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N.J. Factory Turns To Medicaid To Insure Lowest-Paid Employees

Duke Gillingham, president of Oasis Foods, in Hillside, N.J., says about two-thirds of his roughly 180 employees declined to enroll in the company health plan for 2015. Many make less than $15 an hour, and found the company plan too expensive.
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Duke Gillingham, president of Oasis Foods, in Hillside, N.J., says about two-thirds of his roughly 180 employees declined to enroll in the company health plan for 2015. Many make less than $15 an hour, and found the company plan too expensive. Fred Mogul/WNYC hide caption

toggle caption Fred Mogul/WNYC

Butter-flavored popcorn oil is in high demand at Oasis Foods, a manufacturer of cooking oils, mayonnaise and other products that restaurants and distributors often purchase by the ton.

“We get a rush this time of year with all the movie-going at the holidays,” says Duke Gillingham, president of Oasis, at his factory in Hillside, N.J., just west of Newark Liberty Airport.

The company’s health insurance coverage is not as popular as its popcorn oil. Oasis offered health insurance to all employees for 2015, to comply with a new Affordable Care Act mandate. And while some employees did sign up for the insurance — the company doubled the number of people on its health plan over previous years — about two-thirds of the employees declined the coverage. With monthly premiums of roughly $350 for a family of four, and with a $2,500 annual deductible, it was too expensive for factory workers, many of whom earn between $10 and $15 an hour.

Gillingham says he hasn’t been able to find decent insurance much cheaper than that, and he cannot afford to significantly raise his employees’ wages.

“The sad fact is we’re in a very competitive business,” he says. “We wish we could make [insurance] more affordable, but it’s essentially what the business can bear. If we don’t watch what we’re doing, we can be high-cost, and that doesn’t serve any of the employees well.”

Companies Look To Avoid Penalties

Oasis Foods, a subsidiary of a Swedish food manufacturer, has about 180 workers. As of Jan.1, smaller firms — those that employ between 51 and 100 workers — are being phased into the same mandate that Oasis faced in 2015. Companies must offer affordable coverage to all employees, and will be subject to a penalty if their workers instead turn to the health exchange to buy subsidized coverage.

There’s no penalty for companies, it turns out, if workers qualify for Medicaid — though there could be controversy.

At firms like Oasis, low-wage workers are candidates more often for Medicaid than for the state or federal insurance exchange.

To qualify for Medicaid, applicants may earn no more than 138 percent of the federal poverty level — or roughly $16,000 for a single person and around $33,000 for a household of four.

Employers have not historically played a significant role in helping workers enroll in Medicaid. But Gillingham’s insurance broker told him about a startup called BeneStream, which is based in New York City and facilitates enrollment in the government program.

Company Shifts Insurance Costs To The Government

Founded two years ago with seed money from the Ford Foundation, BeneStream now helps more than 6,500 workers at 125 companies across the country get Medicaid. CEO Benjamin Geyerhahn says moving workers from private insurance to Medicaid helps firms shift their costs to the government.

“The savings is quite significant,” he says. “Our average is about 250 percent — so about two-and-a-half times the money you spend on us comes back to you in the form of saved premium.”

Geyerhahn says going onto Medicaid, which is nearly free for employees, is a good deal, though it lacks the generous benefits of more expensive plans. If employees make so little that they’re eligible for Medicaid, he says, they probably can’t afford regular insurance premiums, especially when combined with the high deductibles that undermine much of the benefit of insurance.

“Yes, this [level of coverage] is something that will help them if they get in a car accident or have a heart attack,” he says, “but this isn’t something that’s going to help them manage their health over the course of the year.”

Wal-Mart, McDonald’s and some large companies have drawn fire for not providing employees with health insurance, but instead relying on taxpayers to fund workers’ health needs via Medicaid.

Ken Jacobs, chair of the University of California, Berkeley’s Labor Center, says companies whose workers get Medicaid should bear some of the burden of the cost to taxpayers.

Critics Think Employers Should Pay Bigger Share

“Those employers should be paying more into the general pot that pays for health care, rather than putting those costs onto everyone else,” he says.

California legislators considered imposing a state tax penalty for companies whose workers get Medicaid, but lawmakers ultimately rejected the proposal.

Linda Blumberg, an economist at the Urban Institute, says that whether you are looking at a vast company like Wal-Mart or a modest-sized one like Oasis Foods, compensation is about trade-offs. The more you pay for people’s insurance, the less you have to put in their paychecks.

“When workers are low-income,” Blumberg says, “I would rather that we publicly finance their medical care, make it very accessible to them, have low cost-sharing so that’s not a barrier to them getting necessary care, and let them have a little bit higher wages in order to compensate.”

And even the large increases in the minimum wage currently being contemplated or phased in by several states and cities might still not be enough for those workers to afford most employer-sponsored insurance, given the high premiums and deductibles of such plans.

At Oasis, Gillingham says his company pays a lot in taxes, so getting almost-free health care for some workers amounts to a “fair deal.”

He contrasts this system to one he and his family of six experienced in England.

“My kids didn’t suffer from having a five- or six-minute checkup,” he says, compared with doctor visits in the United States — that may have been twice as long, and at much higher expense, but without any noticeable difference in results.

“We didn’t see any of the demons that people speak of when they talk about socialized medicine,” Gillingham says. “There were no lines, no poor standard-of-care.”

But despite being relatively upbeat about government healthcare, he concedes that Oasis workers so far have given Medicaid mixed reviews. Some doctors and hospitals take the insurance, but many don’t.

Still, that’s true of most health insurance, Gillingham says.

A Gallup poll last month found that 67 percent of Americans, in general, are satisfied with the country’s health care system, compared with 75 percent of people who are on Medicaid.

“I think the system is evolving,” Gillingham says. “I don’t know where it’s going to go, but I know it’s going to change, and we need to adapt and make use of the system in the best way possible.”

This story was produced as part of NPR’s partnership with WNYC and Kaiser Health News.

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Obamacare Insurers Sweeten Plans With Free Doctor Visits

If your insurer waived the fee to see your primary care doctor, would you go more often?

If your insurer waived the fee to see your primary care doctor, would you go more often? Getty Images/Hero Images hide caption

toggle caption Getty Images/Hero Images

Health insurers in several big cities will take some pain out of doctor visits in 2016. The plans will offer free visits to primary care doctors in their networks.

You read that right. Doctor visits without copays. Or coinsurance. And no expensive deductible to pay off first either.

In Atlanta, Chicago, Dallas, Miami and more than a dozen other markets, people seeking coverage through the insurance exchanges can choose health plans providing free doctor visits, a benefit once considered unthinkable.

The change is rolling out in a limited number of plans following reports that high copays and deductibles have discouraged many Americans who signed up for private coverage the past two years from using their new insurance under the Affordable Care Act.

Insurers say they hope encouraging visits to doctors will benefit members and their bottom lines by catching illnesses early before they become harder and more expensive to treat. For example, prescribing antibiotics promptly to a patient with pneumonia could avoid a lengthy hospitalization costing tens of thousands of dollars.

In addition, the policy could also cut down on the use of more expensive urgent care centers and emergency rooms for cases that aren’t critical.

In most states, Dec. 15 was the deadline for coverage starting Jan. 1, though people have until Jan. 31 to enroll for 2016.

Two new health insurers, Harken Health, an independently operated affiliate of UnitedHealthcare, and Zoom+ are offering unlimited free primary care visits at company-owned clinics. Harken operates in Chicago and Atlanta. Zoom+ is based in Portland, Ore.

Down south, Florida Blue, the state’s largest insurer, has health plans in Miami-Dade and nine other counties where low-income members buying plans can also get two free primary care visits per year.

California-based Molina Healthcare, is offering not only free primary care visits in some plans, but also free visits to specialists in Florida, Texas and five other states.

The no-fee visits go beyond the preventive services, such as immunizations and screenings, that all insurers must provide under Obamacare without charging a copay, even when a deductible hasn’t been met.

Health policy experts say the new approach sets the insurers apart in crowded insurance markets and may attract younger, healthier people who don’t have relationships with doctors.

“This is a great development … and shows how the market is trying to innovate,” said Katherine Hempstead, director of coverage for the Robert Wood Johnson Foundation.

“Consumers should find this very appealing. … It might be like ‘a spoonful of sugar helps the medicine go down,’ ” she said, quoting a line from the Mary Poppins song. “People are not going to grouse as much about cost sharing later if they are getting something free first.”

Consumer advocates applaud the trend, which they say underscores why people need to look beyond the monthly premium when shopping for a plan. “It’s a smart move to reduce financial barriers to basic outpatient care to help patients manage their health,” said Lydia Mitts, a senior policy analyst at Families USA. “I hope other health plans will realize removing financial barriers to primary care doctors is a smart direction for patients and for the plans.”

The health plans offering free doctor visits are typically among the lowest-priced plans in many markets, according to a Kaiser Health News review of plans sold on the exchanges.

Some insurers can offer free visits because they operate health clinics staffed by salaried physicians. That’s the case at Harken Health, which has four primary care clinics in Chicago and six in Atlanta for its members to use for unlimited visits. Harken also offers members access to a doctor by telephone and Internet. “We are creating unfettered access between the care team and the patients,” said Tom Vanderheyden, CEO of Harken Health. “We think it’s a significant differentiation.” Harken also offers free yoga and cooking classes.

Patients with easy access to Harken’s clinics should be able to avoid trips to urgent care centers, retail clinics and emergency rooms, and develop a deeper relationship with their primary care doctor, Vanderheyden said. “Better access … should mean better outcomes and happier people.”

Dave Sanders, CEO of Zoom+ and a physician, said offering free doctor visits at its modern clinics, should help attract young enrollees. “We are unabashedly focused on the millennial generation,” he said.

To that end, Zoom+ lets members make appointments using a smartphone app. The company’s doctors emphasize changing diets before prescribing drugs.

Dr. Craig McDougall of ZOOM+ talks about food as medicine with a patient visiting one of the insurer's clinics in Portland, Ore.

Dr. Craig McDougall of ZOOM+ talks about food as medicine with a patient visiting one of the insurer’s clinics in Portland, Ore. Courtesy of Zoom hide caption

toggle caption Courtesy of Zoom

Zoom+ has run clinics in the Portland area for the past year, but it has never offered an insurance plan before. Members can get free care at the clinics or Zoom’s freestanding emergency room.

Under the health law, marketplace plans must cover a certain percentage of a member’s health costs with the amount varying based on gold, silver or bronze tiers. “What we have done is to spend the resources on primary care,” Sanders said.

Zoom+ also offers free mental health visits and one free dental visit for a cleaning.

Florida Blue, the state’s Blue Cross and Blue Shield plan, developed a new product for 2016 called myBlue which offers two free primary care doctor visits and then charges $1 a visit thereafter, $3 visits for specialists, free routine lab tests and free diabetic supplies. The myBlue plan was created to help people whose incomes qualify for the highest cost-sharing subsidies under the Affordable Care Act.

To offer such benefits, Florida Blue developed a smaller network of doctors, hospitals and pharmacies so it could better control costs. But to encourage enrollment in Miami-Dade County it recently partnered with three CliniSanitas medical clinics, which primarily serve the Hispanic audience in the area. The plan is also available across South Florida, and counties around Tampa and Orlando.

Jon Urbanek, a senior vice president for Florida Blue, said the new plan is intended to increase the insurer’s market share. He said participating providers in the myBlue products are not necessarily paid less than other doctors but their pay is more closely tied to reaching certain quality targets such as cancer and cholesterol screenings. In 6 of 10 counties where it’s available, the myBlue product offers the lowest premium. “We think our pricing positions us to do very well,” Urbanek said.

Molina Healthcare is offering zero copays for unlimited primary care doctor visits for one of its silver-tier plans for 2016. Unlike Florida Blue, it says it offers free doctor visits in its plans without using a narrow network of doctors and hospitals. “We really want folks to get value from their premium dollar and not have any barriers for care,” said Lisa Rubino, senior vice president at Molina.

Molina offers the zero copay doctor plans in Florida, Michigan, New Mexico, Ohio, Texas, Utah and Wisconsin.

This story was produced through collaboration between NPR and Kaiser Health News, an editorially independent program of the Henry J. Kaiser Family Foundation, a nonpartisan health care policy research organization. Neither the foundation nor the news service is affiliated with Kaiser Permanente.

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Doctors Look To Prevent Abuse In Midst Of Opioid Epidemic

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The U.S. is in the grips of a prescription drug epidemic, fueled in part by an explosion in opioid prescriptions over the past several decades. Roughly half of those prescriptions are written by primary care doctors. NPR’s Robert Siegel talks with Dr. Wanda Filer, president of the American Academy of Family Physicians, about her experience prescribing opioids and what doctors can do to prevent abuse.

Transcript

ROBERT SIEGEL, HOST:

According to the Centers for Disease Control and Prevention, nearly 19,000 people died from prescription opioid overdoses last year. The drug epidemic has so rattled the country, it’s become a topic on the presidential campaign trail.

New Jersey Governor Chris Christie has riveted audiences in New Hampshire and on YouTube with the story of a law school classmate of his, in Christie’s telling, a perfectly successful, healthy, happily married lawyer.

(SOUNDBITE OF ARCHIVED RECORDING)

CHRIS CHRISTIE: He was running one day in his normal routine. He hurt his back. And so he went to the doctor because he was having trouble working – really hurt. And so he said listen, we’re going to give me some treatment, whatever, but in the meantime, just to help you get you through, we’re going to give you Percocet – help numb the pain.

SIEGEL: Christie says friend became addicted. He went on to lose his family, his job, his home and finally his life.

(SOUNDBITE OF ARCHIVED RECORDING)

CHRISTIE: A year and a half ago on a Sunday morning, Mary Pat and I got the call that we’d been dreading forever -that they found him dead in a motel room with an empty bottle of Percocet and an empty quart of vodka – 52 years old.

SIEGEL: As prescriptions for opioid painkillers have soared, so have overdose deaths. The CDC will issue new prescribing guidelines next year. They’re taking public comment through mid-January. The guidelines are aimed at primary care doctors, who write roughly half of all opioid prescriptions. Doctors like Wanda Filer of York, Pa., who’s also the president of the American Academy of Family Physicians.

Dr. Filer remembers that, not long ago, the fear was not overprescribing, but underprescribing for pain.

WANDA FILER: There was a campaign back in the late 1990s and early 2000s called Pain Is The Fifth Vital Sign, and many physicians were told you’re not paying enough attention. You need to be more liberal with opioid medications. I think many of us felt a little bit indicted, quite honestly, and now we feel as though the pendulum has shifted so quickly because suddenly, we’re being told there’s too many opiods. And I suspect the truth is somewhere in between. Pain, for those people who suffer from it, is a very real issue. It’s debilitating. It’s pain, but it’s also suffering on very human term.

SIEGEL: I mean, describe the real life of a primary physician here for us. How often is the complaint that brings someone to you pain?

FILER: I had three people on Monday morning who came in with complaints of pain. One of them is a person who’s been on opioid therapy long-term. It’s allowed her to regain her life. It’s allowed her to be much more functional, and I’m managing that. And she’s been stable. We have a contract in place. We check a random urine periodically to make sure the medication, A, is showing up and B, that nothing else that I don’t want showing up is showing up.

Another one was a patient that came in with his adult child. And she said to me my father is really hurting from all of his arthritis. I think that he needs opioids. I had never seen this man before. I said – well, how long have you had pain? Oh, for about four to five months. I said, well, before we give you any kinds of medications, let’s figure out what’s going on here.

My other concern, quite honestly, is I don’t know this patient very well. He has some underlying medical conditions that make opioids particularly risky for him. And so I did not give him the prescription, and I would be inclined not to do so until I get to know him better and see if it’s even safe for him.

SIEGEL: And might you be thinking during these interviews with patients – are you thinking, is this a case for Motrin as opposed to OxyContin, a non-opioid as opposed to opioid?

FILER: Absolutely. And is this a case for ice? Is this a case for yoga? Is this a case for physical therapy? So we think about all the modalities that are able to us. And narcotic or opioid medications are really the last resort.

SIEGEL: You’re an experienced primary care physician. That’s not a euphemism. You’ve been doing this for a few years.

FILER: (Laughter) Thank you.

SIEGEL: Do you think that, let’s say, less experienced doctors, one might say…

FILER: God bless you.

SIEGEL: …Younger, would find this a very difficult area of medicine to cope with today?

FILER: It is a difficult area. It’s a skill set that we all work to master. I think we master across our career – certainly, when I first came out into practice, it makes you squirm a little bit more, not so much the science of opioid prescribing, but that dance of – how much do I accept what this patient is telling me at face value? – versus – how much I have to be a healthy skeptic? – for their safety, but also for the health of the public.

SIEGEL: Are their patients whom you treated for pain five years ago, 10 years ago, who you think if, you know, if they walked in today with the same complaint, you would you treat very differently because you’re thinking about all this, and medicine’s thinking about it has changed?

FILER: I’m certain that there are people that I would treat differently today. I think we were influenced by some of the campaigns to provide more medication years back, and I think we all do that. You go back and you think about what I might’ve done a bit differently. That’s part of the ongoing, continual lifelong learning.

SIEGEL: How important are the upcoming guidelines from the Centers for Disease Control and Prevention, and what are you looking for there?

FILER: Well, I think the guidelines will be very important once they’ve gone through their public comment period. Many of us have not had a chance to really dig into them yet, but I like the idea that the CDC is bringing a credibility factor to this. However, I’m hearing some concern across multiple medical associations about the process.

And so making sure that we strike that right balance for people with real pain – get access to medications that they need, versus protecting the health of the public and doing no harm – will be the art of the guidelines as well as the science.

SIEGEL: Dr. Filer, thanks for talking with us today.

FILER: Thank you. It was my pleasure.

SIEGEL: Dr. Wanda Filer is president of the American Academy of Family Physicians.

Copyright © 2015 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

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A Cause For Cautious Celebration: Guinea Is Ebola-Free

Medical workers surround 34-day-old Noubia, the last known patient to contract Ebola in Guinea, as she was released from a Doctors Without Borders treatment center in Conakry on Nov. 28.

Medical workers surround 34-day-old Noubia, the last known patient to contract Ebola in Guinea, as she was released from a Doctors Without Borders treatment center in Conakry on Nov. 28. Cellou Binani /AFP/Getty Images hide caption

toggle caption Cellou Binani /AFP/Getty Images

Guinea is set to celebrate with concerts and fireworks Wednesday, following the World Health Organization’s announcement that the country is now officially Ebola-free.

On Tuesday, WHO declared that after two years and over 2,500 deaths, the Ebola epidemic in Guinea has officially ended. The announcement marks the passing of two 21-day incubation periods since the last person to have contracted Ebola — a baby girl called Noubia — was cured of the virus.

“Of course people are happy,” says Safiatou L. Diallo, a World Bank operations officer based in Conakry, Guinea. “But the mood here is also very humble. People have lost their entire families, and we are still remembering and mourning that.”

The announcement in Guinea is a milestone, because “this is the first time that all three countries — Guinea, Liberia and Sierra Leone — have stopped the original chains of transmission that were responsible for starting this devastating outbreak two years ago,” said WHO regional director for Africa Dr. Matshidiso Moeti in a statement.

“But at the same time it’s important to emphasize that this is not the end of Ebola forever,” Dr. Daniel Lucey, a professor of immunology at Georgetown University, who has worked at Ebola treatment wards in Sierra Leone and Liberia.

For the next three months, Guinea will be in a state of heightened surveillance to make sure the virus doesn’t re-emerge as it has done twice in Liberia. “The virus in some cases can persist in the semen of men who’ve survived the infection for up to nine or even 12 months,” Lucey explains. People can also contract the virus from animals.

Plus, in some survivors, the after-effects can include blurred vision, hearing loss and joint pain.”Clearly now is not the time to slow down,” Lucey says. It’s a time to build up health infrastructure, and continue developing and testing vaccines and anti-viral treatments to prepare for any future flare-ups, he says.

The World Bank, WHO and other aid groups have said they will continue to work with the governments in Guinea as well as Sierra Leone and Liberia to provide survivors with medical care as well as counseling to help them return to normal life.

Diallo from the World Bank points out that the epidemic has also left hundreds of children orphaned. Several local associations as well as international groups are now working to find homes for these children and get them back to school, she says. “But unfortunately this may take a long time. And they will need lots of support — they will be affected forever by the epidemic.”

There is also the issue of stigma against survivors, Diallo adds. Over the next year, public campaigns explaining that it’s safe to live and work around Ebola survivors, to shake their hands or breathe the same air will be crucial.

The epidemic had been especially difficult to contain in Guinea. As NPR’s Ofeibea Quist-Arcton reported earlier this year, mistrust, anger and denial in parts of the country hindered efforts to cure the infected and curb the spread of illness.

“No one expected it to be so hard or take so long to stop this disease. It just demolished entire villages and families,” Diallo says. “It will take some time to rebuild.”

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Gene Editing Tool Hailed As A Breakthrough, And It Really Is One

Editing DNA has never been easier.
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Editing DNA has never been easier. Pasieka/Science Photo Library/Corbis hide caption

toggle caption Pasieka/Science Photo Library/Corbis

Every once in a while a technology comes along that completely alters the way scientists do their work.

It’s hard to imagine astronomy without a telescope or high energy physics without an accelerator.

From here on in, it’s going to be impossible to imagine biology without CRISPR-Cas9.

Simply put, CRISPR-Cas9 allows scientists to make specific changes to specific genes in living cells. Such a thing was possible in the past using technques called zinc finger nucleases and Talens. But those techniques were cumbersome and weren’t widely adopted.

In the three short years since the first scientific papers appeared about CRISPR-Cas9, the technique has been “spreading like wildfire,” says Ramesh Akkina, a molecular immunologist at Colorado State University.

And for 2015, the journal Science called CRISPR the “breakthrough of the year.”

There have been lots of ethical debates about what the new gene editing technique could do, such as creating designer babies or making mutant species. But most biologists aren’t interested in making designer babies or mutant species. They just want to understand basic things like how the cells in our bodies work, or how certain genes function. They expect CRISPR-Cas 9 to be very, very helpful with those lines of inquiry.

Recently I visited Colorado State University to give a talk, but I realized it would be a great place to assess just how far and wide CRISPR-Cas9 had spread.

First, I talked with Christopher Allen, a scientist in the environmental and radiological health sciences department who studies the genes that are important for repairing DNA inside our cells.

When that repair process goes wrong, the result can be cancer. So Allen would like to be able to compare cells side by side: one that has a gene he thinks is important in the repair process, and one that is missing that gene. To do that, he has to modify the genome of a cell, something CRISPR-Cas9 will let him do easily.

Another scientist, Carol Wilusz, studies how and when genes are expressed in stem cells. She says CRISPR-Cas9 is going to make a difference in her work, “because it’s going to enable us to do experiments that we’ve been struggling to do through other approaches.”

Now, Wilusz and Allen aren’t trying to cure diseases, at least not directly, but CRISPR might be useful for that, too.

“The work we’re doing now is to use CRISPR-Cas technology to delete HIV genome from infected cells, such that the cell can be cured completely,” says Ramesh Akkina, a virologist at Colorado State. Right now he is perfecting that trick in cells in the lab, but he is working on a scheme to do it in patients as well.

CRISPR-Cas9 isn’t just useful for working organisms in the animal kingdom. It’s useful in forests and fields.

“I study diseases of plants,” says plant geneticist Jan Leach, “and my goal is to try to make plants that are resistant to different pathogens.”

She says there are a host of genes inside plant cells that turn on when the plant tries to fight invasion from bacteria or fungi. She’d like to be able modify all of them. With CRISPR-Cas9, she can.

“I’ve been working in this particular area for over 20 years, and in 20 years I’ve been able to do one or two genes,” says Allen. “With CRISPR-Cas I’ll be able to do 20 or 30.”

In two days, I spoke with nine different researchers. I asked them all the same question. “Will CRISPR-Cas9 have an impact on your work?”

Honestly, it’s stunning to witness the impact CRISPR-Cas9 has had on biology. It ranks with the most important tools invented in the past century. I wouldn’t be surprised if it wins Science magazine’s breakthrough of the year next year too.

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States Deny Pricey Hepatitis C Drugs To Most Medicaid Patients

A 12-week regimen of Harvoni is 90 percent effective in curing an infection with hepatitis C, doctors say. It also costs about $95,000.
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A 12-week regimen of Harvoni is 90 percent effective in curing an infection with hepatitis C, doctors say. It also costs about $95,000. Baltimore Sun/TNS via Getty Images hide caption

toggle caption Baltimore Sun/TNS via Getty Images

Sarah Jackson had quit abusing drugs and had been sober for six months when she found out she had hepatitis C.

“That was weeks of not sleeping and just constant tears,” she says. “I had already put a lot of that behind me and had been moving forward with my life and this was just a major setback.”

To get rid of the infection, her doctor prescribed Harvoni, one of the new generation of highly effective hepatitis C drugs. But Jackson never started the treatment because her insurance, Indiana’s Medicaid, refused to pay for it.

“There’s nowhere else to go,” says Jackson. “The doctor tried and now I have no other place to turn.”

More than 3 million people in United States are infected with hepatitis C, a virus that can destroy the liver and cause liver cancer. The number of cases is increasing, and most new cases are attributed to injection drug abuse, according to the Centers for Disease Control and Prevention.

In the last few years, new medications have come on the market that can cure hepatitis C with a more than 90 percent success rate. But these new drugs are famously expensive. A full 12-week course of Harvoni costs about $95,000. Because of that, Medicaid in many states restricts who receives the medication.

Medicaid in at least 34 states doesn’t pay for treatment unless a patient already has liver damage, according to a report released in August. There are exceptions—for example, people who also have HIV or who have had liver transplants—but many living with chronic hepatitis C infection have to wait and worry.

“It is just not feasible to provide it to everyone,” says Matt Salo, director of the National Association of Medicaid Directors. “States have to make sure that we’re going to prioritize and that those who need it the most get priority treatment, and that’s what you’re seeing.”

States get a discount on the drugs, but Salo says even if they could cut prices in half, treating everyone with hepatitis C would still cost too much for states’ limited Medicaid budgets.

Officials in Washington state, for instance, estimate that at full price, treating everyone on Medicaid for hepatitis C would cost three times the state’s total pharmacy budget.

States are caught between the high prices and those who say that rationing care is illegal.

“If something is medically necessary, it’s medically necessary and must be covered by the Medicaid program,” says Gavin Rose, an attorney for the ACLU of Indiana.

Rose is representing Sarah Jackson in a class action lawsuit to fight the Indiana restrictions. He argues in the lawsuit that if a doctor says you need a drug, Medicaid must pay for it. The lawsuit cites a recent letter from the Centers for Medicare and Medicaid Services reminding states of the law.

Furthermore, Rose argues, treating hepatitis C early would keep the virus from spreading and actually save money in the long run. “We are talking about drugs that might prevent Medicaid from having to deal sometime in the future with treatment for liver cancer, with treatment for liver transplants,” he says.

There seems to be consensus that the new drugs for hepatitis C are too expensive. Even the U.S. Senate has criticized the pricing in a report released earlier this month. States spent $1 billion last year on Sovaldi, another commonly prescribed hepatitis C drug. A new treatment is set to come to market next year, and that competition may help bring prices down.

In the meantime Sarah Jackson will wait for her lawsuit to get resolved. “This is weighing over me every day. I have to worry about it all the time,” she says.

Despite the anxiety, she’s willing to go through it to help others like her who want to be cured.

This story is part of a reporting partnership with NPR, local member stations and Kaiser Health News.

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ER Docs Say Rule Change Could Raise Patients' Out-Of-Network Bills

Going to an out-of-network emergency room can be costly.

Going to an out-of-network emergency room can be costly. Harry Sieplinga/Getty Images hide caption

toggle caption Harry Sieplinga/Getty Images

Two professional organizations representing emergency doctors warn that a federal rule released in November could lead to higher out-of-pocket costs for consumers when they need emergency care outside their health plan’s network of providers.

But consumer advocates and health policy analysts say the groups’ proposed solution doesn’t adequately protect consumers.

Under the health law, plans generally can’t charge consumers higher copayments or coinsurance when they visit an emergency department that’s not in their network. So if the plan charges a flat copayment of $500, for example, or coinsurance totaling 30 percent of the cost of services for an emergency department visit at an in-network hospital, it can’t charge consumers more than that rate if they get emergency services at an out-of-network facility. The only plans that are exempt from this provision are those that have grandfathered status under the health law.

However, the law doesn’t prohibit doctors and hospitals from balance billing consumers for out-of-network emergency care if their insurer doesn’t pay the full amount charged. That practice is what really harms consumers, say advocates.

“Our main interest is getting the consumers out of the middle,” says Chuck Bell, programs director at Consumers Union, a consumer advocacy group that has been involved in state efforts to prohibit balance billing. “Even if [the federal government] had written the regulation the way [emergency physicians] advocate, we would likely see balance bills going to consumers.”

Emergency services providers say they are in a tough spot because federal law requires them to treat anyone who comes through their doors, whether or not they have insurance or can afford to pay.

The health law says insurers must pay a “reasonable amount” before a patient can be billed for the rest. The new federal rule defines “reasonable” as the greatest of these three options:

  • The median amount negotiated with in-network providers for the emergency service.
  • An amount calculated using the same method the plan would generally pay for other out-of-network services.
  • The amount paid by Medicare.

The American College of Emergency Physicians and the Emergency Department Practice Management Association maintain that the regulation’s first two options allow insurers to essentially pay whatever they want because their payment data is proprietary. Medicare reimbursement rates are generally lower than those of private plans.

Without a transparent, objective standard in place, the emergency providers say, insurers will pay them less and emergency providers may in turn try to collect the unpaid balance from consumers, unless they live in one of the dozen or so states that prohibit balance billing by out-of-network providers.

The physicians want the payment standard to be “usual and customary charges,” adjusted for geographic variations, using a transparent, independent claims database such as that provided by the nonprofit group Fair Health.

Insurers, however, say providers’ charges are too high and the process by which they are set is often opaque. A study last fall by America’s Health Insurance Plans, a trade group, used Fair Health data to examine the charges billed by out-of-network providers in 2013 and 2014 and compared them to the average fees paid by Medicare in 2014. Analyzing 1.16 million emergency department visits of high severity, the average out-of-network charge was $971 — far higher than the average Medicare payment of $176.

Consumer advocates, such as Bell, and some researchers who have studied consumers’ billing issues, say the government could take a more consumer-friendly approach by eliminating balance billing for emergency care altogether. New York did that with a law that took effect in April. Under that law, insured consumers generally can’t be billed for out-of-network emergency care. (The law doesn’t apply to self-funded companies that pay their employees’ claims directly.)

“It’s promising what New York did,” says Kevin Lucia, a senior research fellow at Georgetown University’s Center on Health Insurance Reforms. “They extract the consumers so they can’t be used as leverage between the providers and insurers.”

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It's Costing A Lot Of Money To Make Those Toenails Fungus-Free

You might be able to get fungus-free toenails, but it could cost you.

You might be able to get fungus-free toenails, but it could cost you. Shelly Strazis/Uppercut/Getty Images hide caption

toggle caption Shelly Strazis/Uppercut/Getty Images

The bills can rack up fast when trying to cure toenail fungus, and it’s not always easy to know which drug to use. Costs can range from over $2,000 for treating one nail to just $10 for a pill that treats all 10 toes but could have bad side effects. Then there are the costly lab tests to confirm that the curling yellow rot chewing through a toenail is in fact mold.

Right now, the most effective treatment for toenail mold or onychomycosis is a pill called terbinafine. It costs about $10 for a full treatment, which can take up to six months. It’s so cheap that it would be more cost-effective to administer the drug to everyone that clinicians think has toenail fungus, rather than spending extra money to confirm the diagnosis in a lab, which can cost up to $148, according to a study published in JAMA Dermatology on Wednesday.

Considering that at least 10 percent of Americans have toe fungus, the health care system could be saving between $18 million and $90 million by skipping the testing, the researchers say.

But some people are reluctant to use terbinafine because there’s a risk of liver damage, a fact that was emphasized when it came on the market decades ago.

“Practitioners were uncomfortable giving it because of the consequences, and we unfairly discouraged a lot of people from taking it,” says Dr. Arash Mostaghimi, a dermatologist at Brigham and Women’s Hospital and Harvard Medical School and senior author on the study. That’s the reason why doctors almost always order lab tests, so that people without a fungal infection wouldn’t be taking that risk.

Dermatologists know now that the chance for liver damage from terbinafine is less than 1 in 100,000, and yet the message persists. “I think that ‘people’ think that terbinafine is dangerous because their primary care doctors and even dermatologists have told them that!” Dr. Matt Kanzler, a dermatologist at Palo Alto Medical Foundation, tells Shots in an email.

Under the influence of this misconception, Kanzler says both physicians and patients elect to use more expensive topical treatments, like a new drug called Jublia that costs thousands of dollars per nail and works about 15 percent of the time. They want to avoid any potential liver injury and malpractice lawsuits. “The problem with this drug is that it isn’t ‘lifesaving’ like cardiac medicine,” he says. “As soon as there are articles mention ‘you should use this safe topical medicine,’ doctors say, ‘I am not going to put myself at risk.'”

The cumulative cost of all these decisions results in a needless burden on the health system, says Ankur Pandya, a health decisions scientist at Harvard University who was not involved with the study. “These extra health care costs are coming from somewhere. Either our tax dollars or our paychecks as we pay more in premiums and deductibles increase. These are dollars that could trickle back into our pockets on a societal level.”

This is part of the reason why health care is so expensive. Insurance premiums hurt, even for cheap plans. The cost to treat even minor nuisances can skyrocket. Then, a toenail fungus is not just a toenail fungus. It becomes an insatiable cash-scarfing beast latched onto the end of your foot. It would be better, Pandya says, to slash procedures that don’t make economic sense.

But other doctors say it’s not that simple. “Just assuming [terbinafine] is safe, [saying] let’s prescribe it for every clinical diagnosis for onychomycosis doesn’t translate perfectly into practice,” says Dr. Chris Adigun, a dermatologist practicing in North Carolina who did not work on the study.

For one, the pills work only about half of the time and must be taken for up to six months, depending on how severe the fungus is, and Adigun says there’s still a 2 percent chance for other side effects. “The incidence of liver injury is low, but [terbinafine] causes stomach upset, taste disturbance, fatigue — it’s often enough that people discontinue the drug.”

Adigun thinks that’s good enough reason to order the lab tests to make sure the patient really does have toenail fungus. “It damages the patient-doctor relationship to go on six months of a systemic drug for something they might not need.”

What’s more, Adigun says, this study doesn’t take into account that the elderly and people with other complications are more likely than healthy people to have toenail fungus. “[These patients] are often on a lot of other medications, so adding terbinafine to the mix without taking that into account is not totally responsible,” she says.

But Mostaghimi thinks it could be irresponsible not to recommend terbinafine as the front-line treatment for toenail fungus. “We’re spending 18 percent of our GDP on health care,” he says. “As a society, when we decide we’re going to spend an additional $80 million of testing for terbinafine, that’s $80 million we’re not spending on things that could be more valuable for us.”

Adigun agrees there’s a significant cost issue, but that doesn’t mean the decision is simple. “The take one for the team mentality is tough when it comes to your health and you’re the one swallowing that pill,” she says. “I think fiscally responsible medicine needs to be ingrained in us.”

At the same time, she says, she took an oath to do no harm. That means doing whatever she can to protect each patient from needless suffering, including side effects from a drug they didn’t need.

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Brain Surgery Serenade: Man Plays Saxophone During Tumor Removal

Carlos Aguilera recently discussed how he played the saxophone during surgery to remove a brain tumor at Regional Hospital of Malaga, in Andalusia, Spain.

Carlos Aguilera recently discussed how he played the saxophone during surgery to remove a brain tumor at Regional Hospital of Malaga, in Andalusia, Spain. Jorge Zapata/EPA /LANDOV hide caption

toggle caption Jorge Zapata/EPA /LANDOV

The team of doctors who recently operated on Spanish musician Carlos Aguilera’s brain wanted to be sure they didn’t affect his ability to play the saxophone – so they had him play songs during a 12-hour surgery.

A partially sedated Aguilera obliged, playing “Misty” and other songs, in addition to reading sheet music. In a video of the procedure, the mellow tones of Aguilera’s saxophone blend in with the normal sounds of an operating room.

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From Madrid, Lauren Frayer reports:

“The 27-year-old was sedated, on painkillers, but remained conscious during the entire multi-hour operation.
“Doctors were removing a brain tumor, and wanted to ensure the surgery wouldn’t damage Aguilera’s musical ability. It was the first such surgery of its kind in Europe.
“The operation took place in October, and Aguilera recently went public to say he’s been cured — and continues playing his sax with an orchestra in the southern city of Malaga.”

At a news conference this week, Aguilera’s father told journalists that when his son was diagnosed with a brain tumor earlier this year, he feared the worst – including the possibility that he might never play music again.

“Two months ago I was on the table, and now I have a life in front of me,” Aguilera said, according to La Opinion of Malaga. “I’ve been reborn.”

Such procedures are meant to protect musicians’ primary audio cortex and other parts of the brain that can affect their ability to play. (A story on NPR’s Weekend Edition today looks at The Neuroscience Of Musical Perception, Bass Guitars And Drake.)

It’s the first time such a case has been reported in Spain; similar measures were taken during recent brain surgeries in the U.S. and elsewhere — including last summer, when Slovenian opera singer Ambroz Bajec-Lapajne sang portions of Franz Schubert’s Gute Nacht during surgery for a brain tumor.

In August, Bajec-Lapajne posted a video of his performance in the operating theater.

“All is fine until min. 2:40 when things start to get very interesting,” Bajec-Lapajne said of the video. “It’s been more than a year since and I’m doing fine, continuing my professional singing career.”

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Other recent cases include:

  • In June, guitarist Kulkamp Anthony Dias played the Beatles’ “Yesterday” and other songs during a surgery to remove a tumor in Brazil.
  • Last year, former Lithuanian National Symphony Orchestra violinist Naomi Elishuv played during a procedure in Tel Aviv to correct tremors that ended her career.
  • Also in 2014, American concert violinist Roger Frisch underwent a procedure similar to Elishuv’s to free him from essential tremors.
  • In 2008, bluegrass legend Eddie Adcock played banjo during neurosurgery to correct similar involuntary tremors.

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Obamacare Deadline Extended As Demand For Health Insurance Rises

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The deadline to sign up for an Obamacare health insurance plan starting on Jan. 1 was extended until Friday because the web site was overwhelmed. Demand was up, but that might be because the penalties for not having insurance are increasing.

Transcript

ARI SHAPIRO, HOST:

One deadline to sign up for health coverage under the Affordable Care Act has just passed. It was last night. That deadline was for people who wanted coverage starting January 1. People can still sign up through the end of next month for coverage that would kick-in in a few months. By most accounts, demand has been huge because this the year penalties for not having health insurance go up. NPR health policy correspondent Alison Kodjak is here with more on the latest enrollment.

Hey Alison.

ALISON KODJAK, BYLINE: Hey Ari.

SHAPIRO: The government actually extended the enrollment period this week because the healthcare.gov website was so busy. Is this just a sign that demand is through the roof and it’s all good?

KODJAK: Well, demand is through the roof, but I’m not sure it’s all good. The demand is goosed because of these penalties you mentioned, they’re going up a lot. They’re at least doubling. It used to be the lowest penalty was about $325. Now the lowest penalty is $695 and could go up as much as $10,000.

SHAPIRO: OK. So people might’ve wanted health care but they also wanted to not pay the fines. Talk about how the website held up, especially given the history of the healthcare.gov website.

KODJAK: Well, it held up better than before, but there were some bumps. People were trying to buy insurance, and the government said they were getting 11 sign-ups per second for a couple of days last week. But the waits were getting kind of long, and on the telephone helpline, which is very popular, the waits were as long as 22 minutes earlier this week. There was – originally, the deadline was Tuesday. One of the government officials who was talking about this today said that they would’ve needed 72,000 people answering the phones to make the waits at the normal amount, you know, just to answer when people called, and that’s why they had to extend the deadline.

SHAPIRO: Although it doesn’t sound like these delays were on the scale of the epic meltdown when healthcare.gov first launched.

KODJAK: No, no. It wasn’t that bad. I mean, like I said, the waits on the website were about two minutes. You know, something like Amazon, they would’ve been able to handle the volume, which was, you know, in the 150,000 to 200,000 people shopping at one time range.

SHAPIRO: So people who still want insurance and have not yet signed up, it’s not too late for them, right? What happens at this point?

KODJAK: Well, they can still go onto healthcare.gov and find an insurance plan and sign up. They can go to the call center. They can go to what they call a navigator, somebody who helps you sign up, up through January 31. But that plan won’t go into effect until March, and they may face a penalty for missing those two months if they have no insurance for January and February.

SHAPIRO: Now, to hear Republicans in Congress and on the campaign trail talk about it, the Affordable Care Act is hugely unpopular and a failure. What do the latest numbers tell us about those claims from the Republican side?

KODJAK: Well, I think it’s a complicated picture. People are clearly buying insurance. People want insurance and need insurance. But there are definitely a lot of people who have been goosed into buying insurance because of the penalties we were talking about. And people are really complaining that some of these plans are too expensive, they have high deductibles, they have high co-pays. You can see the complaints all over our website if you look at the comments under our stories.

SHAPIRO: We’ve been hearing a lot about this huge budget bill that Congress passed last night which includes removing two taxes that were part of the Affordable Care Act. What effect will that have on the law?

KODJAK: Well, I don’t think it’s going to have any effect on people buying insurance and the marketplace specifically, but these were the taxes that were supposed to pay for the expansion of Medicaid and to pay for the subsidies that make some of these policies affordable to people. So what it’s going to do is expand the budget deficit, but in addition it opens up the law for criticism by saying yes, this law is costing taxpayers a lot of money because there are no pay-fors.

SHAPIRO: That’s Alison Kodjak, NPR’s health policy correspondent.

Thanks Alison.

KODJAK: Thanks Ari.

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