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White House Announces Program To Distribute Free HIV-Prevention Medication

The White House announced Tuesday it will begin distribution of free HIV-prevention medication to people without prescription drug coverage. It’s part of Trump’s plan to end HIV in the U.S. by 2030.



AILSA CHANG, HOST:

President Trump has a plan to end HIV in America by 2030. And today, administration officials announced the first real-life program to help them get there. The program will provide a free HIV prevention drug to people who are at risk and who don’t have prescription drug coverage. Without insurance, the drug costs more than $20,000 a year. NPR’s Selena Simmons-Duffin has more.

SELENA SIMMONS-DUFFIN, BYLINE: Over a million people are at risk for HIV infection, according to government estimates. But only a fraction of them are on PrEP, or preexposure prophylaxis. Truvada is the PrEP drug that’s been on the market for years now. The idea is you take this daily pill, and then if you’re exposed to HIV, you won’t get infected. It’s very effective. It doesn’t have a lot of side effects. But then there’s the monthly price tag.

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DANIEL O’DAY: The current list price is 1,780 in the United States.

ALEXANDRIA OCASIO-CORTEZ: OK.

SIMMONS-DUFFIN: That’s Daniel O’Day testifying before Congress in May. He’s CEO of Gilead, the drug company that makes Truvada. A generic is available overseas for around $6 a month. The program announced today doesn’t change that U.S. price tag. Instead, it allows certain people to get the drug for free. Here’s Secretary of Health and Human Services Alex Azar talking to reporters this morning.

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ALEX AZAR: To receive medication through the program, an individual must have no prescription drug coverage, test negative for HIV and have a valid on-label prescription for PrEP.

SIMMONS-DUFFIN: Azar says taxpayers will initially pay Gilead $200 per bottle for distribution. He said they’re trying to find a cheaper system. This all comes at a bit of an awkward moment for the government and the drugmaker. Last month, HHS sued Gilead over patent infringement.

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AZAR: We are now in litigation. Gilead has filed against us. We have filed against Gilead. This is not related in any way.

SIMMONS-DUFFIN: Prevention efforts with PrEP and other tools like condoms and clean needle programs are only part of the plan to end the HIV epidemic. It also calls for more HIV testing and for people who test positive to be on treatment. Nearly 40,000 people get infected with HIV every year. That works out to about 100 every day. And those numbers haven’t budged in years.

Selena Simmons-Duffin, NPR News.

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Copyright © 2019 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

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‘There’s No Good Dust’: What Happens After Quartz Countertops Leave The Factory

The Cambria factory in Minnesota manufactures slabs of engineered quartz for kitchen and bathroom countertops. If businesses don’t follow worker protection rules, cutting these slabs to fit customers’ kitchens can release lung-damaging silica dust.

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Cambria

Every day, 20 to 30 trucks roll into a factory in Minnesota. They’re filled with quartz — some of it like a powder, and some of it like sparkling little pebbles, in big white sacks.

“It’s about 30 million pounds of quartz a month,” says Marty Davis, the CEO of Cambria, a company that manufactures material for kitchen and bathroom countertops. “About a million pounds a day.”

All of this quartz gets transformed into a kind of engineered stone that looks like granite and marble, but with more durability and stain resistance. Quartz countertops have really taken off over the past decade, and factories around the world are churning out slabs of the stuff under different brand names.

However, if countertop-making businesses don’t follow worker protection rules, cutting these slabs to fit customers’ kitchens can release lung-damaging silica dust.

Natural granite contains silica too, but all of the quartz that goes into engineered stone means that it contains about twice as much.

So far, 19 countertop workers in the U.S. are known to have developed severe lung disease after cutting engineered stone along with other stone; two of them died of their illness, and others have been told they will eventually require lung transplants.

Manufacturers such as Cambria say that their slabs of composite stone are completely safe when cut and polished with the proper precautions.

“There’s clear regulation and clear guidance and governance on how to process materials safely to control dust and respiratory inhalation of dust,” Davis says.

He invited NPR to tour his factory. Above the entrance is a sign that says: “Through these doors walk the finest countertop makers in the world.”

Cambria produces around 30,000 slabs of quartz countertop material every month, says Davis, who adds that the company has also spent millions of dollars on air-handling systems to control dust.

“There’s no good dust. Zero,” says Davis, who gained an appreciation of safe manufacturing practices while working in his family’s dairy business.

Cambria receives raw quartz that is then combined with a binder and pigments to produce engineered quartz slabs, which are then sent out to workshops around the country.

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Cambria

A sign warns of silica at the door to a huge room filled with mechanical mixers. There, workers wear respirators as they combine quartz, pigments and a binder. The mixture gets spread out onto what looks like a giant baking sheet, then goes through a machine that vibrates the material in a vacuum to remove any voids.

This produces a soft, compressed slab that feels almost like cookie dough. It hardens when it gets heated, then cooled and polished. The factory is filled with rows of finished slabs in different colors, ready to be sent out to countertop-makers.

Davis says these slabs go out to thousands of workshops, and he can’t follow his product to each one.

“How do you police your customers?” he says, noting that the dangers of silica have been known for decades. “There are many products that we make in our world that, if processed or consumed improperly, are dangerous.”

He says the Occupational Safety and Health Administration has clear rules on controlling worker exposure to silica. “If you follow and adhere, your employees will be safe,” Davis says.

His company’s own countertop fabrication shops prove this, he says. In addition to manufacturing slabs, Cambria runs a network of five shops that cut slabs to order.

“They’re clean as a whistle,” says Davis, adding that one of his own sons works in the shops.

In these workshops, and at the main factory, Cambria uses devices to do real-time monitoring of silica dust — something that Davis says goes above and beyond what is currently typical for the industry.

But some workers in countertop shops run by other companies say they weren’t protected from silica.

Juan (who didn’t want to use his last name because of medical privacy) says he had a job making countertops in Washington state, and a lot of what he cut was quartz.

For the first couple of years, his workplace practiced dry cutting — that means no spray of water to keep the dust down. There was so much dust, he says, he couldn’t see someone working 20 feet away.

Juan, who is now 38, says he wore a simple face mask that didn’t provide enough protection and that no one told him about silica, or the danger.

“At first you don’t feel the changes a lot,” Juan said in Spanish, speaking through an interpreter. “Then later, with time passing, your body starts telling you that you’re missing air, that you’re suffocating and you’re tired.”

In 2016, after four years at the shop, he developed a cough that wouldn’t go away, no matter what medicine he took. About a year later, a friend who was a chiropractor advised him to get his lungs tested.

At first, his doctor told him it wasn’t necessary. “Then when he did the tests, the doctor almost cried. He said, ‘I’m sorry, you’re right, your lungs are very damaged,’ ” says Juan, who has a wife and three children.

He says he can’t carry groceries and gets exhausted just walking from his house to his car. He’s being evaluated for a lung transplant.

“After this happened, they made lots of changes in the company,” Juan says. “Now they don’t cut like they used to. They bought a lot of machines and the machines do most of the work.”

Dry-cutting methods generally are cheaper because they do not require specialized equipment or water recycling systems. One survey of countertop shops in 2012 found that the majority reported using dry methods all or most of the time in at least one fabrication step.

Margaret Phillips, an occupational health expert at the University of Oklahoma Hudson College of Public Health in Oklahoma City, has done silica sampling in shops to assess worker exposures.

Water applied to cutting equipment, like this computer-operated saw, is one method to control silica dust exposure when cutting quartz slabs.

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Michael Conroy/AP

“If workers were doing mostly dry fabrication, so they were grinding, polishing, cutting, without any use of water on their tool to suppress the dust, then exposures tended to be very high,” Phillips says. “Like 20 times over the current OSHA limit, maybe even 40 times, or more. Dry fabrication is exposing workers to very, very high levels of silica dust.”

Her research has found that even just a few minutes of dry fabrication was enough to put a worker’s exposure over the permissible limit. “Any amount of dry fabrication could really be a problem,” she says.

Some shops don’t do dry cutting, like Capitol Granite near Richmond, Va. There, big computer-controlled machines cut through slabs while dumping up to 35 gallons of water a minute on the blade to keep down the silica dust.

“We do not do any dry work whatsoever. That’s the only way that you can eliminate any risk affiliated with silicosis in the shop,” says owner Paul Menninger.

He says if it were up to him, dry cutting would be illegal.

In his workplace, machine operators and workers doing touch-ups with handheld tools don’t have to wear respirators, because silica is well-controlled. Menninger knows this because he recently invited in an inspector from OSHA, who tested the air.

But he says there are a lot of shops, especially smaller operations, that government inspectors never get to. And the stone cutting industry is unlicensed.

“It’s not like plumbing or electrical or HVAC or any of the other trades,” he says, “whereby there seems to be a standard or an international code.”

Yet consumers rely on the industry and regulators to ensure that products are made safely, says Carolyn Levine, a Washington, D.C., resident who recently replaced her natural granite countertops with engineered quartz.

The lung illnesses found in the countertop industry are alarming, she says.

“Having regulations and precautions is important, and this is a good example of why,” Levine says.

She had never heard of engineered quartz before deciding to replace her old granite countertops, which she had for more than 12 years.

“I just wanted something lighter and brighter,” Levine says. “I had two guys give me estimates.”

They both were emphatic, she says, that compared to granite, the superior product was quartz.

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As University Hospital Hounds Debtors, Doctors Say It’s Doing Harm

The University of Virginia Health System has sued more than 36,000 patients for unpaid medical bills. NPR’s Lulu Garcia-Navarro speaks Dr. Michael Williams, who is fighting the practice.



LULU GARCIA-NAVARRO, HOST:

In recent months, doctors at the University of Virginia Health System discovered something that shocked them. Over several years, UVA had been suing some 36,000 patients who had unpaid medical bills. UVA was going after their wages and savings and even driving some into bankruptcy. So some UVA doctors decided to publicly push back. Dr. Michael Williams is one of them, and he joins us now.

Good morning.

MICHAEL WILLIAMS: Good morning to you.

GARCIA-NAVARRO: So you and some of your colleagues went public in a letter to Kaiser Health News. You said UVA’s billing practices violate the oldest ethic of Western medical practice, the Hippocratic oath that says, first, do no harm. Can you explain that?

WILLIAMS: Yes. Well, all of us take that oath very seriously. I can think of no physician who doesn’t. And so to find out that patients for whom we had prescribed therapies, performed surgeries, conducted procedures and the like were being sued, up to and including the point of taking their homes, felt like a betrayal to those of us who signed the letter and many others here.

GARCIA-NAVARRO: How did you learn about this?

WILLIAMS: Well, we learned about the rest – the way, I think, the rest of the world did. There was the story that broke in Kaiser Health News. And none of the faculty that I know were aware of the depth and breadth of the situation and/or how much harm had been done.

GARCIA-NAVARRO: Shouldn’t you have known sooner that this was happening since this is a place where you work?

WILLIAMS: Yes. Well, it is – yes. It is one of the more complex systems that you’ll come across. The physicians at UVA, like many other health systems, actually don’t work for the medical center. It’s a separate business entity. So we are, as physicians, not privy to the billing and collection practices of the hospital.

So on the one hand, we currently have no mechanism by which to know this information. On the other hand, I have to agree with you. It is incumbent upon us as physicians to educate ourselves on these matters and other things that are similar to – things that can cause harm like this.

GARCIA-NAVARRO: So what should be different about how UVA goes after people who owe it money?

WILLIAMS: UVA will still have to go out people who owe the system money. There is no other way to describe the U.S. health care system currently as anything but a business. We – I’ll speak for myself – are in favor of loosening the level of aggression with which we pursue outstanding accounts and certainly the elimination of lawsuits. I would rather see the health system and the practice group collectively understand our patients’ context and then probably make different choices based on that context.

GARCIA-NAVARRO: I was about to ask, Dr. Williams, does that mean that you might prescribe things differently? What impact could that have on your patients’ health and the choices that they may make?

WILLIAMS: I think in doing no harm, we also need to be into – weigh the balance of the financial harm that we will incur if we prescribe a specific course of action or therapy. We physicians need to, in my view, say, what are cost-effective, as well as clinically effective, therapies that can be offered that will achieve the patient’s clinical outcome that we’re looking for together and yet take into mind the patient’s – as I said, their context?

GARCIA-NAVARRO: The university has responded with two changes. They will screen out or go easier on a wider range of debtors, and they’ve established an advisory group to overhaul their billing practices. Do you think it’s enough?

WILLIAMS: Well, the – I think it’s not enough. I think it’s a good beginning. I think having community voice as part of this conversation is essential. But as I said, both patients and physicians have to understand the economics of this whole business that we’re in together.

GARCIA-NAVARRO: Listening to you talk about this, I can’t help but think that this puts an additional burden on doctors, who are already – if you speak to doctors – overburdened with a lot of different paperwork and having to think about patients. I mean, does that not add an extra layer to what you do?

WILLIAMS: Absolutely. And that’s the job. We have become safe when it comes to infections related to catheters. And we’ve become safe when it comes to patients who fall. We’ve become safer when it comes to things like sharp injuries from needles and sutures and the like. If we continue to cause financial harm to this degree, we have rendered our patients no safer.

GARCIA-NAVARRO: Dr. Michael Williams is a surgeon and head of the UVA Center for Health Policy. Thank you very much.

WILLIAMS: Thank you for having me.

Copyright © 2019 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

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Opinion: Emergency Rooms Shouldn’t Be Parking Lots For Patients

Waits for inpatient beds are an important factor in ER overcrowding.

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On a good day in the emergency room where we work, patients who need to be admitted to the hospital might expect to wait four or five hours, including evaluation and treatment, before they are sent upstairs to a ready bed.

On a bad day, ER patients might wait two or three times as long, and sometimes much longer.

Recently, one of us cared for a bedridden patient with chest pain who spent 47 hours in an ER hallway before a spot became available in the cardiac unit.

Keeping patients in the ER while waiting for an inpatient bed — a practice known as boarding — isn’t unique to the busy teaching hospitals where we work. According to the Centers for Disease Control and Prevention, most American hospitals have boarded patients in the ER for more than two hours while waiting for an inpatient bed.

It’s a stubborn problem. A 2001 study suggested that as many as 1 in 5 ER patients is boarded. In 2006 the Institute of Medicine identified boarding as part of a “national crisis” affecting emergency care. In 2016, two-thirds of hospitals reported boarding patients in the ER or an observation unit for more than two hours, compared with 57% in 2009.

Waiting hours for a hospital bed can be maddening for patients and their families. Sometimes literally. Researchers recently found that long waits in ER hallway beds are associated with delirium, a medical condition defined by confusion and disorientation.

But boarding in the ER affects much more than patients’ state of mind. The American College of Emergency Physicians has identified boarding as one of the most important factors in ER overcrowding. And overcrowding, in turn, has been associated with everything from delays in administration of pain medication and antibiotics to longer inpatient stays, greater exposure to medical error, delayed treatment for heart attack and even increased mortality.

To understand why boarding can have so many negative consequences, think of a busy school cafeteria at lunch. No matter how efficient the cafeteria workers are at making and serving the food, processing payment and getting people through the line, no one can sit down to eat if all the tables are occupied with other students.

In our case, the emergency department can be remarkably effective at diagnosis and treatment. But if there’s nowhere for admitted patients to go, the whole operation gets bogged down and everyone’s care suffers.

If boarding is such a problem, why do hospitals allow it to continue?

The answer, as with so many things in our health care system, is complicated. But it has a lot to do with money.

Since 1975 the number of hospitals in America has declined by 30%. That’s more than 1,500 hospitals shuttered, with half a million beds lost.

Market forces have been largely responsible, as technology became more expensive, reimbursement rates were curtailed and hospitals either merged or went bankrupt. Meanwhile, annual ER visits have increased by nearly 50 million since 1995.

It looks like a basic supply and demand problem.

But here’s a curveball: Most hospitals operate, on average, at only about 65% of their total inpatient capacity — and this number has actually dropped since 1975.

How can that be?

Reimbursement is a key part of the puzzle.

Medicare, which provides insurance for about 60 million Americans, sets the bar for how much hospitals are paid, from treating pneumonia to neurosurgery. And those reimbursement rates have strongly favored invasive procedures like surgery, colonoscopy and cardiac catheterization.

Simply managing medical conditions in the hospital is much less lucrative.

Hospitals have a strong financial incentive to prioritize these procedures and to give latitude to the specialists performing them in setting their schedules. As a result, dozens of surgeries might be scheduled for a Monday morning, just a handful the following day and almost none over the weekend.

This approach creates wide variation in the number of postoperative patients needing admission to the hospital on any given day. But one thing’s for sure, a surge in post-op patients needing hospital beds means fewer beds for ER patients, which creates a bottleneck and leads to boarding. The variation in demand causes hospitals to swing between overcrowding and underutilization.

So even though we’re seeing more patients in fewer hospitals, limited capacity may not be the primary issue. It’s that we’re using existing capacity inefficiently.

A 2012 review identified inefficiency rather than insufficient beds as the root cause of boarding. Other sources of inefficiency include restricting certain beds to certain specialties, skeleton staffing during nights and weekends and poor discharge planning.

The silver lining is that efforts to improve efficiency are much less expensive than building a new hospital wing. Smoothing out surgical scheduling, for one, has been shown to yield major improvements. Cincinnati Children’s Hospital increased occupancy to 91% from 76%, made $137 million in extra revenue and avoided a $100 million expansion by rejiggering the surgical schedule and streamlining discharges.

Many hospitals are working on the problem. In the two teaching hospitals where we work in Boston, policies are in place to use observation units, affiliated community hospitals and even “home hospital,” where patients receive care from teams that visit them at home, to spare inpatient beds.

Even so, other hospitals may be falling short. Researchers found in 2012 that a majority of the most crowded hospitals had been slow to adopt the most effective measures to alleviate the bed crunch.

Could legislation be the answer? Perhaps.

In 2005, Britain instituted a maximum length of stay of four hours for all ER patients. It worked — 94% of patients were meeting that goal by 2014, although hospitals there have slipped more recently. Australia, New Zealand and Canada have had similar successes.

A legislative mandate seems far-fetched in the U.S., given the current state of Congress. Medicare has begun offering financial incentives for hospitals to address boarding, and the major accreditation organization for hospitals introduced guidelines on how to improve boarding in 2014. Neither of these measures requires action, though.

Ultimately, we suspect that what is really needed is an overhaul of the current system of financial incentives and reimbursement, coupled with penalties for hospitals that fail to act on the problem.

Until then, we’re sorry if you’re still waiting for that bed.


Clayton Dalton and Daniel Tonellato are resident physicians at Massachusetts General and Brigham & Women’s hospitals, both in Boston.

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When Teens Abuse Parents, Shame and Secrecy Make It Hard to Seek Help

Most people think domestic violence involves an adult abusing an intimate partner or a child, but children can also threaten, bully and attack family members. Some abused parents are speaking out.

Hokyoung Kim for NPR and KHN

Nothing Jenn and Jason learned in parenting class prepared them for the challenges they’ve faced raising a child prone to violent outbursts.

The couple are parents to two siblings whom they first fostered as toddlers and later adopted. (NPR has agreed not to use the children’s names or the couple’s last names because of the sensitive nature of the family’s story.)

In some ways, the family today seems like many others. Jenn and Jason’s 12-year-old daughter is into pop star Taylor Swift and loves playing outside with her older brother. He’s 15, and his hobbies include running track and drawing pictures of superheroes. The family lives on a quiet street in central Illinois, with three cats and a rescued pit bull named Sailor.

Jenn describes their teenage son as a “kind, funny and smart kid,” most of the time.

Drawings made by Jenn and Jason’s 15-year-old son lie on the family’s dining room table in their home in central Illinois. Though his angry outbursts reveal a violent side, his parents say that most of the time he is “kind, funny and smart” — a teen who enjoys drawing pictures of superheroes.

Christine Herman/Illinois Public Media


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Christine Herman/Illinois Public Media

But starting when he was around 3 or 4 years old, even the smallest things — like being told to put on his swimsuit when he wanted to go to the pool — could set off an hours-long rage.

“In his room, his dresser would be pushed across the other side of the room,” Jason says. “His bed would be flipped up on the side. So, I mean, very violent. We’ve always said it was kind of like a light switch: It clicked on and clicked off.”

Jenn and Jason say their son’s behavior has gotten more dangerous as he has gotten older. Today he’s 6 feet tall — bigger than both of his parents.

Most of the time, Jenn says, her son directs his initial anger and aggression toward her. But when the 15-year-old has threatened to hit her, and Jason has intervened, the teen has hit his father or thrown things at him.

“The way he will look at me is just evil,” Jenn says. “He has threatened to slap me in the face. He’s called me all sorts of horrible names. After an incident like that, it’s hard to go to sleep, thinking, ‘Is he going to come in and attack us while we’re sleeping?’ “

Help Is Available

If you are experiencing abuse and need help, you can call the National Domestic Violence Hotline at 1-800-799-7233 or visit its page for an online chat.

People who are victims of domestic violence are advised to seek help. But when the abuse comes from your own child, some parents say, there’s a lack of support, understanding and effective interventions to keep the entire family safe.

While research is limited, a 2017 review of the literature found child-on-parent violence is likely a major problem that’s underreported.

Jenn says she’s concerned about everyone’s safety and worries about her 12-year-old daughter being exposed to constant violence in their home.

The stress has taken a significant mental and emotional toll on Jenn. She sees a therapist to cope with the abuse at home and to deal with her anxiety.

“There are days when it’s hard to breathe,” Jenn says. “You just feel it in your chest — like, I need a breath of air, I’m drowning. We say to each other all the time, ‘This is insanity. How can we live like this? This is out of control.’ “

Parents feel blamed and shamed into silence

It’s hard to know exactly how common Jenn and Jason’s experience is, since research is sparse. In one nationally representative survey in the mid-1970s of roughly 600 U.S. families, about 1 in 11 reported at least one incident of an adolescent child acting violently toward a parent in the previous year. In about a third of those cases, the violence was severe — ranging from punching, kicking or biting to the use of a knife or gun.

Other more recent estimates of the prevalence of child-on-parent violence range from 5% to 22% of families, which means several million U.S. families could be affected.

A 2008 study by the U.S. Justice Department found that while most domestic assault offenders are adults, about 1 in 12 who come to the attention of law enforcement are minors. In half of those cases, the victim was a parent, most often the mother.

While most children who are abused or witness domestic violence do not go on to become violent themselves, and while most people with mental illness are not violent, those life experiences have been identified as risk factors for children who abuse their parents.

Lily Anderson is a clinical social worker in the Seattle area who has worked with hundreds of families dealing with a violent child. Along with her colleague Gregory Routt, she developed a family violence intervention program for the juvenile court in King County, Wash., called Step-Up.

Anderson says, in her experience, many parents feel ashamed about their situation.

“They don’t want to tell their friends or their family members,” Anderson says. “They do feel a lot of self-blame around it: ‘I should be able to handle my child. I should be able to control this behavior.’ “

Anderson says many of the incidents take place at home, where the assaults are hidden from the public eye. That contributes to the lack of public awareness about the issue and makes it even harder for affected parents to find support.

“The whole issue becomes perceived as being the parent’s problem and the parent is to blame for the youth’s behavior,” Anderson says. “I think the main issue is that we need to talk about this. We need to talk — be willing to put it out there and make it an important issue and bring resources together for it.”

When therapy doesn’t fix it

Jenn says that she has talked to her son’s therapists about why he has such trouble regulating his emotions, and they’ve told her it could be linked to the severe trauma he experienced as a baby and toddler.

When the couple began fostering the siblings in late 2007, the boy was 3 and his sister younger than 1. They had been removed from the home of their birth parents, where police were regularly called for drug and domestic violence issues. Jenn says her son remembers being beaten by men in his home and watching as his biological mom cut herself.

Jenn, Jason and their kids together at home last spring. Before they were adopted, the kids experienced or witnessed significant abuse in their birth family, Jenn says. That severe trauma, according to therapists, is likely a source of their son’s difficulty in regulating his emotions.

Christine Herman/Illinois Public Media


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Jenn and Jason started their son in therapy at a young age, and he has been diagnosed with reactive attachment disorder, PTSD, ADHD and autism.

The teen has attended art therapy and equine therapy regularly for years. He also participated in a mentorship program and attended a school designed for children with behavioral health needs. Jenn and Jason participated in family therapy sessions with their son, where they learned coping skills and practiced de-escalating situations at home.

The teen was also prescribed medication to help regulate his emotions.

Jenn says her son enjoyed going to therapy and seemed to be making some progress, but his anger remained unpredictable.

During the worst of the conflicts, the teen has kicked holes in walls and broken appliances. He has attempted to run away from home and even created weapons to try to hurt his parents and himself. About once a month, in recent years, Jenn and Jason have had to call police to their house for help restraining their son and sometimes had to have him admitted to the hospital for a brief psychiatric stay.

“Seems like it’s not enough”

Keri Williams is a writer in North Carolina who advocates for parents raising children who have trauma-related behavioral issues, including attachment disorders that can manifest as intentional violence directed toward parents.

Williams’ own son became so violent that her family had to place him in a residential facility at age 10. He’s now 18.

“I actually thought I was the only person going through it,” Williams says. “I had no idea that this was actually a larger issue than myself.”

Williams manages a blog and Facebook page where she says parents like herself, who are often isolated and unsure of where to turn, can find others who can relate.

Many parents she meets online struggle to accept that they’re dealing with a serious domestic violence issue, she says.

“You just don’t want to think like that,” Williams says. “That’s just not how our culture is and how parents perceive things. And that denial actually is what keeps parents from getting their kids help.”

Jenn — the mother of the 15-year-old in Illinois — says parenting her son often feels like being stuck in an abusive relationship.

“But it’s different when it’s your son,” she says. “I don’t have a choice. I can’t just, you know, shove him away or break up with him.”

Jenn says any time she sees a news story about a child who has killed a parent, she worries. Such events are extremely rare, and Jenn doesn’t want to think her son is capable of that.

“But, unfortunately, the reality is, when he is in those rages and in those meltdowns, he really isn’t thinking straight, and he’s very impulsive,” Jenn says. “So, it’s very scary.”

Despite all the challenges, she and her husband both say that adopting their son has brought them a lot of joy.

“It’s made me a better, stronger person, a better and stronger wife and teacher,” Jenn says.

But, she adds, she wishes there were more effective treatments that could help kids like her son live safely in the community and more places where traumatized parents could turn to find help.

“I feel like we’re doing everything that we can for him, but it just seems like it’s not enough,” Jenn says.

A difficult decision

Right before the current school year started, Jenn and Jason made the difficult decision to send their son to a residential facility for children with severe behavioral health issues. He’s living there now.

The couple wrestled with that choice for some time. The boy had already spent almost three years in residential treatment all told, starting when he was 10. He’d moved back home last year because they thought he was ready.

But the family continued to deal with almost-daily standoffs involving verbal threats, angry outbursts and property destruction.

The boy’s 12-year-old sister says she has mixed feelings about her brother leaving home again to reenter residential treatment.

“It makes me feel happy and sad,” she says, “because, well, I love my brother. And I know he’ll be getting the help he needs.”

She’s comforted knowing her parents will be safe but says she’ll miss her brother a lot.

“I just love him,” she says. “And I don’t want to see him go through that.”

This story is part of NPR’s reporting partnership with Side Effects Public Media, Illinois Public Media and Kaiser Health News. Christine Herman is a recipient of a Rosalynn Carter Fellowship for Mental Health Journalism. Follow her on Twitter: @CTHerman.

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Future Of Surprise Medical Billing Legislation Remains Uncertain

The summer kicked off with a blitz of government activity to end surprise medical billing, but lobbying, impeachment, and policy arguments have left the future of the legislation up in the air.



ARI SHAPIRO, HOST:

Surprise medical billing was supposed to be the easy health care fix that Washington could get done this year. In May, President Trump urged Congress to come up with a solution.

(SOUNDBITE OF ARCHIVED RECORDING)

PRESIDENT DONALD TRUMP: No American mom or dad should lay awake at night worrying about the hidden fees or shocking, unexpected medical bills to come.

SHAPIRO: Bills were introduced and advanced. Democrats, Republicans, senators, House members – practically everyone agreed the practice was bad and it should stop. Now Congress is getting ready to wrap up the year and still hasn’t passed legislation. NPR’s Selena Simmons-Duffin explains what’s going on.

SELENA SIMMONS-DUFFIN, BYLINE: This is an easy thing to get worked up about. It just seems so unfair. The classic scenario is this – you go to an emergency room, even one that’s in your insurance company’s network. A doctor working there is not in your network and consults with you or treats you. That doctor can bill you what’s called a balance bill. So the insurance company tells the doctor, we’ll pay $1,000. The doctor says, well, I’m going to charge $5,000, and you are on the hook for that difference.

ERIN FUSE BROWN: There’s a lot of agreement that this is a broken part of the health care system that everyone agrees the market can’t fix by itself.

SIMMONS-DUFFIN: Erin Fuse Brown is a law professor at Georgia State University. Because so many members of Congress in both parties agree that it’s outrageous and a place where the government needs to step in, this seemed doable.

FUSE BROWN: Absolutely doable. It’s not fixing the whole health care system.

SIMMONS-DUFFIN: It’s like low-hanging fruit.

FUSE BROWN: Yes.

SIMMONS-DUFFIN: But there are two problems – agreeing on how to get it done and getting passed a flood of lobbying money. Anna Massoglia is a researcher with the Center for Responsive Politics. And she says, at the end of July, a group with the friendly sounding name Doctor Patient Unity came out of nowhere.

ANNA MASSOGLIA: Doctor Patient Unity, practically overnight, spent about $28 million on ads.

SIMMONS-DUFFIN: Ads like this one.

(SOUNDBITE OF ARCHIVED RECORDING)

UNIDENTIFIED PERSON: Congress is working to end surprise medical billing, and that’s a good thing. But that fix cannot include government rate setting, a slippery slope toward doctor shortages…

SIMMONS-DUFFIN: Massoglia says it was clear this was a front group for industry, but there was very little information about who was funding it. The mystery lasted until September, when the group revealed themselves to reporters at The New York Times. It turns out…

MASSOGLIA: Private equity-backed firms were some of the entities bankrolling the operation.

SIMMONS-DUFFIN: Private equity had been buying up physician groups. Surprise bills were part of their business model to bring in profits for investors, and they jumped in to defend that business model. While social media and TV got bombarded, Dan Auble, who’s also from the Center for Responsive Politics, says Congress was getting bombarded, too. Last year, only a few dozen groups lobbied on surprise billing. This year?

DAN AUBLE: We’ve seen 340 groups mention it on their lobbying reports, and they’ve hired 1,200 lobbyists to do that work.

SIMMONS-DUFFIN: But the lobbying and ads are not the whole story here. The other big issue is how to fix the surprise billing problem, says Fuse Brown.

FUSE BROWN: The disagreement really comes down to how to determine the amount that the health insurance company is going to pay the out-of-network provider.

SIMMONS-DUFFIN: So remember – if the doctor wants to charge $5,000 and the insurer wants to pay $1,000, how do you settle on the amount?

FUSE BROWN: There’s this hot debate about where do you set the payment amount and what role does the government have in actually setting it or does it just sort of set up a mechanism for some third party to decide?

SIMMONS-DUFFIN: There are bipartisan bills in the House and the Senate. There was momentum in the summer. In the fall, things seemed stalled. But congressional meetings are starting up again. So now the state of play is this – the White House and lawmakers mostly say they’re optimistic this can get done by Christmas. But there are still hurdles to clear. So even this low-hanging health policy fruit might not get picked this year.

Selena Simmons-Duffin, NPR News.

(SOUNDBITE OF JELLIS AND SUBSET’S “KYOTO”)

Copyright © 2019 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

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Bill Of The Month: Extraction Of Doll Shoes In Girl’s Nose Cost $2,659

A 4-year-old girl was playing with her dolls and next thing you know, she had two tiny doll shoes stuck in her nose. A trip to urgent care, then the emergency room left her parents with a giant bill.



MARY LOUISE KELLY, HOST:

If you’re in the emergency room with your kid, it’s scary, and the bill is probably not the first thing on your mind. But a visit to the emergency room can end up getting pretty pricey.

Each month, NPR takes a medical bill to sort through why they can be so confusing and confounding. Today, we look at the case of a pretty big bill for what seems like a pretty simple medical service. It only took a minute or so.

We’re joined by Dr. Elisabeth Rosenthal. She’s editor-in-chief of our partner Kaiser Health News. Welcome back.

ELISABETH ROSENTHAL: Hi. That’s quite a story.

KELLY: Quite a story. So who are we hearing from? What’s the story?

ROSENTHAL: Today, we’re meeting the Branson family from Las Vegas. They’re a young couple with two little girls, Emma and Lucy. And the bill involves a Polly Pocket doll and an emergency room visit.

KELLY: OK. Looking forward to hearing where this one goes. And our guide is going to be reporter Stephanie O’Neill, who visited the Bransons. Let’s hear what happened.

STEPHANIE O’NEILL, BYLINE: For the Bransons of Las Vegas, the story of Lucy and the tiny doll shoes is one no one in this family will ever forget. It happened last April. Lucy was just 3 1/2. And on this particular evening, her parents, Katy and Michael, were getting ready for a long-awaited concert. It was to be a special evening, one given to them by Katy’s parents.

KATY BRANSON: We had a babysitter coming in, like, less than an hour. We had these tickets. We were really excited. And Lucy comes up the stairs, and I hear (imitating coughing). And I was like, what is going on? And Michael said, why are you coughing?

O’NEILL: But Lucy wouldn’t answer them beyond gesturing at her nose, Michael says.

MICHAEL BRANSON: Well, I kind of pulled her back and kind of lifted her head up and put her on our bed. And that’s when I could see something up her nose.

O’NEILL: That something was a pair of tiny, pink, plastic doll shoes, one perfectly lodged in each of Lucy’s little nostrils. Michael says panic overtook him, while Katy, who was in the midst of readying herself for the date, sprung into full-on mom mode.

K BRANSON: And so I went up with my little tweezers, and I get one little pink shoe out, and I put it on the counter. It’s maybe about the size of a Q-tip head.

O’NEILL: Easy peasy, she thought. So she takes a deep breath and reaches into the other nostril. But as Lucy, now 4 years old, explains, it didn’t work.

LUCY: The other one was stuck in my nose, and I couldn’t – and my mom couldn’t get it out.

O’NEILL: Big sister Emma says…

EMMA: And it was hard for her to breathe.

O’NEILL: Emma’s 7.

EMMA: It was scary. Lucy, was it scary?

LUCY: Yes.

EMMA: That’s what I was thinking.

O’NEILL: Have you ever done anything like that?

EMMA: Never in my life.

O’NEILL: But it is pretty common for kids to stick things up their noses, with some items even requiring surgical extraction. Still, Katy wasn’t too worried, even when her tweezers couldn’t reach the second shoe.

K BRANSON: I’m thinking, OK, well, I can’t get this out. I don’t want to hurt her. So I say, OK, Lucy, you need to blow. Like – and then I kind of do the motion of blow. And she goes (imitating inhaling).

O’NEILL: That was a giant sniff.

K BRANSON: And I was like, oh, shoot (laughter).

O’NEILL: After that, Katy knew it was time for the professionals.

K BRANSON: So I said, OK, Michael, you need to go to the urgent care. They should have the tweezers. All we need is – are – is tweezers that are, like, maybe a half an inch or an inch longer than my standard day-to-day tweezers.

O’NEILL: But urgent care didn’t have a long enough pair. Next stop, the hospital emergency room. And voila – the ER doc easily plucked the shoe out of little Lucy’s nostril.

M BRANSON: And it was probably less than one second – the time they put it up her nose, latched on it, pulled it out. She was out.

O’NEILL: Lucy got a lollipop. Katy and Michael got to the concert. It seemed like their lucky day.

Then they got the bill – almost $2,000 for the ER and almost another grand for the ER doc. And because the Bransons have a high-deductible plan, they’re responsible for all of it.

K BRANSON: I thought it was simply an error. I was like, there is no way.

O’NEILL: What’s the most you’ve ever paid for a pair of shoes?

K BRANSON: Oh, my gosh – probably $178. Yeah. They were normally 228, and I had a coupon. I was very proud of it.

O’NEILL: So you’ve never had a pair of shoes anything close to the cost of these shoes.

K BRANSON: No, I haven’t – never had a $3,000 pair of shoes.

O’NEILL: Still, Katy Branson says she remains hopeful that Lucy has learned her lesson.

K BRANSON: But she has said she will never put shoes up her nose again. She’s promised.

O’NEILL: And her parents hope that also means she won’t be sticking anything else up her nostrils ever again.

For NPR News, I’m Stephanie O’Neill in Las Vegas.

KELLY: Oh, wow. I am in full-on mom myself right there with those poor parents. Elisabeth Rosenthal, you were an ER doc before you moved to Kaiser Health News. Is that right? How common is this – kids in the ER with something they have managed to shove up their nose?

ROSENTHAL: Well, I worked in an adult ER, and grown-ups have mostly learned not to do this kind of thing. But pediatricians say it’s very common and very easy to treat if you have long tweezers, which they call forceps – medical lingo. As a kid, I myself put pussy willows in both ears, so I’ve been there.

KELLY: In your ear. OK. I have been there with – yes – with kids for many things, including things up the nose. But I have never been presented with a $3,000 bill for something that took less than a minute to get out. What’s going on here?

ROSENTHAL: What’s going on here is that today, everything and anything will be billed and billed a lot. The doctor charged over $900. Katy Branson very smartly negotiated that into half right away. But the hospital charged more than 1,700. And so far, they aren’t budging.

KELLY: They aren’t. And I’m sure the parents have asked for them to budge. Why aren’t they?

ROSENTHAL: Well, their attitude seems to be, an ER visit is an ER visit, and you could’ve gone to urgent care.

KELLY: They did go to urgent care, though.

ROSENTHAL: Right. And it was a Friday night, and they didn’t want to leave Lucy uncomfortable all weekend. And plus, what layperson knows whether or not it’s dangerous to leave Polly Pocket shoes up your kid’s nose for the weekend.

KELLY: Yeah, you don’t want her to keep sniffing in, and they end up in her lungs. And then…

ROSENTHAL: Right. They made a rational decision.

KELLY: So their insurance did not pick up any of this. Explain.

ROSENTHAL: Well, lots of families these days, like the Bransons, opt for a high-deductible plan. That means, in the Bransons’ case, they had to spend $6,000 before insurance kicked in. They’re pretty savvy. They made a decision that they would set this money aside for, like, a medical crisis. They just never imagined that they’d have to spend this money for a little shoe up the nose.

KELLY: Yeah. And what is the takeaway here? What should they have done differently, particularly – as we said, it’s a – it was a Friday night. The pediatrician wasn’t there.

ROSENTHAL: Well, a pediatrician might have told them it could safely wait until Monday morning or at least look for other options the next day. So it’s important, I think, to have a primary care doctor who can say, beware; there are other options. But they did one really smart thing that others should follow. Instead of getting angry when they saw this bill, they began to push back right away and got a discount from the doctor, at least.

KELLY: A minor point, but I have to ask – whatever happened to the Polly Pocket shoes?

ROSENTHAL: The hot pink ones that caused the trouble disappeared into the playroom vortex. But Lucy and Emma had lots of other Polly Pocket shoes to show us when we visited.

KELLY: (Laughter) It’s a danger lurking in every corner.

ROSENTHAL: Yes. Be careful.

KELLY: You can see those pictures, if you dare, at NPR’s Shots blog.

Elisabeth Rosenthal, thank you so much for being here today.

ROSENTHAL: Thanks for having me.

(SOUNDBITE OF ISOTOPE 127’S “LA JETEE”)

Copyright © 2019 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

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Department Of Veterans Affairs Thinks Telehealth Clinics May Help Vets In Rural Areas

About 5 million vets live in rural America and when it comes to health-care, there can be both literal and logistical obstacles. The Department of Veterans Affairs thinks telehealth clinics may help.



MARY LOUISE KELLY, HOST:

About 5 million veterans live in rural America, and it is not always easy for them to access health care. The Department of Veterans Affairs says it may have an answer. Jay Price of member station WUNC reports from Eureka, Mont.

JAY PRICE, BYLINE: About a thousand people live in this former logging town. It sits just seven miles from the Canadian border. Longtime resident Bob Davies is a 75-year-old Vietnam veteran. He likes it here because it’s a long way from just about anything except mountains, forests and glaciers.

BOB DAVIES: Most people come here specifically because it’s away from all the big cities, but the big cities are the only places that have the hospitals and stuff.

PRICE: And that lack is one of the downsides for veterans like him who live in and around Eureka. The town is 65 miles north of the nearest small VA clinic in Kalispell. Davies has been driving there for telehealth appointments with a doctor in another city who helps with his PTSD. And Eureka’s nearly 260 miles from the nearest VA medical center, a long drive sometimes on ice-covered roads, sometimes with a few surprises.

DAVIES: In the spring and summertime, it’s like running a gauntlet with the deer. Our service officer – he hit an elk one day, and it totaled his truck.

WILLIAM J SCHMITZ: All right, now I think it’s about time to do a little snipping. OK.

PRICE: The man with the scissors is William J. “Doc” Schmitz, commander of the entire 1.6 million-member VFW. He’s come all the way from New York to cut the ribbon on the first telehealth clinic in a VFW post.

SCHMITZ: OK. We’ve rehearsed this, so don’t worry.

(LAUGHTER)

SCHMITZ: Just notice I still have the fingers.

PRICE: Telehealth lets health care professionals work with patients through things like video conferencing. Now, in a back room of Eureka’s VFW post 6786, a telehealth clinic is packed in a futuristic white and gray pod. It’s roughly the size of a utility shed, with pleasant lighting, chairs and a large screen with a video camera above. The VA is planning similar setups in American Legion posts, libraries and even Walmarts. It already tallies more than a million video appointments a year, many with veterans in their homes via the Internet. But some vets in remote areas, like Bob Davies, don’t have broadband Internet service, or they might want more privacy than they can get at home. Dr. Ashish Jha is with the Harvard School of Public Health. He says telemedicine has limits.

ASHISH JHA: We have to know when telemedicine is effective and when we have to physically bring people in. That’s a new area that we’re still learning, I think. So if you see a patient who’s having some chest discomfort, you know, when is it just a sprained muscle or when is it potentially early heart attack?

PRICE: Still, Dr. Jha is optimistic. He sees a day when telemedicine will help transform health care for everyone.

For NPR News, I’m Jay Price.

(SOUNDBITE OF SNOOP DOGG’S “GANGSTA’S LIFE”)

Copyright © 2019 NPR. All rights reserved. Visit our website terms of use and permissions pages at www.npr.org for further information.

NPR transcripts are created on a rush deadline by Verb8tm, Inc., an NPR contractor, and produced using a proprietary transcription process developed with NPR. This text may not be in its final form and may be updated or revised in the future. Accuracy and availability may vary. The authoritative record of NPR’s programming is the audio record.

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A Cancer Care Approach Tailored To The Elderly May Have Better Results

Geriatric oncologist Supriya Gupta Mohile meets with patient Jim Mulcahy at Highland Hospital in Rochester, N.Y. “If I didn’t do a geriatric assessment and just looked at a patient I wouldn’t have the same information,” she says.

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When Lorraine Griggs’ 86-year-old father was diagnosed with prostate cancer, he was treated with 35 rounds of radiation, though he had a long list of other serious medical issues, including diabetes, kidney disease and high blood pressure. The treatment left him frailer, Griggs recalls.

A few years later, when his prostate cancer reoccurred, Griggs’ father received a different kind of cancer care. Before his doctor devised a treatment plan, she ordered what’s known as a geriatric assessment. It included a complete physical and medical history, an evaluation by a physical therapist, a psychological assessment and a cognitive exam. The doctor also asked her father about his social activities, which included driving to lunch with friends and grocery shopping with some assistance.

“When the doctor saw how physically active and mentally sharp my father was at 89 years of age, but that he had several chronic, serious medical problems, including end stage kidney disease, she didn’t advise him to have aggressive treatment like the first time around,” says Griggs, who lives in Rochester, N.Y.

Instead, his oncologist placed her dad on one pill a day that just slowed down his cancer. Griggs’ father was able to enjoy his activities for another three years until he died at the age of 92.

Geriatric assessment is an approach that clinicians use to evaluate their elderly patients’ overall health status and to help them choose treatment appropriate to their age and condition. The assessment includes questionnaires and tests to gauge the patients’ physical, mental and functional capacity, taking into account their social lives, daily activities and goals.

The tool can play an important role in cancer care, according to clinicians who work with the elderly. It can be tricky to predict who will be cured, who will relapse and who will die from cancer treatment. Geriatric assessments can help physicians better estimate who will likely develop chemotherapy toxicities and other serious potential complications of cancer treatment, including death.

Geriatric assessment includes an evaluation by a physical therapist, a psychological assessment, a cognitive exam and a complete physical and medical history. The doctor takes all these factors into account and tallies a score for their patient to help guide their decision-making about the patient’s treatment.

Although the geriatric assessment is not 100% accurate, “it’s better than the clinician eyeball test,” says Supriya Gupta Mohile, a geriatric oncologist and professor of medicine at the University of Rochester. “If I didn’t do a geriatric assessment and just looked at a patient I wouldn’t have the same information,” she says.

A vulnerable population

More than 60% of cancers in the U.S. occur in people older than 65. As the population grows older, so will the rate of cancer among seniors. The cancer incidence in the elderly is expected to rise 67% from 2010 to 2030, according to a 2017 study in the Journal of Clinical Oncology. Yet many oncologists don’t have geriatric training.

Mohile, who treated Griggs’ father during his cancer relapse, explains that geriatric oncologists take a different approach than many other oncologists.

“We want to help older adults successfully undergo cancer treatment without significant toxicities, so it leads to a survival benefit,” she says. “What we don’t want to do is treat patients who will be harmed.”

Mohile says when she saw that Griggs’ dad was frail because of his other health issues, she explained that the standard treatment of care would be difficult for him.

“We went through the decision-making together and I was able to explain how it could cause harm and it would have no risk benefit. He wanted to live and not suffer toxicities,” she says.

A growing body of evidence supports the notion that cancer care for older adults can be improved with geriatric assessments.

A study published in the Journal of Geriatric Oncology in November found that in 197 cancer patients 70 years and older, 27% of the treatment recommendations patients received from the tumor board were different from those received after completing a geriatric assessment. Patients who received a geriatric assessment were recommended to have less intensive treatment or palliative care.

Overall, geriatric assessments have been found valuable for helping older adults with health conditions achieve higher quality of life. A 2017 Cochrane review of 29 studies of geriatric assessments on patients who’d been hospitalized found that patients were more likely to be alive and at home a year later compared to those who had standard care.

One of the reasons geriatric assessments can be so useful to clinicians treating cancer is that doctors don’t have enough information at their fingertips about how older patients respond to the drugs commonly used for chemotherapy. This is partly because there’s less research on this age group.

“You’re playing a guessing game most of the time. Older patients on chemo can get in more trouble than younger patients. The real issue is the patient’s capacity to tolerate care. I think geriatric assessments can improve how we tailor therapy,” says Efrat Dotan, associate professor of hematology/oncology at Fox Chase Cancer Center in Philadelphia and chair of the National Comprehensive Cancer Network, NCCN.

But other experts caution that geriatric assessments can backfire because of a dominant culture in medicine that tends to try to cure patients at all costs, even when treatments may be dangerous.

“Sometimes you don’t want to ask questions because you’re afraid you may have to deal with the answers,” says Otis Brawley, Bloomberg distinguished professor of oncology and epidemiology at Johns Hopkins University in Baltimore.

“The test tends to give us answers that scare us from treatment, and we are supposed to treat patients,” he says.

Often, if a cancer patient is turned away from treatment, they try to find a doctor that will offer it anyway.

“This happens all the time. The irony is that by going away from a doctor really doing the appropriate thing and then going to another doctor who doesn’t do the appropriate thing, sometimes that second doctor is actually hastening death,” says Brawley, former chief medical and scientific officer at the American Cancer Society.

An underutilized tool

Though geriatric assessments were developed about two decades ago and hailed as one of the clinical cancer advances of 2012 by the American Society of Clinical Oncology, they are still not widely used by oncologists.

The Surgical Task Force at the International Society of Geriatric Oncology found that only 6.4% of surgeons use comprehensive geriatric assessments in daily practice, and only 36.3% collaborate with geriatricians, according to a 2016 study in the European Journal of Surgical Oncology.

Many major academic centers have adopted the use of geriatric assessments. However, they’re still fairly scarce in community practices where staffing shortages, financial constraints, lack of institutional support and technology are major barriers to use. They are also time-consuming to complete — taking about two hours.

Mohile, who uses geriatric assessments before treating patients, says “the geriatric assessment is a tool anyone can print out and use.”

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But these days, “the geriatric assessment is a tool anyone can print out and use,” Mohile says. It’s recently been streamlined and will soon be built into the online health record, Epic, she says.

Still, lack of training among oncologists is an issue, Mohile says.

“Geriatric assessments have been around for a long time, but they have not been traditionally used by oncologists because they haven’t been trained how to do it or use it,” she says.

Finding treatment options for frail patients

Matthew LoBiondo Sr. from Conesus, N.Y., was being treated with chemotherapy for a gastrointestinal tumor when Mohile first met him as an inpatient. The 89-year-old was hospitalized because he was weak, dehydrated and not eating. Mohile says the dose of the medication he was on was too toxic for him.

Once she took over his care, she weaned him off that treatment, did a geriatric assessment with him and tailored a less toxic treatment plan.

One of the tenets of geriatric assessments is to help physicians select treatments that are best suited for a patient by getting to the core of their physical and mental capacity, regardless of their chronological age.

That’s ultimately the best way to treat older cancer patients, says Armin Shahrokni, a geriatrician and medical oncologist at Memorial Sloan Kettering Cancer Center in New York.

“The data are clear that the fitness of an older cancer patient, rather than age per se, should be the factor considered” when it comes to cancer treatment, he wrote in an editorial in the Annals of Surgical Oncology.

“Age is a meaningless number. I can see a very active 85-year-old very healthy cancer patient who runs marathons. I can also see a 65-year-old with a lot of other comorbid illnesses who is not as functional. How I treat them for cancer would be different,” Shahrokni says.

When he assesses a patient to be too frail for cancer surgery, he says it doesn’t mean that a patient would automatically go on palliative care.

“You would be amazed at how many other options open,” he says.

A frail patient with lung cancer, for instance, can be redirected from surgery to radiation, which is less toxic than chemotherapy and less invasive than surgery.

Geriatric assessments are a way to guide better cancer decision-making, he says.

As more studies about the value of geriatric assessments come out, Shahrokni says he hopes more people will become aware of their importance and find a way to implement them in their practice.

Health problems are less obvious among older adults because of atypical presentations, or because of communication problems due to hearing loss or cognitive impairment. Problems such as psychosocial status, or the environment, increase in importance in older patients because they frequently coexist with health problems and can interfere with their management.

“I think things are moving forward very nicely. In the next 10 years my hope is that not only surgeons and oncologists will do these types of assessments, but patients and their families will demand the health care system to provide a more comprehensive assessment of their functional status before cancer treatment. I think this is going to lead to better outcomes for patients,” Shahrokni says.

Cheryl Platzman Weinstock is an award-winning health and science journalist. This article was written with the support of a fellowship from the Gerontological Society of America, Journalists Network on Generations and the Retirement Research Foundation.

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In The Fight For Money For The Opioid Crisis, Will The Youngest Victims Be Left Out?

An infant is monitored for opioid withdrawal in a neonatal intensive care unit at the CAMC Women and Children’s Hospital in Charleston, W.Va., in June. Infants exposed to opioids in utero often experience symptoms of withdrawal.

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Babies born to mothers who used opioids during pregnancy represent one of the most distressing legacies of an opioid epidemic that has claimed almost 400,000 lives and ravaged communities.

In fact, many of the ongoing lawsuits filed against drug companies make reference to these babies, fighting through withdrawal in hospital nurseries.

The cluster of symptoms they experience, which include tremors, seizures and respiratory distress, is known as neonatal abstinence syndrome. Until recently, doctors rarely looked for the condition. Then case numbers quadrupled over a decade. Hospital care for newborns with NAS has cost Medicaid billions of dollars.

Studies indicate more than 30,000 babies with the condition are born every year in the U.S. — about one every 15 minutes. Although their plight is mentioned in opioid-related litigation, there are growing concerns that those same children will be left out of financial settlements being negotiated right now.

Robbie Nicholson now works as a mentor with a company called 180 Health Partners that helps women with addiction go through pregnancy. Her own newborn went through drug withdrawals, related to the medications she took to control her opioid cravings. She says most women she works with need a stable place to live and reliable transportation.

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Robbie Nicholson, a mother in Eagleville, Tenn., tried to comfort her second child while the baby slowly underwent withdrawal from drugs Nicholson had taken during pregnancy.

“The whole experience is just traumatizing, really,” Nicholson says.

Nicholson’s ordeal actually began right after her first pregnancy. To help with postpartum recovery, her doctor prescribed her a pile of Percocets. That was the norm.

“Back then, it was like I was on them for a full month. And then he was like, ‘OK, you’re done.’ And I was like, ‘Oh my God, I’ve got a newborn, first-time mom, no energy, no sleep, like that was getting me through,’ ” she says. “It just built and built and built off that.”

After developing a full-blown addiction to painkillers, Nicholson eventually found her way into recovery. In accordance with evidence-based guidelines, she took buprenorphine, a medication that helps keep her opioid cravings at bay. And then came another pregnancy.

But buprenorphine — as well as methadone, another drug used in medication-assisted addiction treatment — is a special kind of opioid. Its use during pregnancy can still result in withdrawal symptoms for the newborn, although increasingly physicians have decided that the benefits of keeping a mother on the medication, to help her stay sober and stable during pregnancy, outweigh the risk of her giving birth to a baby with neonatal abstinence syndrome.

Treatment protocols for NAS vary from hospital to hospital, but over time doctors and neonatal nurses have become better at diagnosing the condition and weaning newborns safely. Sometimes the mom and her baby can even stay together if the infant doesn’t have to be sent to the neonatal intensive care unit.

But not much is known about the long-term effects of NAS, and parents and medical professionals both worry about the future of children exposed in utero to opioids.

“I wanted her to be perfect, and she is absolutely perfect,” Nicholson says. “But in the back of my mind, it’s always going to be there.”

There are thousands of children like Nicholson’s daughter entering the education system. Dr. Stephen Patrick, a neonatologist in Nashville, says schools and early childhood programs are on the front lines now.

“You hear teachers talking about infants with a development delay,” he says. “I just got an email this morning from somebody.”

Studies haven’t proven a direct link between in utero exposure to opioids and behavior problems in kids. And it’s challenging to untangle which problems might stem from the lingering effects of maternal drug use, as opposed to the impacts of growing up with a mother who struggles with addiction and perhaps unemployment and housing instability as well. But Patrick, who leads the Center for Child Health Policy at Vanderbilt University, says that is what his and others’ ongoing research wants to find out.

As states, cities, counties and even hospitals go after drug companies in court, Patrick fears these children will be left out. He points to public discussion of pending settlements and the settlement deals struck between pharmaceutical companies and the state of Oklahoma, which make little or no mention of children.

Settlement funds could be used to monitor the health of children who had NAS, to pay for treatment of any developmental problems, and to help schools serving those children, Patrick explains.

“We need to be in the mix right now, in schools, understanding how we can support teachers, how we can support students as they try to learn, even as we work out was there cause and effect of opioid use and developmental delays or issues in school,” he says.

New mothers in recovery for opioid addiction meet with a support group in Oak Ridge, Tenn. Most had newborns who endured drug withdrawals at birth, known as neonatal abstinence syndrome.

Blake Farmer


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Blake Farmer

But it’s a nuanced problem with no consensus on where money is most needed, even among those who have been working on the problem for years.

Justin Lanning started Nashville-based 180 Health Partners, which works with mothers at risk of delivering a baby dependent on opioids. Most are covered by Medicaid. And those Medicaid departments in each state pay for most of the NAS births in the U.S.

“We have a few departments in our country that can operate at an epidemic scale, and I think that’s where we have to focus our funds,” he says.

Lanning sees a need to extend government-funded insurance for new mothers, since in states like Tennessee that never expanded Medicaid, these moms can lose health coverage just two months after giving birth. That often derails the mother’s own drug treatment funded by Medicaid, he says.

“This consistency of care is so key to their recovery, to their productivity, to their thriving,” Lanning says of new mothers in recovery.

Nicholson now has a job at 180 Health Partners, assisting and mentoring pregnant women struggling with addiction. Nicholson says their biggest need is a stable place to live and reliable transportation.

“I just feel kind of hopeless,” she says. “I don’t know what to tell these women.”

There are many needs, Nicholson says, but no simple fix. Those who work with mothers in recovery fear any opioid settlement money may be spread so thin that it doesn’t benefit their children — the next generation of the crisis.


This story comes from NPR’s reporting partnership with Nashville Public Radio and Kaiser Health News.

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