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Doctor Treats Homebound Patients, Often Unseen Even By Neighbors

Home care physician Roberta Miller loads up her 2002 Honda Odyssey minivan, which has more than 250,000 miles, to prepare for a day of visiting patients at their homes.

Home care physician Roberta Miller loads up her 2002 Honda Odyssey minivan, which has more than 250,000 miles, to prepare for a day of visiting patients at their homes. Misha Friedman for NPR hide caption

itoggle caption Misha Friedman for NPR

Dr. Roberta Miller hits the road at 8 a.m. to see her patients.

Many are too old or sick to go to the doctor. So the doctor comes to them.

She’s put 250,000 miles on her Honda minivan going to their homes in upstate New York. Home visits make a different kind of care possible.

Miller examines Donald Lacross, 48, who has had multiple sclerosis for almost 20 years. Miller has been his home care physician for three years.

Miller examines Donald Lacross, 48, who has had multiple sclerosis for almost 20 years. Miller has been his home care physician for three years. Misha Friedman for NPR hide caption

itoggle caption Misha Friedman for NPR

“You can evaluate the person as a whole,” says Miller, who has been a home care physician in Schenectady, N.Y., for more than 20 years. “You see everything that influences their health and well-being: the environment, the surrounding people, the support system, whether they had or didn’t have food.”

Miller spends about an hour at each house call. Conversation with patients and their family members flows so naturally that it’s easy to miss that she’s also checking vital signs, gently stretching a hand, noting which pill bottles are empty.

Miller (clockwise from upper left) checks what her patient Calla Osborne, 92, had to eat by reading notes kept by Osborne's daughter; Miller explains to John Toombs, 78, that canned soup can be high in sodium; Divina Gaskin, 71, tells Miller about the side effects of her pills; Miller checks in on Gordon Laymon, 76, who lives alone.

Miller (clockwise from upper left) checks what her patient Calla Osborne, 92, had to eat by reading notes kept by Osborne’s daughter; Miller explains to John Toombs, 78, that canned soup can be high in sodium; Divina Gaskin, 71, tells Miller about the side effects of her pills; Miller checks in on Gordon Laymon, 76, who lives alone. Misha Friedman for NPR hide caption

itoggle caption Misha Friedman for NPR

Although Miller’s practice may harken back to the country doctor of decades past, it could be the future of medicine. In 2013, about 2.6 million Medicare claims were filed for patient home visits and house calls. That’s up from 2.3 million visits in 2009 and 1.4 million visits in 1999, according to Medicare statistics.

The trend is expected to accelerate as baby boomers grow older. One in 20 people over the age of 65 is homebound in the U.S., according to a study published in July in JAMA Internal Medicine.

“That’s just the nature of the population we treat,” Miller says. “They’re extremely ill. Homebound patients often have up to 12 or 13 problems, not just one.”

And they’re often invisible. These people could be living just down the block, and you’d never know it. Many of them never leave their homes.

Patricia Gillihan, 71, lies in her home hospital bed while Miller checks her medical records.

Patricia Gillihan, 71, lies in her home hospital bed while Miller checks her medical records. Misha Friedman for NPR hide caption

itoggle caption Misha Friedman for NPR

Miller in her 1971 Phillips Beth Israel School of Nursing graduation photo. She worked as a nurse in New York City before going to Rutgers Medical School and becoming a doctor. (At right) Miller heads back to her van after visiting a patient in Troy, N.Y.

Miller in her 1971 Phillips Beth Israel School of Nursing graduation photo. She worked as a nurse in New York City before going to Rutgers Medical School and becoming a doctor. (At right) Miller heads back to her van after visiting a patient in Troy, N.Y. Misha Friedman for NPR hide caption

itoggle caption Misha Friedman for NPR

Miller’s patients include a 55-year-old woman with ALS who can communicate only with her eyes, a 27-year-old former quarterback left quadriplegic after surgery on an Achilles tendon, a 92-year-old woman cared for by her daughter and a severely depressed man who lives alone.

Jahmel Tarver, 27, is in a coma caused by complications from surgery for a torn Achilles tendon. Tarver is a former quarterback for the Troy Fighting Irish, a semipro football team.

Jahmel Tarver, 27, is in a coma caused by complications from surgery for a torn Achilles tendon. Tarver is a former quarterback for the Troy Fighting Irish, a semipro football team. Misha Friedman for NPR hide caption

itoggle caption Misha Friedman for NPR

It’s challenging to visit one patient after another, many of whom are at the end of the line, Miller says. What helps keep her going is the deep relationships that develop, where she acts as family, friend and physician.

“Many times, like this gentleman, he’s all alone. You are it — you are the contact. And in that sense, sometimes it’s overwhelming,” Miller says after visiting a patient who has no family nearby. “You have to set limits, and when you do that, you can have a really excellent working relationship with people.”

Being on-call for her patients 24/7 can be a challenge, but Miller feels responsible, knowing there are so few home care doctors out there. She and her husband, Dr. David Hornick, who’s also a home care physician, have close to 300 patients right now. There’s a long waiting list for care.

There aren’t enough home care doctors to go around. One reason is reimbursement. “Health care systems are attracting primary care providers to their networks by salary packages that can’t currently be sustained in a home care practice,” Miller explains.

Miller listens to Budd and Terri Wyman. Terri, 55, can only communicate with her eyes using a speech-generating device.

Miller listens to Budd and Terri Wyman. Terri, 55, can only communicate with her eyes using a speech-generating device. Misha Friedman for NPR hide caption

itoggle caption Misha Friedman for NPR

After a long day visiting patients, Miller takes a rare rest on a canopied hammock in her backyard. Her workday usually starts at 8 a.m. and ends at 1 in the morning. At right, Miller and her husband, Dr. David Hornick, also a home care physician, check incoming text messages from patients during dinner at their favorite Italian restaurant, Mario's.

After a long day visiting patients, Miller takes a rare rest on a canopied hammock in her backyard. Her workday usually starts at 8 a.m. and ends at 1 in the morning. At right, Miller and her husband, Dr. David Hornick, also a home care physician, check incoming text messages from patients during dinner at their favorite Italian restaurant, Mario’s. Misha Friedman for NPR hide caption

itoggle caption Misha Friedman for NPR

Home care skills are rarely taught in today’s medical education system, Miller says, but that doesn’t mean there’s not a need.

After the Affordable Care Act took effect in 2014, Miller saw a spike in new patient requests. Low-income Medicaid patients had sought house calls in the past, but the government insurance wasn’t enough to cover the cost of Miller’s visits, including travel expenses.

“Now we can afford to see them and take care of them. Because they haven’t had medical care, they have multiple medical needs and psychosocial needs,” she says. “It has given us access to a group of people, but more importantly, they have access to us.”

The Affordable Care Act affected Medicare patient coverage, too, Miller says. Medicare reimbursements increased in 2014 for people who are disabled or 65 and older. But reimbursements declined in 2015 because of sequestration. And now Medicaid reimbursements rates starting to decrease as well.

Miller believes the shortage of physicians who are willing to make home visits is directly attributable to this inadequate payment for service.

“The big question is: Is there ever going to be a system where home healthcare providers can be reimbursed appropriately so that we can create a greater workforce of home care providers?”

She sure hopes so.


Photographer Misha Friedman says he tries to “look beyond the facts, searching for causes, and asking complex and difficult questions.” His work has been featured by many media organizations, including NPR, The New Yorker, Sports Illustrated, Spiegel and GQ.

Freelance writer Nadia Whitehead contributed to this report.

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Confusion And High Costs Still Hamper Obamacare Enrollment

Vernon Thomas, a part-time music producer, is trying to decide whether it's worth it to sign up for health insurance.
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Vernon Thomas, a part-time music producer, is trying to decide whether it’s worth it to sign up for health insurance. Fred Mogul/WNYC hide caption

itoggle caption Fred Mogul/WNYC

Recording and mixing music are Vernon Thomas’ passions, but being CEO and producer of Mantree Records isn’t his day job.

He’s an HIV outreach worker for a county health department outside Newark, N.J. He took what was to be a full-time job in May because the gig came with health insurance — and he has HIV himself.

But then the county made it a part-time job, and Thomas lost health coverage before it even started. “Benefits are more important than the money you’re making,” he says.

The Affordable Care Act’s third open enrollment season started Nov. 1, and federal officials are hoping to reach about a million uninsured people nationwide before it closes on Jan. 31.

Newark has an estimated 112,000 uninsured people, including Thomas, around one-third of the city’s population. Newark is one of five areas – along with Houston, Dallas, Chicago and Miami – where the federal government is focusing enrollment efforts.

Altogether, Washington will spend more than $100 million dollars on marketing and enrollment nationwide.

Why has Thomas stayed on the sidelines for Obamacare’s first two years? He values insurance and regular health care, but he says he didn’t fully understand what the law had to offer him. He’s still trying to make up his mind about signing up for coverage this time around.

He has been getting HIV medications, care of the federal government’s AIDS Drug Assistance Program. It doesn’t cover anything else, though, and Thomas says he’d like more medical care, particularly a regular doctor who could keep an eye on issues that worry him.

“Prostate cancer runs in my family on both sides,” Thomas says. “My mother and her mother and her brother all had diabetes. My mother had hypertension also. Fortunately, I have low blood pressure. But now they’re saying I have high cholesterol.”

Thomas’ part-time job doesn’t pay a lot, yet he makes too much to get free health care from Medicaid. He’s eligible to buy a plan on the exchange, but he says it’s too expensive because the cost of living in Newark is high for him.

So he has gone without coverage and kept his fingers crossed. “I try not to think about it — getting sick,” he says.

Thomas didn’t know the health law’s benefits for people in his income bracket. He qualifies for subsidies that would bring his premium down to $100 or less and also cost-sharing support that would pick up much of the deductible and other out-of-pocket expenses.

Brian McGovern, head of the North Jersey Community Research Initiative, says overcoming misconceptions about Obamacare has been one of his staff’s biggest jobs. “It’s always been about trust with some of our patients,” he says.

Susan Nash, a partner at the McDermott Will & Emery law firm in Chicago, says that health insurance is still too expensive for millions of people living paycheck-to-paycheck.

“These individuals are having difficulty affording food and housing, and so it’s a calculus: ‘Do I need health insurance? Do I think I’m going to have a catastrophic event or have some large health care expenditures this year?’ ” Nash says.

The government says about 8 in 10 of these eligible but uninsured people qualify for subsidies. But some of them will get only a little help from the government — and others will get none at all.

Middle-income people can spend hundreds of dollars a month on a high deductible, if they need significant care. And they wouldn’t qualify for the same help with out-of-pocket expenses that Vernon Thomas would. That means they often spend additional hundreds of dollars before coverage actually kicks in.

Still, under the law, most people have to get insurance – or face a tax penalty next year of either 2.5 percent of income or $695 per adult and $347.50 per child under 18, with a maximum of $2,085. Even if people have a sense of these fines, they still might not worry about it. The fines don’t actually hit until Tax Day, 2017. And for many of people, that’s just too far away – and just too abstract.

This story is part of a reporting partnership that includes WNYC, NPR and Kaiser Health News.

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Supreme Court Will Hear More Religious Objections To Obamacare

The Supreme Court will hear another challenge to the Affordable Care Act about religious objections to providing contraception.

The Supreme Court will hear another challenge to the Affordable Care Act about religious objections to providing contraception. Jonathan Ernst/Reuters /Landov hide caption

itoggle caption Jonathan Ernst/Reuters /Landov

The U.S. Supreme Court justices said Friday they would hear a group of cases brought by religious hospitals, schools, and charities that object to the system devised under Obamacare to spare them from paying for birth control coverage for their employees and students.

NPR’s Nina Totenberg reports:

“To accommodate religious groups that object to contraception, the Obama administration promulgated regulations that allow religious non-profits to opt out of birth control coverage by notifying the Department of Health and Human Services of their religious objection. That in turn triggers an independent system of birth control coverage for those employees or students who want it. A variety of religious non-profits contend that the opt-out notification itself burdens their religious faith. The Obama administration counters that the refusal to notify would amount to a religious believer’s veto of the rights of others who do not hold the same beliefs.”

The decision to hear yet another challenge to the Affordable Care Act — the fourth since 2010 — follows a 2014 decision in the Hobby Lobby case, which allowed “closely held” companies to opt out of the Affordable Care Act’s provisions for no-cost prescription contraception in most health insurance if they have religious objections.

Hobby Lobby is an arts and crafts chain owned by the Green family, who are evangelical Christians. The Supreme Court validated their objection to the contraception mandate saying it violated the Religious Freedom Restoration Act.

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How One Woman Changed The Way People Die In Mongolia

Angie Wang for NPR

Angie Wang for NPR

Dr. Odontuya Davaasuren has one goal: to improve the way people die in Mongolia.

“My father died of lung cancer, my mother died, my mother-in-law died because of liver cancer,” she says. “Even though I was a doctor, I could do nothing.”

The feeling of helplessness, and the unnecessary pain her relatives suffered, is what Davaasuren has set out to fix. She has white hair because of it, says the family doctor and professor at the Mongolian National University of Medical Sciences in Ulaanbaatar. “It’s very hard work.”

Her efforts have earned her the title “the mother of palliative care in Mongolia.” And they’ve transformed the way people die.

In global rankings on quality of death released this fall by the Economist Intelligence Unit, Mongolia stood out. It’s number 28 on the list. “Some countries with lower income levels demonstrate the power of innovation and individual initiative,” the report noted, citing Mongolia for “rapid growth in hospice facilities and teaching programs.”

That’s no small feat, regardless of a country’s income level. Palliative care is a relatively new field. Funding tends to go toward combating infectious diseases, rather than towards easing the pain for those who have incurable illness. Hospitals might not want to consider offering hospice care, because it would simply increase the number of deaths that happen on their watch. And globally, doctors and law enforcement officers fear morphine, which happens to be one of the cheapest and most effective painkillers.

Dr. Odontuya Davaasuren, right, says that a good death is "being comfortable, being with loved people, listening to good words. Even an unconscious person listens, because hearing stops last."

Dr. Odontuya Davaasuren, right, says that a good death is “being comfortable, being with loved people, listening to good words. Even an unconscious person listens, because hearing stops last.” Courtesy Odontuya Davaasuren hide caption

itoggle caption Courtesy Odontuya Davaasuren

Most Mongolians die from noncommunicable illnesses like heart disease, cancer, and diabetes. The country is huge and sparsely populated, so most people die at home. About a third of the population lives under the poverty line. The monthly salary of a nurse is around $100. But the progress on end-of-life care that Mongolia has made contrast sharply to the situation in neighboring Russia, a country with some of the most restrictive drug regulations, and where Human Rights Watch says the government has barred journalists from reporting on suicide committed by cancer patients in severe pain.

In Mongolia, as in many other countries, there used to be two options for terminally ill people on their deathbeds: stay at home or go to the intensive care unit, or ICU. A bad death, Davaasuren says, is to die in the ICU, connected to machines, alone, watching the white hospital ceiling, and getting lab tests every few hours. “In the intensive care unit, patients are swaddled by machines and tubes. It’s a stupid death. It’s a really bad death,” she says.

American surgeon and writer Dr. Atul Gawande agrees. Even in the U.S., he writes in his best-seller Being Mortal, “You don’t have to spend much time with the elderly or those with terminal illness to see how often medicine fails the people it is supposed to help. The waning days of our lives are given over to treatments that addle our brains and sap our bodies for a sliver’s chance of benefit. These days are spent in institutions — nursing homes and intensive-care units — where regimented, anonymous routines cut us off from all the things that matter to us in life.”

In the ICU, says Davaasuren, “even if all signs show that the patient will die,” all kinds of tests and treatments are given in the name of survival, even if it dims the quality of life. It used to be that the only alternative was to die at home, sometimes in pain. But a good death, says Davaasuren, is “being comfortable, being with loved people, listening to good words. Even an unconscious person listens, because hearing stops last.”

Davaasuren first learned about palliative care in Sweden in 2000.

Back then, she says, there wasn’t even terminology for palliative care in her country. She’s now the president of the Mongolian Palliative Care Society and has worked to change things.

After the conference in Sweden, she and her students visited patients with severe diagnoses and filmed their conversations. “During these visits I saw so much suffering, so many problems. Not just physical pain – psychological problems, financial problems, spiritual,” she says. A woman with two small children had such severe pain she asked to die. A man in his 30s committed suicide when he was left in unbearable pain after his allotted two-day supply of morphine was up. Families spent fortunes, she says, in search of alternative treatment and medication. “They went to Korea, went to China, looking for better treatment,” she says.

Davaasuren eventually spoke on national TV in the early 2000s about the lack of palliative care in Mongolia, saying that according to WHO recommendations Mongolia was in need of 150 palliative care beds. It had zero. “I had very strong words to the Ministry of Health,” she says.

“When I started to talk about it, many people in the Ministry of Health told me ‘What are you talking about? We have no money for living patients, why do you want to spend money for dying patients?” she says.

Bit by bit, she and her colleagues have managed to turn the tide. Davaasuren and her colleagues translated international publications on palliative care into Mongolian. A grant in 2004 from the Open Society Foundation helped them start courses for nurses and doctors. They worked to change prescription rules so that suffering patients could get cheap painkillers. She brought a hospice doctor from California and a hospice nurse from Virginia to train health workers on palliative care.

Now, poor families taking care of a terminally ill person can get about 36,000 tugrik [$18] each month from the government until the patient dies. “It’s very small but still supportive,” says Davaasuren.

“Before in Mongolia we had the wrong drug regulation,” she says. It used to be that only oncologists could prescribe morphine, and they could give a maximum of ten doses to a patient. Studies on cancer patients before 2000 found that they often died within a month after getting the painkillers – and the incorrect assumption was that the morphine killed them, says Davaasuren.

The country started importing oral morphine tablets in 2006. There is now one pharmacy in each of Mongolia’s 21 provinces with the right to distribute opioids. Before, there was only one. (Because of international regulations, the drugs have to be kept locked up and under security camera surveillance.) At least two people in each province – usually a family doctor and a nurse who are trained in palliative care – can prescribe opioids. “Now oncologists, family doctors have the right to prescribe opioids according to the patient’s needs, every seven days until death,” she says.

In 2000, writes Davaasuren, Mongolia as a whole only used two pounds of morphine a year. By 2004, it was 13 pounds. Last year, according to the Ministry of Health, the country imported a combined 48 pounds of opioid painkillers. A Mongolian company now produces morphine, codeine and pethidine and will this year start producing oxycodone.

There are about 60 beds designated for palliative care in the capital alone. Last month, the Ministry of Health signed off on plans to provide 596 palliative care beds across the country by 2017. The goal now, says Davaasuren, is to extend palliative care to non-cancer patients and to terminally ill children — and to redefine a good death as a success. “Hospitals don’t like to have palliative care patients because if patients die, it increases the death rate in their hospital,” she says. She’s working to get palliative care deaths registered outside of the hospital system.

Davaasuren continues to teach courses to medical students on topics like pain management and how to break bad news. Because sooner or later, she says, “each family will face this problem.”

“Mongolian people say we have one truth,” she adds. “If we are born on this earth, we will die one day.”

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California Law Adds New Twist To Abortion, Religious Freedom Debate

Roughly 800 women a year seek a free pregnancy test, counseling and other services at this center in El Cajon, Calif. The clinic encourages its clients to not get abortions, but a new law requires it to also prominently post information about where to find abortion services.
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Roughly 800 women a year seek a free pregnancy test, counseling and other services at this center in El Cajon, Calif. The clinic encourages its clients to not get abortions, but a new law requires it to also prominently post information about where to find abortion services. Becky Sullivan/NPR hide caption

itoggle caption Becky Sullivan/NPR

The latest front in the debate over religious freedom is all about an 8 1/2-by-11-inch piece of paper.

This particular piece of paper is a notice — one the state of California will soon require to be posted in places known as crisis pregnancy centers. These resource centers, often linked to religious organizations, provide low-cost or free services to pregnant women, while encouraging these women to not have abortions.

The new notice is mandated by the Reproductive FACT Act, and would make it clear that abortion is legally available in California.

But several pregnancy centers are suing the state, asking for the law to be struck down.

One of the clinics engaged in the lawsuit is the East County Pregnancy Care Clinic in El Cajon, Calif., just outside San Diego. The center describes itself as “a religious, nonprofit, pro-life, free medical clinic licensed by the State of California.” It sits on the corner of a busy intersection, surrounded by strip malls.

A big sign out front says “free pregnancy tests.” That’s one way they get women in the door, according to executive director Josh McClure.

McClure is not a physician, though the clinic does have medical advisors who are doctors, he says. When we recently visited, he didn’t permit NPR to talk to the staff at the clinic, who are all either registered nurses or volunteers. But he did offer to show us around, and walk us through the process of what happens to clients who come to the clinic thinking they may be pregnant.

Most of these women make appointments, he says, but the clinic also receives one or two walk-ins a day. The staff sees about 800 women a year, and that number is on the rise.

First, clients fill out paperwork in the lobby, he explains, then are assigned to a volunteer that he describes as an “advocate.”

These volunteer advocates, who are not medical professionals, take the client into a small room called the library. There the volunteer leads the client through a conversation about her situation.

McClure says his volunteer will ask the client a series of questions to get at these issues: “Why do they think they’re pregnant? [Are] they living with somebody? Is it a husband, boyfriend? What are the circumstances going on in their life? And if the pregnancy does happen to be positive, what are they thinking about right then?”

The library has two shelves with books like What To Expect When You’re Expecting; anatomy models that show the size of the fetus at 4 weeks gestation, 8 weeks, and so on; and VHS tapes about abortion and abortion providers. McClure says the tapes are from the 1970s and hardly ever used.

Women can get a free pregnancy test and a free ultrasound at the clinic, as well as counseling regarding three options — parenting, adoption, and abortion. The clinic will not refer clients for abortions.

Women can get a free pregnancy test and a free ultrasound at the clinic, as well as counseling regarding three options — parenting, adoption, and abortion. The clinic will not refer clients for abortions. Becky Sullivan/NPR hide caption

itoggle caption Becky Sullivan/NPR

After a client speaks with the advocate and reviews the pamphlets, she is taken to an exam room to take a pregnancy test.

The exam room looks like any medical examining room, with clean linoleum floors, health pamphlets, and a box of rubber gloves on the counter. In the center of the room is an exam table with a sheet of white tissue paper laid out over it.

That’s where a registered nurse would hand the patient a specimen cup to get a urine sample and do a pregnancy test, McClure says. It’s the same test you might buy at a drug store, he says, but here it’s free, funded by donations. The R.N. signs off on the results.

If the pregnancy test is positive, the nurse tells the client there are three options: parenting, adoption, or abortion.

“We’re going to talk about the benefits, responsibilities, and side effects of all three,” McClure says. “We would say, if it’s an unplanned pregnancy, there really aren’t any good solutions. They’re all hard.”

In the discussion of parenting, the nurse talks about the responsibility of an 18-year commitment to another human life, and the resources in the client’s life that may be helpful. The nurse asks whether the boyfriend or husband would be involved.

In discussing adoption, the clinic goes over several different options: familial adoption to a family member, local or national adoptions and open or closed adoption. McClure says the clinic works with several different adoption agencies and will refer clients to the one that best suits her preferences.

“We do let them know, that if there’s drug abuse, the reality is if you’re not going to straighten your life out by the time the baby is here, that [Child Protective Services] would be coming to take that child,” he says.

When it comes to abortion, the nurses do not tell clients where they can get an abortion or refer them to abortion providers, McClure told us. But they will talk about the clinic’s view of the risks of an abortion and the cost.

“Generally,” McClure says, “the further along you go, the more expensive and more invasive and more risks there are. Risk of sterility is one. Perforated uterus is another. And then, of course, emotional side effects as well. All the information we’re giving about the side effects is backed by research and referenced.”

McClure didn’t mention during our tour that at least some claims in that pamphlet used to train the clinic’s nurses and volunteers are disputed by leading research organizations. For example, the suggestion that there might be a link between abortion and an increased risk of breast cancer has been studied and eventually dismissed by the National Cancer Institute and other medical groups.

The clinic’s pamphlet also states that abortion “significantly increases the risk” for conditions such as “clinical depression and anxiety” and “suicidal thoughts and behavior.” But an American Psychological Association task force on mental health and abortion had a different take in its recent review, recognizing that “abortion encompasses a diversity of experiences.”

According to the APA’s task force report in 2008, “the best scientific evidence published indicates that, among adult women who have an unplanned pregnancy, the relative risk of mental health problems is no greater if they have a single, elective first-trimester abortion than if they deliver that pregnancy. The evidence regarding the relative mental health risks associated with multiple abortions is more equivocal.”

Once a pregnant woman at McClure’s clinic has been briefed by the staff on how their organization views the risks of abortion, she is brought to a room where she can get an ultrasound scan, free of cost.

In its “care closet,” the East County Pregnancy Care Clinic keeps donations of diapers, baby clothes, wipes, maternity clothes and other items to help clients who can’t afford such supplies on their own. Becky Sullivan/NPR hide caption

itoggle caption Becky Sullivan/NPR

There, McClure tells us, the ultrasound image is enlarged and projected onto a big flat-screen TV. Women often decide against abortion, he says, after they see the ultrasound.

“When you have an image on a screen, all the cloudiness of what we’re talking about kind of goes away,” McClure says. “They’re able to see for themselves: OK, arms, legs, eyes, head. Bingo — that’s a baby.”

The last stop is a closet full of diapers, wipes, baby clothes, blankets and maternity clothes — all available for free to clients who have trouble affording those things.

That’s the end of the tour.

None of these things — no step in that process — would have to change under the Reproductive FACT Act.

Instead, the law requires centers like the East County Pregnancy Care Clinic to post a sign in the lobby that says, in 22-point type:

California has public programs that provide immediate free or low-cost access to comprehensive family planning services (including all FDA-approved methods of contraception), prenatal care, and abortion for eligible women. To determine whether you qualify, contact the county social services office at [insert the telephone number].

If the center is not a licensed medical clinic, the sign would state:

This facility is not licensed as a medical facility by the State of California and has no licensed medical provider who provides or directly supervises the provision of services.

McClure says a sign in the lobby is not how or when he wants his clients at the clinic to hear about abortion. It goes against everything his center stands for, he tells NPR.

One of the people responsible for the law requiring this new sign is Autumn Burke, who represents Inglewood in the California Assembly.

Burke tells NPR that her interest in the issue started the day she went to get her phone fixed at a shop near a clinic that performs abortions. Protesters outside the clinic gave her pamphlets, she says, making claims that she knew weren’t true.

“It [said] that abortion causes breast cancer,” Burke recalls, “that if you are on birth control boys will not like you, or they will take advantage of you.”

A few days later, one of Burke’s colleagues in the California Assembly asked her to co-sponsor the Reproductive FACT Act.

“And I thought, ‘you know what? This is timely,’ ” Burke says. “Making sure women have the correct information.”

A number of health and medical groups, including the regional district of the American Congress of Obstetricians and Gynecologists, the California Nurses Association and the Primary Care Association also supported the legislation.

Burke acknowledges that some crisis pregnancy centers do give good help to women who want to have babies. But she says that others give false information to women, or pose as clinics, even though they don’t have a medical license.

Burke says the law is for those bad actors, and that putting up this sign in these centers wouldn’t be much different than a notice from the health department or the building inspector.

“It’s like a ‘Wash Your Hands’ sign on the wall,” says Burke.

Brad Dacus of the Pacific Justice Institute, one of the groups suing the state of California over the new law, could not disagree more.

“It’s like telling the Alcoholics Anonymous group that they have to have a large sign saying where people can get alcohol and booze for free,” Dacus says. “It’s like telling a Jewish synagogue that they can have their service, and do their thing, but they have to have a large sign where people can go to pray to receive Jesus.”

Dacus’s organization has filed a challenge to the law in federal court.

Some U.S. cities, including Austin, Tex., Baltimore and San Francisco, have passed similar legislation and have faced similar legal challenges — with mixed results.

The state of California so far is the largest jurisdiction in the country to pass a law requiring these centers to inform women about the availability of abortion services. If the law holds up, it could make way for measures like it in other cities and states.

Brad Dacus says that if the case has to go all the way to the Supreme Court to stop the law, so be it. To him, the legal battle is all about upholding the right to religious freedom.

“If people are not allowed to carry out their faith, and act and actually exercise their faith — not just have their private beliefs, but actually exercise their faith — then we really don’t have religious freedom,” Dacus says.

The lawsuits against the Reproductive FACT Act are now making their way through the courts.

Kristin Ford, representing the office of California Attorney General Kamala Harris, says, “We will vigorously defend the state law in court.”

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California Law Adds New Twist To Abortion, Religious Freedom Debate

Roughly 800 women a year seek a free pregnancy test, counseling and other services at this center in El Cajon, Calif. The clinic encourages its clients to not get abortions, but a new law requires it to also prominently post information about where to find abortion services.
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Roughly 800 women a year seek a free pregnancy test, counseling and other services at this center in El Cajon, Calif. The clinic encourages its clients to not get abortions, but a new law requires it to also prominently post information about where to find abortion services. Becky Sullivan/NPR hide caption

itoggle caption Becky Sullivan/NPR

The latest front in the debate over religious freedom is all about an 8 1/2-by-11-inch piece of paper.

This particular piece of paper is a notice — one the state of California will soon require to be posted in places known as crisis pregnancy centers. These resource centers, often linked to religious organizations, provide low-cost or free services to pregnant women, while encouraging these women to not have abortions.

The new notice is mandated by the Reproductive FACT Act, and would make it clear that abortion is legally available in California.

But several pregnancy centers are suing the state, asking for the law to be struck down.

One of the clinics engaged in the lawsuit is the East County Pregnancy Care Clinic in El Cajon, Calif., just outside San Diego. The center describes itself as “a religious, nonprofit, pro-life, free medical clinic licensed by the State of California.” It sits on the corner of a busy intersection, surrounded by strip malls.

A big sign out front says “free pregnancy tests.” That’s one way they get women in the door, according to executive director Josh McClure.

McClure is not a physician, though the clinic does have medical advisors who are doctors, he says. When we recently visited, he didn’t permit NPR to talk to the staff at the clinic, who are all either registered nurses or volunteers. But he did offer to show us around, and walk us through the process of what happens to clients who come to the clinic thinking they may be pregnant.

Most of these women make appointments, he says, but the clinic also receives one or two walk-ins a day. The staff sees about 800 women a year, and that number is on the rise.

First, clients fill out paperwork in the lobby, he explains, then are assigned to a volunteer that he describes as an “advocate.”

These volunteer advocates, who are not medical professionals, take the client into a small room called the library. There the volunteer leads the client through a conversation about her situation.

McClure says his volunteer will ask the client a series of questions to get at these issues: “Why do they think they’re pregnant? [Are] they living with somebody? Is it a husband, boyfriend? What are the circumstances going on in their life? And if the pregnancy does happen to be positive, what are they thinking about right then?”

The library has two shelves with books like What To Expect When You’re Expecting; anatomy models that show the size of the fetus at 4 weeks gestation, 8 weeks, and so on; and VHS tapes about abortion and abortion providers. McClure says the tapes are from the 1970s and hardly ever used.

Women can get a free pregnancy test and a free ultrasound at the clinic, as well as counseling regarding three options — parenting, adoption, and abortion. The clinic will not refer clients for abortions.

Women can get a free pregnancy test and a free ultrasound at the clinic, as well as counseling regarding three options — parenting, adoption, and abortion. The clinic will not refer clients for abortions. Becky Sullivan/NPR hide caption

itoggle caption Becky Sullivan/NPR

After a client speaks with the advocate and reviews the pamphlets, she is taken to an exam room to take a pregnancy test.

The exam room looks like any medical examining room, with clean linoleum floors, health pamphlets, and a box of rubber gloves on the counter. In the center of the room is an exam table with a sheet of white tissue paper laid out over it.

That’s where a registered nurse would hand the patient a specimen cup to get a urine sample and do a pregnancy test, McClure says. It’s the same test you might buy at a drug store, he says, but here it’s free, funded by donations. The R.N. signs off on the results.

If the pregnancy test is positive, the nurse tells the client there are three options: parenting, adoption, or abortion.

“We’re going to talk about the benefits, responsibilities, and side effects of all three,” McClure says. “We would say, if it’s an unplanned pregnancy, there really aren’t any good solutions. They’re all hard.”

In the discussion of parenting, the nurse talks about the responsibility of an 18-year commitment to another human life, and the resources in the client’s life that may be helpful. The nurse asks whether the boyfriend or husband would be involved.

In discussing adoption, the clinic goes over several different options: familial adoption to a family member, local or national adoptions and open or closed adoption. McClure says the clinic works with several different adoption agencies and will refer clients to the one that best suits her preferences.

“We do let them know, that if there’s drug abuse, the reality is if you’re not going to straighten your life out by the time the baby is here, that [Child Protective Services] would be coming to take that child,” he says.

When it comes to abortion, the nurses do not tell clients where they can get an abortion or refer them to abortion providers, McClure told us. But they will talk about the clinic’s view of the risks of an abortion and the cost.

“Generally,” McClure says, “the further along you go, the more expensive and more invasive and more risks there are. Risk of sterility is one. Perforated uterus is another. And then, of course, emotional side effects as well. All the information we’re giving about the side effects is backed by research and referenced.”

McClure didn’t mention during our tour that at least some claims in that pamphlet used to train the clinic’s nurses and volunteers are disputed by leading research organizations. For example, the suggestion that there might be a link between abortion and an increased risk of breast cancer has been studied and eventually dismissed by the National Cancer Institute and other medical groups.

The clinic’s pamphlet also states that abortion “significantly increases the risk” for conditions such as “clinical depression and anxiety” and “suicidal thoughts and behavior.” But an American Psychological Association task force on mental health and abortion had a different take in its recent review, recognizing that “abortion encompasses a diversity of experiences.”

According to the APA’s task force report in 2008, “the best scientific evidence published indicates that, among adult women who have an unplanned pregnancy, the relative risk of mental health problems is no greater if they have a single, elective first-trimester abortion than if they deliver that pregnancy. The evidence regarding the relative mental health risks associated with multiple abortions is more equivocal.”

Once a pregnant woman at McClure’s clinic has been briefed by the staff on how their organization views the risks of abortion, she is brought to a room where she can get an ultrasound scan, free of cost.

In its “care closet,” the East County Pregnancy Care Clinic keeps donations of diapers, baby clothes, wipes, maternity clothes and other items to help clients who can’t afford such supplies on their own. Becky Sullivan/NPR hide caption

itoggle caption Becky Sullivan/NPR

There, McClure tells us, the ultrasound image is enlarged and projected onto a big flat-screen TV. Women often decide against abortion, he says, after they see the ultrasound.

“When you have an image on a screen, all the cloudiness of what we’re talking about kind of goes away,” McClure says. “They’re able to see for themselves: OK, arms, legs, eyes, head. Bingo — that’s a baby.”

The last stop is a closet full of diapers, wipes, baby clothes, blankets and maternity clothes — all available for free to clients who have trouble affording those things.

That’s the end of the tour.

None of these things — no step in that process — would have to change under the Reproductive FACT Act.

Instead, the law requires centers like the East County Pregnancy Care Clinic to post a sign in the lobby that says, in 22-point type:

California has public programs that provide immediate free or low-cost access to comprehensive family planning services (including all FDA-approved methods of contraception), prenatal care, and abortion for eligible women. To determine whether you qualify, contact the county social services office at [insert the telephone number].

If the center is not a licensed medical clinic, the sign would state:

This facility is not licensed as a medical facility by the State of California and has no licensed medical provider who provides or directly supervises the provision of services.

McClure says a sign in the lobby is not how or when he wants his clients at the clinic to hear about abortion. It goes against everything his center stands for, he tells NPR.

One of the people responsible for the law requiring this new sign is Autumn Burke, who represents Inglewood in the California Assembly.

Burke tells NPR that her interest in the issue started the day she went to get her phone fixed at a shop near a clinic that performs abortions. Protesters outside the clinic gave her pamphlets, she says, making claims that she knew weren’t true.

“It [said] that abortion causes breast cancer,” Burke recalls, “that if you are on birth control boys will not like you, or they will take advantage of you.”

A few days later, one of Burke’s colleagues in the California Assembly asked her to co-sponsor the Reproductive FACT Act.

“And I thought, ‘you know what? This is timely,’ ” Burke says. “Making sure women have the correct information.”

A number of health and medical groups, including the regional district of the American Congress of Obstetricians and Gynecologists, the California Nurses Association and the Primary Care Association also supported the legislation.

Burke acknowledges that some crisis pregnancy centers do give good help to women who want to have babies. But she says that others give false information to women, or pose as clinics, even though they don’t have a medical license.

Burke says the law is for those bad actors, and that putting up this sign in these centers wouldn’t be much different than a notice from the health department or the building inspector.

“It’s like a ‘Wash Your Hands’ sign on the wall,” says Burke.

Brad Dacus of the Pacific Justice Institute, one of the groups suing the state of California over the new law, could not disagree more.

“It’s like telling the Alcoholics Anonymous group that they have to have a large sign saying where people can get alcohol and booze for free,” Dacus says. “It’s like telling a Jewish synagogue that they can have their service, and do their thing, but they have to have a large sign where people can go to pray to receive Jesus.”

Dacus’s organization has filed a challenge to the law in federal court.

Some U.S. cities, including Austin, Tex., Baltimore and San Francisco, have passed similar legislation and have faced similar legal challenges — with mixed results.

The state of California so far is the largest jurisdiction in the country to pass a law requiring these centers to inform women about the availability of abortion services. If the law holds up, it could make way for measures like it in other cities and states.

Brad Dacus says that if the case has to go all the way to the Supreme Court to stop the law, so be it. To him, the legal battle is all about upholding the right to religious freedom.

“If people are not allowed to carry out their faith, and act and actually exercise their faith — not just have their private beliefs, but actually exercise their faith — then we really don’t have religious freedom,” Dacus says.

The lawsuits against the Reproductive FACT Act are now making their way through the courts.

Kristin Ford, representing the office of California Attorney General Kamala Harris, says, “We will vigorously defend the state law in court.”

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Wellness Programs Add Financial Advice To Improve Employee Health

Increasingly, analysts say, companies are offering workers access to tailored financial advice — sort of like a personal trainer who works on your budget instead of your waistline. The extra support reduces stress and buys loyalty.
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Sheena Calliham is all too aware of statistics showing that millennials have less job security and more student debt than their parents.

“Student loan debt is a primary financial stressor and concern for my generation,” she says, “and we’ve also faced a challenging job market.”

Calliham is 32, manages healthcare centers in Columbia, S.C, and has a 2-year-old daughter. A few weeks ago, she signed up for a financial wellness program offered by her employer. She says the stress of the debt and the cost of raising a child were affecting many aspects of her life.

“It can be a stressor that I can take home with me,” she says, “and that may cause me to take things out on people that I love.”

About half of all U.S. employers now offer financial wellness programs, although how they define them varies. Many companies have long offered lectures on topics like retirement. But increasingly, say analysts tracking the trend, employers are tailoring their programs to the worker — more like a personal trainer who works on your budget rather than your waistline.

Most large companies are expanding their financial wellness programs this year, says Rob Austin, director of retirement research at consulting firm Aon Hewitt. And employers realize one-on-one counseling is a far more effective way to reach people and address their particular concerns.

“It really goes much deeper and much broader,” he says.

According to Evren Esen, who directs survey programs at the Society for Human Resource Management, more than two-thirds of professionals in human resources say personal finances are having an effect on their employees at work, and that can affect health.

Money problems cause stress, which can lead to bigger health insurance bills for an employer. And if an employee’s car breaks down and they can’t afford to fix it, that causes unexpected absences. Studies show that a firm’s health costs and absenteeism are both likely to decrease when the company starts a financial wellness program — though how big a difference it makes can vary and be hard to quantify.

There are still challenges, Esen says. The benefit isn’t cheap, and often participation is low. It can also be hard to get employees to open up about their finances at the workplace – even though their privacy is, and must be, protected.

However, she says, for those workers who do participate, employers see real benefits.

“They tend to be more loyal and they’re more likely to stick with the company,” Esen says. “And they’re more likely to give back to the company.

These programs, which started out with counseling regarding retirement benefits, expanded during and after the lean years of the Great Recession, says Liz Davidson, founder of Financial Finesse, a firm that manages financial wellness programs for employers.

“Financial wellness becomes more attractive when economic times are hard,” she says, “because if you’re going to cut someone’s pay or suspend their raise or cut their match into their retirement plan, that puts pressure on them to figure out, ‘How do I navigate this?’ “

If the social safety net weakens, financial wellness is likely to become all the more important, Davidson says. “We’re not necessarily going to have the corporate or government support we used to have, and financial self-sufficiency is going to become more of a necessity.”

That sort of support from an employer can be especially important for workers in lower income brackets, who are less likely to be able to afford financial planning.

“The people that need it the most don’t get it through traditional channels,” Davidson says. “So, with the model where it goes through the employer, they have access, free of charge, to sit down with a certified financial planner and work through whatever their issue is.”

Calliham, the healthcare manager, says she now strongly encourages her colleagues to use the service. Just having a plan to manage her finances, she says, has made a huge difference in her attitude.

“I definitely — day to day as a mother, as a manager, as an employee, as a wife — I definitely feel like I have my head on straighter,” says Calliham. “I feel like I’m more in control, and they have definitely helped me get there.”

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In Reversal, Death Rates Rise For Middle-Aged Whites

Suicides and drug overdoses have contributed to a marked increase in the mortality rate for middle-aged whites.
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Suicides and drug overdoses have contributed to a marked increase in the mortality rate for middle-aged whites. iStockphoto hide caption

itoggle caption iStockphoto

A decades-long decline in the death rate of middle-aged white Americans has reversed in recent years, according to a surprising new analysis released Monday.

The cause of the reversal remains unclear. Researchers speculate it might be the result of the bad economy fueling a rise in suicides, plus overdoses from prescription painkillers and illegal drugs like heroin, and alcohol abuse.

“That could be just a volatile mix that could set off something like this,” says Angus Deaton, a professor of economics at Princeton University who conducted the research with his wife, Anne Case, another Princeton economist.

Deaton was awarded the 2015 Nobel Prize in Economics for his work on poverty.

Overall, the U.S. mortality rate has been falling by about 2 percent a year since the 1970s.

But the upsurge in suicides and drug overdoses among middle-age whites, among other trends, prompted Deaton and Case to look more closely at this group. They analyzed data from CDC and other sources, including other countries.

“Pretty quickly we started falling off our chairs because of what we found,” says Deaton, whose findings were published by the Proceedings of the National Academy of Sciences.

The mortality rate among whites ages 45 to 54 had increased by a half-percent a year from 381.5 per 100,000 in 1999 to 415.4 in 2013, the most recent year for which data are available, the researchers found.

Even so, the mortality rate for middle-aged African-Americans was higher: 581.9 per 100,000 in 2013. Hispanics fared better with a mortality rate of 269.6 per 100,000 in the same year.

“There was this extraordinary turnaround” among whites, Deaton says, likening the reversal to a large ship suddenly changing directions.

Based on the findings, Deaton and Case calculated that 488,500 Americans had died during that period who would have been alive if the trend hadn’t reversed.

“We’ve been talking about this at various academic meetings and you look around the room and peoples’ mouths are just hanging open,” Deaton says.

“This is a deeply concerning trend,” says Dr. Thomas Frieden, who heads the Centers for Disease Control and Prevention but wasn’t involved in this research. “We shouldn’t see death rates going up in any group in society.”

The Princeton researchers analyzed data from other Western countries and didn’t see the same trend.

“It’s particularly important that they don’t see it in other countries,” says John Haaga, the acting director of behavioral and social research at the National Institute on Aging, which funded the research. “So something’s clearly going wrong with this age group in America.”

The trend appears to be being driven by increased mortality among those with the least amount of education.

“Those are the people who have really been hammered by the long-term economic malaise,” Deaton says. “Their wages in real terms have been going down. So they get into middle age having their expectations just not met at all.”

It remains unclear why the mortality rate only increased among whites and not African-Americans or Hispanics.

Deaton and others have a theory about the difference for whites.

“One possible explanation is that for whites their parents had done better economically and they had been doing pretty well. Then all of a sudden the financial floor dropped out from underneath them,” says Jon Skinner, a professor of economic and medicine at Dartmouth College who co-authored a commentary accompanying the article. “For African-American and Hispanic households things had never been that optimistic and so perhaps the shock wasn’t quite as great.”

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Steep Hikes In Insurance Rates Force Alaskans To Make Tough Choices

Anchorage dental hygienist Victoria Cronquist pays $1,600 a month for a health insurance policy that covers four people in her family. Next year, she says, the rate is set to jump to $2,600 a month.
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Anchorage dental hygienist Victoria Cronquist pays $1,600 a month for a health insurance policy that covers four people in her family. Next year, she says, the rate is set to jump to $2,600 a month. Annie Feidt/APRN hide caption

itoggle caption Annie Feidt/APRN

Gunnar Ebbesson is used to paying a lot for health insurance, but the small business owner from Fairbanks got a shock recently when his quote came in for next year’s coverage.

“I don’t understand who can afford this,” he says. “I mean, who really can afford this? I can pay it, but I can’t afford it.”

The premium for his family of five came to more than $40,000 a year. That’s for a bare-bones plan with a $10,000 deductible — the plan that’s through the marketplace set up by the Affordable Care Act.

Customers can begin buying plans on HealthCare.gov starting on Nov. 1, and do so through Jan. 31, 2016. Rates for individual health plans went up an average of 7.5 percent nationally, but Alaska is a special case. It has the highest premiums in the country and it has seen some of the highest percentage increases over the past two years.

Why that’s true is still murky. There are a tangle of suggested reasons that likely play a role — among them that the state has relatively few doctors in certain specialties, only two insurers offering plans on the individual market, and relatively few people seeking insurance that way. What’s clear is that a lot of people who have to buy that insurance are feeling the pinch.

Ebbesson makes a good living and he doesn’t qualify for a subsidy to help pay for insurance because his family income is more than $142,000 a year. But, he says, his insurance costs more than his mortgage.

“I’m not able to put money in retirement, savings for my kid for college — my 10-year-old. Believe me,” he says, “I could find lots of stuff to do for my future with $40,000.”

Ebbesson supports the Affordable Care Act. He calls the Alaska rates a wrinkle in the law that needs to be fixed.

The average 2016 premium for a 40-year-old in Anchorage is $719 a month — more than double the national average. Most Alaskans, and most Americans, qualify for a subsidy that rises with premium increases — insulating consumers from the big jump. But about 5,000 Alaskans pay the full sticker price.

“We want people to have access to affordable coverage and that’s not happening right now in the marketplace in Alaska,” says Eric Earling, spokesman for the insurance company Premera Alaska, one of only two companies selling on Alaska’s exchange.

Earling says even with the high prices, the company is losing millions of dollars on Alaska’s tiny individual market. He says in the first six months of this year, 37 Premera customers filed over $11 million in claims.

“The important thing is they deserve access to coverage, and we’re glad they have it,” he says. “The trick is creating a sustainable environment where those costs can be absorbed in a way that doesn’t adversely impact all consumers.”

Premera is proposing legislation that would use Alaska’s high risk pool to allow the biggest claims to be paid from a special fund.

The state’s Division of Insurance hasn’t taken a position on the idea.

Victoria Cronquist is a dental hygienist in Anchorage. She doesn’t care what the solution is, as long as it helps her find more affordable insurance.

“It’s just getting too expensive,” she says. “I’m up against the wall. I can’t do it all.”

This year, she pays $1,600 a month for herself, her husband and two kids, ages 16 and 20. She gets a stipend from her work to help pay that premium, but her rate is going up to $2,600 a month next year. And her stipend isn’t going up. Cronquist says she may cancel her insurance.

“To be quite frank, to have a $2,600 monthly premium payment and all this is stressful to me,” she says. “Extremely. And that increases my odds of getting ill! That’s the other way I look at it.”

Cronquist doesn’t take the decision lightly. Her family has dropped health coverage in the past. They had to pay a steep price when her daughter ended up in the ICU a few months later.

Gunnar Ebbesson, from Fairbanks, also has a difficult decision ahead. He’s thinking about dropping his policy and putting money toward savings instead. Ebbesson says his family could fly to Thailand for any big, necessary medical procedures. If something catastrophic happened, though, it would put his family in a tough position.

“It’s a scary proposition,” he says. “There’s always bankruptcy but, my goodness, why should I be having to even think about things like that related to my health insurance?”

The high rates will push more Alaskans into a category that allows them to avoid paying the penalty for going uninsured. The law includes an “unaffordability” exemption if the lowest cost insurance amounts to more than 8 percent of your income.

This story is part of NPR’s reporting partnership with Alaska Public Media and Kaiser Health News.

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Community Health Workers Reach Some Patients That Doctors Can't

Dr. Janina Morrison, right, speaks with patient Jorge Colorado and his daughter Margarita Lopez about Colorado's diabetes at the Los Angeles County-USC Medical Center.

Dr. Janina Morrison, right, speaks with patient Jorge Colorado and his daughter Margarita Lopez about Colorado’s diabetes at the Los Angeles County-USC Medical Center. Heidi de Marco/Kaiser Health News hide caption

itoggle caption Heidi de Marco/Kaiser Health News

Month after month, Natalia Pedroza showed up at the doctor’s office with uncontrolled diabetes and high blood pressure. Her medications never seemed to work, and she kept returning to the emergency room in crisis.

Walfred Lopez, a Los Angeles County community health worker, was determined to figure out why.

Lopez spoke to her in her native Spanish and, little by little, gained her trust. Pedroza, a street vendor living in downtown Los Angeles, shared with him that she was depressed. She didn’t have immigration papers, she told him, and her children still lived in Mexico.

Then she mentioned something she hadn’t told her doctors: She was nearly blind.

Pedroza’s physician, Dr. Janina Morrison, was stunned. For years, Morrison said, “people have been changing her medications and changing her insulin doses, not really realizing that she can’t read the bottles.”

Health officials across the country face a vexing quandary — how do you help the sickest and neediest patients get healthier and prevent their costly visits to emergency rooms? Los Angeles County is testing whether community health workers like Lopez may be one part of the answer.

Lopez is among 25 workers employed by the county to do everything they can to remove obstacles standing in the way of patients’ health. That may mean coaching patients about their diseases, ensuring they take their medications or scheduling their medical appointments. The aid can extend beyond the clinic, too, to such things as helping them find housing or get food stamps.

These workers don’t necessarily have a medical background. They get several months of county-sponsored training, which includes instruction on different diseases and medications, as well as tips on how to help patients change behavior. They are chosen for their ability to relate to both patients and providers. Many have been doing this job for friends and family for years – just without pay.

“By being from the community, by speaking their language, by having these shared life experiences, they are able to break through and engage patients in ways that we, as providers, often can’t,” said Dr. Clemens Hong, who is heading the program for the county. “That helps break down barriers.”

For now, they work with about 150 patients, many of whom have mental health issues, substance abuse problems and multiple chronic diseases. The patients haven’t always had the best experience with the county’s massive health care system.

“They tell us, ‘I am just a number on this list,'” Lopez said. “When you call them by name and when you know them one on one … they receive that message that I care for you. You are not a number.”

The Los Angeles County-USC Medical Center is the county's biggest and busiest public hospital. Walfred Lopez, a community health worker at the center, looks over a patient's health record.

The Los Angeles County-USC Medical Center is the county’s biggest and busiest public hospital. Walfred Lopez, a community health worker at the center, looks over a patient’s health record. Heidi de Marco/Kaiser Health News hide caption

itoggle caption Heidi de Marco/Kaiser Health News

By spring, Hong said, he hopes to have hundreds more patients in the program.

Community health workers have been used for decades in the U.S. and even longer in other countries. But now officials in various counties and other states — including Massachusetts, Pennsylvania and Oregon — are relying on them more, as pressure grows to improve health outcomes and reduce Medicaid and other public costs.

“They are finding a resurgence because of the Affordable Care Act, and because health care providers are being held financially accountable for factors that occur outside the clinical walls,” said Dr. Shreya Kangovi, an internist and pediatrician at the University of Pennsylvania and director of the Penn Center for Community Health Workers.

Kangovi said community health worker programs, however, are likely to fail if they don’t hire the right people, focus too narrowly on certain diseases or operate outside of the medical system. Also, she says, it’s important that such programs to be guided by the best scientific evidence on what works.

“A lot of people think they can sort of make it up as they go along,” Kangovi said. “But the reality is that it is really hard.”

Hong, who designed the program based on lessons learned from other models, said Los Angeles County is taking a rigorous approach. It is conducting a study comparing the costs and outcomes of patients in the program against similar patients who don’t have community workers assigned to them.

The patients are chosen based on their illnesses, how often they end up in the hospital and whether doctors believe they would benefit.

Lopez says that, for him, the work is personal. A former accountant from Guatemala, Lopez has a genetic condition that led to a kidney transplant. Like some of his patients, including Pedroza, he is now on dialysis.

He tries to use his experience and education to get what patients need. But even he runs into snags, he said. One time, he had to argue with a clerk who turned away his patient at an appointment because she didn’t have identification.

“The hardest part is the system,” Lopez said. “Trying to navigate it is sometimes even hard for us.”

Lopez and his fellow community health worker, Jessie Cho, sit in small cubicles in the clinic at Los Angeles County-USC Medical Center, the county’s biggest and busiest public hospital. Throughout the day, they accompany patients to visits and meet with them before and after the doctor does. They also visit patients at home and in the hospital, and give out their cell phone numbers so patients can reach them quickly.

Cho said the patients often can’t believe that somebody is willing to listen to them. “Nobody else on the medical team has it as their job to provide empathy and compassion,” she said.

Morrison, the clinic physician, said both workers have become an essential part of the health team.

“There is just a limited amount I can accomplish in 15 or 20 minutes,” Morrison said. “There are all these mysteries of my patients’ lives that I know are getting in the way of taking care of their chronic medical problems. I either don’t have time to get to the bottom of it or they are never going to really feel that comfortable talking to me about it.”

Natalia Pedroza, who wears a colorful scarf around her head and speaks only Spanish, is a perfect example. Before Lopez came on board, Morrison says, “I wasn’t getting anywhere with her.”

Initially, Lopez had a hard time helping Pedroza overcome her distrust of the system. And Pedroza was confused about her medical condition; she thought the dialysis that kept her kidneys functioning was the cause of her health problems.

But Pedroza listened, explained, and helped her — by making her appointments, for instance, and helping arrange for Pedroza to get prepackaged medications so she wouldn’t have to read the directions. Now Pedroza sees Lopez as an ally.

On a recent afternoon, Lopez sat down with Pedroza before her medical appointment.

“How are you feeling?” he asked in Spanish.

Her hair was still falling out, Pedroza told him, and she still felt sick. She also said she hadn’t been checking her blood sugar because she didn’t know how to use the machine. Lopez showed her how the machine worked, and then the two spent several minutes chatting about her job and her neighborhood.

Lopez said he believes he has a made a difference for other patients as well. On a recent Sunday, a 43-year-old patient with chronic pain who initially refused Lopez’s help texted that he planned to go to the emergency room because of a headache. Lopez reached Morrison, who agreed to squeeze him into her clinic schedule a few days later. And the patient didn’t go to the ER.

Lopez persuaded yet another patient, a 56-year-old woman, to take her blood pressure medication before her appointments so that when she arrived, the doctors wouldn’t get worried about her numbers and send her to the hospital.

In one case, his ability to bond with a patient almost undermined his goal of getting the man the help he needed. The patient, who was depressed, said he didn’t want to go see a mental health counselor because he was more comfortable talking to Lopez.

“It was touching,” Lopez said. “I was about to cry.”

This story comes to us from NPR’s partners at Kaiser Health News, and KQED’s blog State of Health.

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