for cancer specialists, explicitly told doctors not to order the tumor marker tests and advanced imaging — such as CT, PET and bone scans — for survivors of early-stage breast cancer.
Yet these tests remain common.
Thirty-seven percent of breast cancer survivors underwent screening for tumor markers between 2007 and 2015, according to a study presented in June at the American Society of Clinical Oncology’s annual meeting and published in the society’s journal online.
Sixteen percent of these survivors underwent advanced imaging. None of these women had symptoms of a recurrence, such as a breast lump, Lyman said.
Beyond wasted time and worry for women, these scans also expose them to unnecessary radiation, a known carcinogen, Lyman said. A National Cancer Institute study estimated that 2 percent of all cancers in the United States could be caused by medical imaging.
Paying The Price
Health care costs for breast cancer patients monitored with advanced imaging averaged nearly $30,000 in the year after treatment ended. That was about $11,600 more than for women who didn’t get such follow-up tests, according to Lyman’s study. Women monitored with biomarkers had nearly $6,000 in additional health costs.
Reeves knows the costs of cancer treatment all too well. Although she had health insurance from her employer, she says she had to sell her house to pay her medical bills. “It was financially devastating,” Reeves said.
“It’s the worst kind of financial toxicity, because you’re incurring costs for something with no benefit,” said Dr. Scott Ramsey, director of the Hutchinson Institute for Cancer Outcomes Research.
Even simple blood tests take a toll, Reeves said.
Repeated needle sticks – including those from unnecessary annual blood tests — have scarred the veins in her left arm, the only one from which nurses can draw blood, she says. Nurses avoid drawing blood on her right side – the side of her breast surgery – because it could injure that arm, increasing the risk of a complication called lymphedema, which causes painful arm swelling.
Reeves also worries about the side effects of so many scans.
After treatment ended, her doctor also screened her with yearly MRI scans using a dye called gadolinium. The Food and Drug Administration is investigating the safety of the dye, which leaves metal deposits in organs such as the brain. After suffering so much during cancer treatment, she doesn’t want any more bad news about her health.
Becoming An Advocate
Kathi Kolb, 63, was staring at 35 radiation treatments over seven weeks in 2008 for her early breast cancer. But she was determined to educate herself and find another option.
“I had bills to pay, no trust fund, no partner with a big salary,” said Kolb, a physical therapist from South Kingstown, R.I. “I needed to get back to work as soon as I could.”
Kathi Kolb, a Rhode Island physical therapist, says she’s frustrated that fewer than half of eligible breast cancer patients receive a shorter course of radiation, even though studies proved it was safe nearly 10 years ago.
Katye Martens Brier for KHN
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Katye Martens Brier for KHN
Kolb asked her doctor about a 2008 Canadian study showing that three weeks of radiation was safe. He agreed to try it.
Even the short course left her with painful skin burns, blisters, swelling, respiratory infections and fatigue. She fears these symptoms would have been twice as bad if she had been subjected to the full seven weeks.
“I saved myself another month of torture and being out of work,” Kolb said. “By the time I started to feel the effects of being zapped [day] after day, I was almost done.”
A growing number of medical and consumers groups are working to educate patients, so they can become their own advocates.
The Choosing Wisely campaign, launched in 2012 by the American Board of Internal Medicine Foundation, aims to raise awareness about overtreatment. The effort, which has been joined by 80 medical societies, has listed 500 practices to avoid. It advises doctors not to provide more radiation for cancer than necessary, and to avoid screening for tumor markers after early breast cancer.
“Patients used to feel like ‘more is better,’ ” said Daniel Wolfson, executive vice president of the ABIM Foundation. “But sometimes less is more. Changing that mindset is a major victory.”
Yet Wolfson acknowledges that simply highlighting the problem isn’t enough.
Many doctors cling to outdated practices out of habit, said Dr. Bruce Landon, a professor of health care policy at Harvard Medical School.
“We tend in the health care system to be pretty slow in abandoning technology,” Landon said. “People say, ‘I’ve always treated it this way throughout my career. Why should I stop now?’ “
Many doctors say they feel pressured to order unnecessary tests out of fear of being sued for doing too little. Others say patients demand the services. In surveys, some doctors blame overtreatment on financial incentives that reward physicians and hospitals for doing more.
Because insurers pay doctors for each radiation session, for example, those who prescribe longer treatments earn more money, said Dr. Peter Bach, director of Memorial Sloan Kettering’s Center for Health Policy and Outcomes in New York.
“Reimbursement drives everything,” said economist Jean Mitchell, a professor at Georgetown University’s McCourt School of Public Policy. “It drives the whole health care system.”
Smith-Bindman, the UC-San Francisco professor, said the causes of overtreatment aren’t so simple. The use of expensive imaging tests also has increased in managed care organizations in which doctors don’t profit from ordering tests, her research shows.
“I don’t think it’s money,” Smith-Bindman said. “I think we have a really poor system in place to make sure people get care that they’re supposed to be getting. The system is broken in a whole lot of places.”
Dennison said she hopes to educate friends and others in the breast cancer community about new treatment options and encourage them to speak up. She said, “Patients need to be able to say, ‘I’d like to do it this way because it’s my body.’ “
KHN’s coverage related to aging & improving care of older adults is supported by The John A. Hartford Foundation.
Kaiser Health News, a nonprofit health newsroom whose stories appear in news outlets nationwide, is an editorially independent part of the Kaiser Family Foundation.
Rural Hospice That Spurns Federal Funds Has Offered Free Care for 40 Years

Helping her father die at home “was the most meaningful experience in my nursing career,” said Rose Crumb. She went on to found Volunteer Hospice of Clallam County in Port Angeles, Wash.
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Dan DeLong for Kaiser Health News
Rose Crumb can’t even count the number of people she’s helped die.
The former nurse, 91, who retired in her mid-80s, considers the question and then shakes her head, her blue eyes sharp above oval spectacles.
“Oh, hundreds,” estimates Crumb, the woman who almost single-handedly brought hospice care to the remote Pacific Northwest city of Port Angeles, Wash., nearly 40 years ago.
But the actual number of deaths she has witnessed is likely far higher — and Crumb’s impact far greater — than even she will admit, say those affiliated with the Volunteer Hospice of Clallam County.
“[Rose] let people know hospice is not all about dying,” said Bette Wood, who manages patient care for VHOCC. “Hospice is about how to live each and every day.”
In a nation where Medicare pays nearly $16 billion a year for hospice care, and nearly two-thirds of providers are for-profit businesses, the tiny volunteer hospice is an outlier.
Since 1978, the hospice founded by Crumb — a mother of 10 and devoted Catholic — has offered free end-of-life care to residents of Port Angeles and the surrounding area. She was the first in the region to care for dying AIDS patients in the early days of the epidemic. Her husband, “Red” Crumb, who died in 1984 of leukemia, was an early patient.
“He died the most perfect death,” Rose Crumb told visitors on a recent afternoon. “He spent time alone with each of our kids. That meant so much to him.”
At the same time, Crumb and her successors have refused to accept federal funding or private insurance, relying instead on a mostly volunteer staff and community donations to keep the hospice going.
That’s rare, said Jon Radulovic, a spokesman for the National Hospice and Palliative Care Organization, NHPCO, a trade group. Most of the nation’s 4,000-plus hospices receive Medicare payments for their services. He estimates there are only a few volunteer hospices like Crumb’s in the U.S.
There was pressure in the early years to “take the money,” as Crumb put it. But she had little use for the regulations that accompanied federal Medicare reimbursement starting in 1982.
“It was our experience that we could operate on a much smaller budget and we could be more flexible in providing services,” Crumb wrote in a 2007 newsletter.
Today, the hospice relies on 10 paid staff, 160 volunteers and an annual budget of less than $400,000 to provide end-of-life care for 300 patients each year, according to federal records.
Patients don’t have to meet Medicare’s criteria of having six months or less to live to be enrolled, though most do. They can keep their own doctors instead of turning over care to a hospice physician. If families need medical equipment, the hospice supplies it for free.
Eve Farrell holds a portrait of her husband, Daniel, in her Port Angeles, Wash., home. He died in January of chronic obstructive pulmonary disease.
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Dan DeLong for Kaiser Health News
“I don’t know how I would have made it without them,” said Eve Farrell, 82, whose husband, Daniel, had chronic obstructive pulmonary disease, or COPD. He died in January at age 80 after four months of hospice care at the couple’s Port Angeles home.
Staffers helped her husband shower when she couldn’t lift him, offered advice about medication and gave her breaks from relentless caregiving.
“We felt like Dan was the only patient they had,” Eve Farrell said.
Crumb was drawn to hospice care in the 1970s, after the book “On Death and Dying” by Dr. Elisabeth Kübler-Ross galvanized conversations in the U.S. about how to treat the terminally ill. Years earlier, when Crumb’s father was diagnosed with lymphoma, she helped him die at home.
“It was the most meaningful experience in my nursing career,” she said.
In April 1977, when Crumb attended a convention that included a program on hospice, she was hooked.
“Everything clicked,” she recalled. “I thought ‘Yes!’ “
Organizers had little money and less support, Crumb said. The local medical community was skeptical about hospice, which started in the U.S. in Connecticut in 1974.
“Some of the doctors called us ‘the death squad,'” Crumb said. Crumb’s refusal to take federal funds put her at odds with the for-profit hospice industry, which lobbied state lawmakers in 1992 to eliminate an exemption that allowed volunteer hospices to remain unlicensed.
Crumb had to enlist the services of her eighth child, Patrick Crumb, then a corporate lawyer, to fight back.
“In my view, they were clearly misrepresenting the current status of the law,” recalled Patrick Crumb, 55, who is now president of the AT&T Sports Network. “I told them, ‘If you do what you’re threatening to do, I’m going to sue you and I’m going to win.’ “
Lawmakers eventually agreed to create an exemption to state law that allows volunteer hospices to remain unlicensed and unregulated. Crumb’s hospice remains the only agency in state history to use it.
In 2002, the volunteer hospice faced a for-profit rival, Assured Home Health and Hospice, now owned by the LHC Group based in Lafayette, La. Documents show that Assured officials predicted they’d serve 70 percent of the local hospice market within two years.

Since 1978, the Volunteer Hospice of Clallam County has offered free end-of-life care to residents of Port Angeles, Wash.
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Dan DeLong for Kaiser Health News
But competition was fierce, recalled Dr. Tom Kummet, medical director at the Olympic Medical Cancer Center, who referred dying patients to hospice care.
“It was a bit of an awkward time,” he said. “Assured hospice wanted to be a successful business. And Volunteer Hospice was going to negatively impact their chances of being a successful business.”
Fifteen years later, Assured still struggles, said Leslie Emerick, director of public policy and outreach for the Washington State Hospice and Palliative Care Organization.
“They tread lightly up there because of Rose,” Emerick said. “Rose is a beloved person in that community.”
Officials with LHC declined to discuss competition in the Port Angeles market or to say how many patients Assured has enrolled.
“We value the care that Volunteer Hospice provides for our community,” Candace Hammer Chaney, a local Assured manager and community liaison, said in a statement.
Emerick and other hospice industry officials said volunteer hospices don’t offer the range of services required of those who receive federal funding. And, Emerick added, there’s little oversight.
“They don’t have a reputation of negligence or complaints as far as I’m aware, but there’s always the possibility of that when they’re unlicensed or unregulated,” she said.
But Astrid Raffinpeyloz, VHOCC’s volunteer services manager, said the hospice wouldn’t have lasted long in a small town if there were problems.
“We don’t have oversight from the government, but we have minute oversight from the community,” said Raffinpeyloz.

Mike Clapshaw poses with a picture of him and his wife, Deborah, in his Port Angeles, Wash., home.
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Dan DeLong for Kaiser Health News
For Mike Clapshaw, 71, there was no question about who would care for his wife, Deborah, when her cancer came back for the third time, leading to her death in December 2014. She was 60. For the last four months of her life, VHOCC staff eased her pain — and his.
“It was always, ‘What can I do to help?’ ” he said.
Helping was always the point, said Rose Crumb, whether the pain at the end of life was physical, emotional — or both.
“Some people just need someone to listen to them,” she said.
Crumb at nearly 92, now suffers from osteoporosis, congestive heart failure and other ailments that plagued her patients in earlier years. But she’s not worried about her final days.
“I’m all signed up for hospice,” she said. “I have everything written down.”
KHN’s coverage of end-of-life and serious illness issues is supported byThe Gordon and Betty Moore Foundation.
Kaiser Health News, a nonprofit health newsroom whose stories appear in news outlets nationwide, is an editorially independent part of the Kaiser Family Foundation.
Sure, There's A Health Care Deal. That Doesn't Mean It Can Pass

Sen. Lamar Alexander, R-Tenn., chairman of the Senate Health, Education, Labor, and Pensions Committee, talks to reporters on Capitol Hill Wednesday.
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Carolyn Kaster/AP
Updated at 3:55 p.m. ET
A bipartisan coalition of 24 senators — 12 Republicans and 12 Democrats — has signed on to health care legislation to prop up the individual insurance market and keep premiums down. With the expected support of all Senate Democrats, it could have the votes to pass the chamber. But questions remain over when it might actually get a vote, as well as whether President Trump and House Republicans would bring the bill over the finish line.
“This is a first step: Improve it, and pass it sooner rather than later. Our purpose is to stabilize and then lower the cost of premiums in the individual insurance market for the year 2018 and 2019,” said Sen. Lamar Alexander, R-Tenn., on the Senate floor. Alexander and Sen. Patty Murray, D-Wash., crafted the compromise bill.
Alexander and Murray have been working on this legislation for months. Negotiations initially began after the Senate failed to pass legislation to repeal and replace Obamacare back in July.
Most Americans get health insurance through their employer or from the government. About 18 million Americans get their insurance through the individual market established by the Affordable Care Act. “They’re the ones we’re worried about; they’re the ones we’re seeking to help,” Alexander said, noting that includes about 350,000 people in his home state.
“I have to say that after seven years of intense partisanship on these issues, which would lead everyone to believe there was no hope for Republicans and Democrats to come together and work to strengthen our health care, I’m really pleased with this common ground we’ve been able to find,” Murray said on the Senate floor.
President Trump’s decision last week to end subsidies to insurance companies that were allowed under the ACA revived congressional talks. The Trump administration argued — and initial court rulings backed it up — that the payments were illegal because they had not been appropriated by Congress, which has the constitutional authority to spend the government’s money. Although the 2010 health care law required insurers to provide discounts to some low-income consumers and said the government would reimburse them, without authorizing the spending.
The Alexander-Murray proposal would appropriate those subsidies for two years, and tie them to permanent changes to the law that give states more flexibility to seek waivers from the Health and Human Services Department from the ACA’s requirements. It would also allow insurances companies to sell less comprehensive plans to all customers, not just those under age 29 as is the case under current law.
The nonpartisan Congressional Budget Office estimates that without the subsidies, premiums will go up, the deficit will rise and up to 16 million Americans could live in counties with no insurance providers at all.
“Unless they are replaced with something else temporarily, there will be chaos in this country and millions of Americans will be hurt,” Alexander warned.
Alexander said Trump has been privately encouraging of the talks, but the president cast doubts on the legislation this week by suggesting it was a “bailout” for insurance companies that he could not support. However, the bill’s sponsors counter that the legislation requires that the subsidies go directly to the consumer to keep premiums down.
The bipartisan bill has potentially critical GOP support from Sens. Susan Collins of Maine, Lisa Murkowski of Alaska and John McCain of Arizona. The trio played a defining role in the defeat of previous GOP health care bills this year. It also has the backing of Sens. Lindsey Graham of South Carolina and Bill Cassidy of Louisiana, who have competing legislation to dismantle the ACA and replace it with a block grant system to the states.
GOP backers say the bill does not pre-empt the party’s ongoing effort to end Obamacare but rather buys time to keep working on legislation that can muster enough support to pass Congress. Conservatives have balked at Alexander-Murray as a tacit admission that Obamacare will remain the law of the land. House Speaker Paul Ryan said through a spokesman Wednesday that the speaker believes the Senate should remain focused on legislation to end Obamacare, not prop it up.
The proposal puts the GOP in a bind between the policy necessity to act to protect millions of Americans from premium hikes and the political necessity to continue to keep up its effort to dismantle the current system. An August poll from the Kaiser Family Foundation found that 60 percent of Americans think Trump and Republicans in Congress are responsible for what happens to the ACA in the future.
Senate Majority Leader Mitch McConnell has not taken a position on the bill, but he is unlikely to bring something to the floor unless it has Trump’s support and the 60 votes needed to clear a potential filibuster, which it should if all 48 Senate Democrats support it along with the 12 Republicans who have signed on. The legislation crowds an already limited legislative calendar. It would need to become law before the end of the year when Congress needs to pass a spending bill package to keep the government running. That spending bill would be the vehicle to fund the insurance subsidies.
Along with Alexander, Collins, Murkowski, McCain, Graham and Cassidy, the additional GOP co-sponsors include Sens. Mike Rounds of South Dakota, Joni Ernst and Chuck Grassley of Iowa, Bob Corker of Tennessee, Richard Burr of North Carolina and Johnny Isakson of Georgia.
The Democratic co-sponsors joining Murray include Sens. Angus King, independent of Maine, Jeanne Shaheen and Maggie Hassan of New Hampshire, Joe Donnelly of Indiana, Amy Klobuchar and Al Franken of Minnesota, Heidi Heitkamp of North Dakota, Joe Manchin of West Virginia, Tom Carper of Delaware, Tammy Baldwin of Wisconsin and Claire McCaskill of Missouri.
President Trump Pivots On Bipartisan Health Care Bill
President Trump said he supports a bipartisan effort that would effectively shore up the Affordable Care Act. But he’s also distanced himself from it. What’s behind the complicated politics at play?
ARI SHAPIRO, HOST:
For more on President Trump’s role in all of this, NPR’s Geoff Bennett joins us now from the White House. Hi, Geoff.
GEOFF BENNETT, BYLINE: Hey, Ari.
SHAPIRO: So as we’ve just heard, this morning the president distanced himself from the bipartisan Alexander-Murray health care deal, saying he can never support bailing out insurance companies. But Geoff, yesterday he seemed to embrace the bill. Walk us through this.
BENNETT: Well, he did. Early yesterday, the president was holding a news conference in the White House Rose Garden with the prime minister of Greece just as news broke on the Hill about this tentative agreement. And when asked about it, the president praised the two senators involved and said he was aware of what they were working on. And he appeared to take partial credit for it.
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PRESIDENT DONALD TRUMP: Yes, we have been involved. And this is a short-term deal because we think ultimately block grants going to the states is going to be the answer. That’s a very good solution.
BENNETT: So you hear him call it a very good solution. But then hours after that yesterday in a speech before the conservative Heritage Foundation, President Trump changed his tone, saying the bill provides, as he put it, bailouts to insurance companies. And then this afternoon, Ari, White House Press Secretary Sarah Huckabee Sanders said the Alexander-Murray bill, while it’s a worthy pursuit, doesn’t go quite far enough.
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SARAH HUCKABEE SANDERS: We think that this is a good step in the right direction. This president certainly supports Republicans and Democrats coming to work together. But it’s not a full approach, and we need something to go a little bit further to get on board.
SHAPIRO: Geoff, that’s a quick pivot from hot to cold. What’s going on here?
BENNETT: I think what accounts for this is a Republican Party that doesn’t want to be in what they view as an untenable political position of having to vote to prop up the Affordable Care Act after pledging for seven years to scrap it. So you have groups like FreedomWorks, Heritage Action, the Club for Growth all casting this bill as a betrayal of the Republican promise to repeal and replace Obamacare.
But I’ll tell you. Democrats are really infuriated by what they view as the president’s shifting stance. Senate Minority Leader Chuck Schumer today while speaking with reporters called the president the obstructionist-in-chief for not being able to stick to a position, as Schumer put it. Here he is on the floor of the Senate earlier today.
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CHUCK SCHUMER: He’s totally inconsistent – for it one day, against it the next day. You can’t govern. Mr. President, you cannot govern a country. You cannot keep America great if you don’t know what’s in the bills and don’t have a consistent policy about them.
SHAPIRO: Does this mean it’s the end of the road for this bipartisan health care proposal?
BENNETT: Well, Lamar Alexander told my colleague Sue Davis, who covers the Hill, that he sees the White House pushback as part of the overall legislative process. But I think it’s impossible for Republican lawmakers to support this deal without President Trump’s stated endorsement. There’s just not enough political cover for Republicans to vote for it. And then over in the House, you have House Speaker Paul Ryan saying he wouldn’t even bring such a stabilization bill to the House floor for a vote. So right now, it seems that there aren’t enough votes for it. And without the president’s support, it looks like this bill doesn’t really go very far.
SHAPIRO: So if this bill doesn’t go very far and congressional efforts to repeal and replace the Affordable Care Act have failed, where do things stand?
BENNETT: Well, there are other options facing lawmakers. But again, there’s just – the incentive structure, particularly on the Republican side, just does not exist for the – for Republicans to stand up and to give yes votes for this bill on the floor either in the House or the Senate. So right now we’re really at an impasse.
SHAPIRO: That’s NPR White House correspondent Geoff Bennett telling us about the latest developments on the health care debate. Thanks, Geoff.
BENNETT: You’re welcome.
Copyright © 2017 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.
NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.
Senators Reach Deal To Stabilize ACA Insurance Markets For 2 Years

Sens. Patty Murray, D-Wash., and Lamar Alexander, R-Tenn., say they have a tentative agreement to appropriate the subsidies for the next two years, restore money used to encourage people to sign up for Affordable Care Act health plans, and make it easier for states to design their own alternative health care systems.
Tom Williams/CQ-Roll Cal via Getty Images
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Updated at 10:25 p.m. ET
Less than a week after President Trump said he is cutting off subsidies to health insurance companies, lawmakers say they have a deal to restore the money and take other actions that could stabilize insurance markets for next year.
Sens. Lamar Alexander, R-Tenn., and Patty Murray, D-Wash., say they have a tentative agreement to appropriate the subsidies for the next two years, restore money used to encourage people to sign up for Affordable Care Act health plans, and make it easier for states to design their own alternative health care systems.
Alexander said the idea is to stabilize the markets in the short term while Congress continues to debate long-term changes to the ACA.
“Over the next two years, I think Americans won’t have to worry about the possibility of being able to buy insurance in the counties where they live,” he said in a conversation with reporters at the Capitol on Tuesday.
He said he spoke with President Trump over the weekend and that Trump said he supports the idea. However, Senate Majority Leader Mitch McConnell, R-Ky., would not commit to bringing the bill up for a vote, as Murray and Alexander seek enough support to ensure it could pass. The bill would need 60 votes to get across the finish line and would require at least a dozen Republicans to take a difficult political step in voting to shore up parts of Obamacare.
In a speech to the Heritage Foundation on tax changes on Tuesday evening, Trump mentioned the tentative deal.
“And I’m pleased the Democrats have finally responded to my call for them to take responsibility for their Obamacare disaster and work with Republicans to provide much-needed relief to the American people. While I commend the bipartisan work done by Senators Alexander and Murray — and I do commend it — I continue to believe Congress must find a solution to the Obamacare mess instead of providing bailouts to insurance companies.”
Earlier, during a news conference with Greek Prime Minister Alexis Tsipras Tuesday in the Rose Garden, Trump declared the Affordable Care Act “virtually dead” but said he supports the Alexander-Murray deal.
“It’s a short-term solution,” Trump said in response to a question about the deal. “The solution will be for about a year or two years and it will get us over this intermediate hump.”
The deal comes just days after the president said he is cutting off reimbursements to insurance companies for discounts they are required by law to give to low-income customers to reduce the burden of copayments and deductibles. They’re known as “cost-sharing reduction” payments.
The deal reached Tuesday, if it becomes law, would restore those payments for at least the next two years.
The agreement, which Murray says has not yet been finalized, would also make it easier for states to get waivers so they can set up alternative health insurance systems and offer a wider variety of insurance policies.
Alexander said those plans would retain the minimum coverage requirements under the ACA but could vary the definition of what is affordable. The deal also allows more people to buy so-called catastrophic plans that cover major illness but pay for less routine care.
“This is a small step,” Alexander said. “I’d like to undersell it rather than oversell it.”
An analysis by Charles Gaba, who runs a website, ACASignups.net, that tracks enrollment and costs of ACA insurance, showed that premiums are set to rise an average of 30 percent next year, with premiums in some states, including Iowa, rising much more.
As premiums rise, consumers who don’t think they need much health care are less likely to buy coverage, leaving sicker people in the market. Because those sicker customers spend a lot of money on care, they drive premiums up even higher. With restoration of the cost-sharing subsidies, those premium increases could be far smaller.
For much of this year, Trump had been threatening to cut off the subsidies. So insurance companies in many states filed paperwork to sell policies on the ACA exchanges next year that included two sets of premiums — one if the cost-sharing payments continued, and another if they were cut off. The deadline to finalize those prices was in late September, however, and it’s not clear companies will be allowed to cut their prices if the Alexander-Murray deal becomes law.
The agreement would also restore $106 million in money to publicize the open enrollment period for ACA health insurance. Trump had cut the budget for ACA outreach by 90 percent earlier this year, a move many advocates said would suppress enrollment.
Lori Lodes, who ran ACA outreach during the Obama administration, said that money will only be effective if it is approved early enough to reach those who need coverage. Open enrollment on the federal exchange begins on Nov. 1 and ends on Dec. 15.
Murray said she and Alexander had had discussions with more than half the Senate about the bill and she believed the plan would get broad support. Alexander said they’ll work to get co-sponsors for the legislation throughout the week so they can bring a bill to McConnell for consideration. McConnell has not said whether he supports the effort.
Washington Post, 60 Minutes Investigation Finds Bill Helped Fuel Opioid Crisis
NPR’s Kelly McEvers talks to Scott Higham of The Washington Post about the paper’s investigation of drug industry efforts to lobby the Drug Enforcement Administration and Congress to weaken enforcement on opioid abuse.
MARY LOUISE KELLY, HOST:
I’m Mary Louise Kelly in Washington where in the Rose Garden today President Trump had to defend his nominee to lead the White House Office of National Drug Control Policy. That would be the position known as the drug czar.
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PRESIDENT DONALD TRUMP: As far as Tom Marino – so he was a very early supporter of mine – the great state of Pennsylvania. He’s a great guy. I did see the report. We’re going to look into the report. We’re going to take it very seriously.
KELLY: The president referring there to a new report by The Washington Post and “60 Minutes.”
KELLY MCEVERS, HOST:
The investigation found that a bill sponsored by Tom Marino and pushed by the drug industry helped pump more painkillers into parts of the country that were already in the middle of the opioid crisis. Scott Higham helped write the story for The Washington Post.
SCOTT HIGHAM: Say a distributor in Ohio or in Michigan was sending pills downstream to pharmacies in Florida. And one month, that pharmacy was ordering 10,000 pills, and the next month, that pharmacy was ordering a hundred thousand pills. Well, that’s supposed to be reported to the DEA as a suspicious order. And a lot of these companies were not doing that.
MCEVERS: The Drug Enforcement Agency, the DEA, would call that an imminent threat to a local community and freeze drug shipments from the company’s warehouse. Marino’s bill changed that standard to an immediate threat, which doesn’t sound like a big difference, but it is.
HIGHAM: It’s almost impossible to show that a company that is a thousand miles away is posing an immediate threat to a community. Now, they may be able to show that a doctor in your hometown or a pharmacist in your hometown is posing an immediate threat, and they can shut that person down. But the big companies, the distributors and the manufacturers – they’re not going to be able to go after them.
MCEVERS: Co-Sponsors of Marino’s bill say that DEA enforcement was getting in the way of seniors and veterans, people who legitimately needed painkillers. I mean, is that a valid concern?
HIGHAM: Well, you know, you hear that from time to time. I mean, some of this comes from groups that are funded by the industry, but that’s not to diminish that there are people out there who sometimes have trouble getting their medications. But what we’re talking about here is the abuse and sale of hundreds of millions of doses of oxycodone and Vicodin to the black market.
MCEVERS: Yeah.
HIGHAM: And that’s the thing that the DEA was trying to shut down.
MCEVERS: And officials at the DEA opposed these changes for years but eventually backed down. And this bill, you know, in the end sailed through Congress, and President Obama signed it. What happened?
HIGHAM: That’s exactly right, Kelly. We’ve obtained internal memos, emails, other documents from the DEA and from the Justice Department that show that the DEA and the Department of Justice for many years was opposed to this. They had written memos. They had written emails saying this is going to upend our ability to go after these companies. Why are you doing this? And Marino had introduced this legislation in 2014, and the DEA got it killed; and in 2015, and the DEA got it killed.
And then there was a change in leadership. Eric Holder stepped down. Loretta Lynch took over the AG’s office. And then there was a new DEA administrator who came in who said that, I think that we need to work with these people. And there was also enormous amounts of pressure being placed on the DEA by Capitol Hill to pass this bill. And it was at the behest of the pharmaceutical industry. In fact, the bill was written by a pharmaceutical industry attorney who used to be a DEA attorney, one of – a senior DEA attorney. So it’s, you know, the classic kind of revolving door in Washington.
MCEVERS: Wow. And so what’s happened since this bill went into effect?
HIGHAM: So the number of immediate suspension orders has plummeted to zero against major manufacturers and distributors. There have been some immediate suspensions orders filed against smaller companies. But these very big companies, the ones that were backing this bill – they’ve had no actions taken against them at all.
MCEVERS: Senator Claire McCaskill of Missouri said today she will introduce a bill to repeal the Marino law. And Senator Joe Manchin of West Virginia wrote a letter to President Trump asking him to withdraw his nomination of Marino as drug czar. Do you think either of these efforts will go anywhere?
HIGHAM: Well, we’ll see. Not a lot’s happening in Washington these days, as we all know. Our reporting shows that a lot of the members of Congress weren’t really aware what was in this bill and what the import of this bill was because it was just passed by unanimous consent, which means that, you know, there’s no vote. There’s really no debate. They took the word of the leadership that this bill was OK. But you know, we’ll have to wait and see what happens. And as far as Mr. Marino’s tenure, it’s now in the hands of the president.
MCEVERS: Scott Higham of The Washington Post, thanks a lot.
HIGHAM: Thank you, Kelly.
Copyright © 2017 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.
NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.
As She Evacuated Patients From The Hospital, Her Home Burned

Hundreds of homes in the Coffey Park neighborhood that were destroyed by the Tubbs Fire on October 11, 2017, in Santa Rosa, California.
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Julayne Smithson was working an overnight shift in the Intensive Care Unit at the Kaiser Permanente hospital in Santa Rosa, Calif., when massive wildfires started racing through the city late last Sunday.
Smithson had no idea how close they were. She was too busy taking care of her patient. Then, she says, “One of the nurses came up to me and she said, ‘Julayne, I’m sorry, but your house is not going to make it.'”
Smithson, 55, recently moved from Indiana and had just bought a new home a few weeks ago. From the hospital window, she could see the flames moving through her neighborhood.
“I was so busy working the last couple of weeks that I didn’t get my insurance, which I never do. I never ever, ever go uninsured,” she says. “I kept saying, ‘Tomorrow, I’m going to do that. Tomorrow, I’m going to do that.’ “
Smithson asked a colleague to watch her patient while she raced home to try to save a few things. The fire was a block away.
“I knew I didn’t have much time,” she says. “So I ran inside and I thought, ‘I have to get my nursing documents, because if I’m going to lose everything I own, I have to be able to work, to care for patients.'”
She grabbed the papers, a pair of scrubs and a nightgown, and raced back to the ICU. Over the next two hours, smoke filled the hospital.
“All of a sudden the police busted in the door and they said, ‘Everybody out! ‘Grab what you can carry, get your patients, and go now,'” she recalls.
One of Kaiser’s emergency room doctors took charge as the fire approached, setting up a disaster command center, and making the call to evacuate the hospital’s 130 patients.
“It’s a really challenging decision to make, one you don’t make lightly,” says Joshua Weil, Kaiser’s ER doctor in charge that night. “You have to weigh the potential risk of moving hospitalized patients and patients from the emergency department, versus the risk of keeping them where they are.”
He decided to evacuate when the fire moved suddenly toward the hospital. Firefighters told him the blaze was 100 to 200 yards from the property, posing an imminent threat to the hospital structure.
“They literally used the words, ‘We’re making the last stand,'” Weil says.
Staff immediately started assessing and triaging patients.
Patients who could walk, staff guided to a bus provided by the city. Patients who couldn’t walk, like Smithson’s critical patient, had to wait.
Nearby Sutter Santa Rosa Regional Hospital was also evacuating, and they had close to 80 patients, so ambulances were in high demand.
“A lot of nurses and staff were putting patients in their cars and driving them to the hospital,” she says. “And then other people were carrying people on blankets, people who couldn’t walk, and putting them in cars.”
In the end, Smithson says they waited about 15 minutes for an ambulance, but it was a long 15 minutes. Her team was manually pumping air into her patient’s mouth with an air bag. A team of five had to push him, in his bed with all the monitors, through the parking lot several times to get away from fast-moving smoke and flames. His medication was running low and he was getting agitated.
“The pharmacy pre-mixes those medicines for us, but we didn’t have time to prepare extra medication for a trip like that because it just came up so fast,” she says.
Three hours passed from the moment the evacuation was called to the moment the last patient was out of the hospital, Weil says.
Smithson’s patient and others made it safely to Santa Rosa Memorial Hospital, about four miles away. About a hundred less critical patients were transferred to Kaiser’s hospital in San Rafael, about 40 miles away.
Beatrice Immoos was one of the nurses there getting prepped to receive the influx.
“We were essentially told that we were in a disaster situation and all ratios were out the window,” she says, meaning nurses would be assigned more patients than usually allowed under California law. “They were going to start triaging people through the ER.”
She remembers patients arriving wearing colored armbands, indicating the severity of their health status. These were likely assigned by paramedics during transport, Weil says.
“This level of disaster is a new one for us,” says Immoos. “It was very emotional, but there was a lot of resolve. Every day, nurses are always working with the common goal of taking care of our patients, and in a disaster, it’s just even more hands on deck working to get them the best treatment.”
The hospital put out calls for volunteer nurses to come help in San Rafael. Many responded, including Julayne Smithson. Her husband was supposed to fly in from Indiana in two days, but with their new home gone, she told him to wait.
“I said, ‘Well, I don’t have anywhere to go right now. And we don’t know what’s going on,'” she says. “So I said ‘I’ll go to San Rafael and help there.'”
Another nurse offered Smithson a pullout couch in a spare room. She’s been sleeping there during the day, and working 7 p.m. to 7 a.m. every night since the fire. She says all she wants to do right now is help patients, so she doesn’t have to think about what she’s lost.
This story is part of a reporting partnership with NPR, KQED and Kaiser Health News, which is not affiliated with Kaiser Permanente.